LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Humorous words from ID Duck

 - UBBFriend: Email this page to someone!    
Author Topic: Humorous words from ID Duck
idducksrdumb
Junior Member
Member # 11691

Icon 1 posted      Profile for idducksrdumb     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I went to USC to (hopefully) be evaluated for a parasitical infection.

There aren't too many MDs around these parts who specialize in parasites so I figured I'd go to a university, more on that.

When I initially called I indicated I wanted to see the best doctor to evaluate me for this and they put me on hold and came back with Dr. NumbNuts, name changed but fitting.

The reason I wanted to be evaluated is I'm a complete Lyme treatment failure; did the oral, IM and IV route. Also treated negatively tested co-infections, plus rife, plus ozone, plus herbals etc.

I had a great reaction to Albenza, an Rx antiparasitical, felt much much better for about a month but it didn't last. I also developed nasty red bumps all over my chest, shoulders and arms which I attributed to feeling better and it being some kind of detox reaction.

Back to Dr. NumbNuts. I waited one hour and fifteen minutes in the back waiting room, the nurse came in about a half hour into the wait and said he hadn't forgotten about me. Well, he had and I filed a complaint for whatever that's worth.

Here are a few nuggets that came out of his mouth during our quaint little chat:

+ In an authoritarian tone: "Do you think it's possible that the reason you feel so poorly is because you're on all these sleep medications?"

I had already explained to him that when I was feeling much better I had a med hangover but when I became active it tapered off and I was able to do things.

My response was: "The sleep disorder was one of my first symptoms, I couldn't sleep and I've become tolerant to Ambien, am I not supposed to sleep at night?" I also reminded him I just told him when I felt better back in July it wasn't an issue, duh.

+ You're going to love this one: He asked which meds I was on when treating Lyme and I mentioned Flagyl for the cyst form.

I am paraphrasing here: "What? Cyst form? Lyme isn't a cyst! I treated it years ago in NY. By this time he was pizzing me off with his bs arrogance so I let him have it.

I asked him if he is aware that Bb has at least three known forms and this knowledge goes back to at least the early '90's.

I followed with "You see doc, when the spirochete is "threatened" it morphs into cyst form and the medications to kill it are Flagyl and Tini. If you treated Lyme back in NY how could you not know this?

I then asked him if he wanted me to either email him the research or send it to him snail mail and he declined, surprisingly.

+ Chronic Lyme disease is very rare and it's not clear if antibiotics are helpful in these situations.

At this point I laughed, couldn't help it. I told him I knew of three net friends who were screwed and now well. I offered to give him the number to Dr. B in NY so he could discuss this claim but he declined........surprisingly [Smile]

+ "Babesia is fatal, often within weeks or months." This is after I told him I was treated for it, nothing happened during my treatment either way.

+ "It is malpractice to treat someone for something they are unsure the patient has." Paraphrasing. Basically if you don't test positive, don't treat.

He asked me who my LD was and I just said she's in San Diego. He said he use to practice there and asked me for the name. I said I don't think so.

I then told him this doctor has the biggest heart of any person I've even known and has helped many people feel better when they were desperate. Followed by......

"How many patients have you treated and help get well treating "outside the box" rather than by textbook?"

I just went in trying to focus him in by what happened when I took Albenza and he said "If it did help, it wasn't killing parasites because you don't have the symptoms." I said, okay, let's prove it with stool samples. Dr. Numbnuts replied "If you had parasites you'd be able to see them in your stool." Huh?

At one point he said "If you were my patient when you first started having symptoms I would have focused in on stress, depression or anxiety."

I said "That's exactly what my initial doc thought and he's clueless, so what does that make you?" "I guess having a great career, loving girlfriend and family, varied interests weren't enough, so I became depressed; no wonder so many people are sick in LA, they make the mistake of seeing people like you."

That was the final nail in the coffin, he became angry at the insubordinate patient and offered to do the usual testing that always shows normal and I declined.

It's not that I win, I'm still sick and he walks around thinking he knows everything, nothing's changed except I wasted 5 hours of my life and he gets paid for being a ding dong.

I read about people's horror stories here about ID Ducks and now I have my own experience and I wasn't even seeing him for Lyme but you can see where it would have gone if I had.

I will see my "alternative" physician and find the best lab to be stool tested at (definitely not GSDL) and see if anything shows up.

I know Albenza is somewhat considered a "broad acting compound" so if anyone has any ideas as to why it made me feel much better then stopped working I'd appreciate any theories or guesses.

Chris

Posts: 5 | From CA | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Anneke
LymeNet Contributor
Member # 7939

Icon 1 posted      Profile for Anneke     Send New Private Message       Edit/Delete Post   Reply With Quote 
You know, with this guy, I would file a complaint and refuse to pay! What a jerk! So typical of my experience with an ID. What do these guys do anyway???
Posts: 364 | From California | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Anneke
LymeNet Contributor
Member # 7939

Icon 1 posted      Profile for Anneke     Send New Private Message       Edit/Delete Post   Reply With Quote 
I said "That's exactly what my initial doc thought and he's clueless, so what does that make you?" "I guess having a great career, loving girlfriend and family, varied interests weren't enough, so I became depressed; no wonder so many people are sick in LA, they make the mistake of seeing people like you."

I LOVE that you had the nerve to say that to this doc!! Brilliant! Good for you for keeping your head on straight and challenging him.

Isn't it crazy that he refused your offers of research? He entered into an intriguing medical case having completely made up his mind. He had ZERO intellectual curiosity! What a shame! And yet sadly very common. I guess medical school must train some of that mindset.

Too bad there are not more ID docs out there that are still excited about science/medicine - excited enough to pursue what they do not yet know.

I remember a very wise doc. who told me "You always have to keep in mind that the medical field probably only knows about 1% of what there is to know still about how the human body works."

Posts: 364 | From California | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
I read this and got angry.. then laughed.. then got angry.. then laughed.

DUCK AMUNGO!!!

Good job you did though... real good.

He should be fried and I certainly wouldn't pay for that visit.

MAYBE if we all started hitting them in their purse.. they would at least ACT nicer or at least not be so all fired ignorant and slymey!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
You can throw him in the alligator pit...

I don't like to call them doctors if they're not going to doctor. I call them a Mr or Ms.

Would be great if you could refuse to pay.

And what about just sending the info to his office anyway, on the 3 Bb forms, and the drugs for the cyst form, etc?

My sense is that one major problem is they think they're going to be reported to the medical board, so they won't deal with Lyme/co's.

I told a rheumy that I thought insurance companies were behind all this. He walked out of his office, saying he was going to write a letter to my doctor. I said, so am I. So we both wrote a letter to my internist, with me scheduling an appt the next morning with my internist to explain what was going on.

There is no excuse for this kind of doctor behavior. Hopefully, with the new center opening at Columbia Univ, we'll get exactly the kind of info we need about all these diseases and their treatments.

Posts: 13171 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have to admit, I wasn't the least suprised by

your ID duck's response/replies.

Great job at presenting and defending your case though!!!!

I wish that we had a fund that everytime a "duck" gave some type

Of idiotic repsonse or diagnosis we could get paid.

We'd be rich beyond our wildest dreams.

It is really sad and telling about the majority of

Our medical community....

What happened to treating the patient and not treating your ego and ignorance?

What a waste of time and money.

Hope you get to feeling better soon.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
W E L C O M E ! ! ! ! !
!*)!*)!*)!*!)*!)*!)*!)


What a jerk!! If you go online to the CA State Medical Board you can make a complaint- I believe WE need to begin doing this more instead of just them*)!*)!

Just fyi in 2003 they found 17.8% MIR in ADULT ticks in SC County so whenever you hear the 2-3% in CA garbage it's total b.s.*)!
Best wishes,
Sarah
in CA

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
Doesn't surprise me. I think I met his mentor one time. You did a great job of trying to throw his ignornace back in his face. I doubt that it stuck.

Thanks for the laugh.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6495 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
6t5frlane
LymeNet Contributor
Member # 8628

Icon 1 posted      Profile for 6t5frlane     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just curious. How do you know you have Lyme?? Symptoms,tests???
Posts: 408 | From NY | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785

Icon 1 posted      Profile for canbravelyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Chris [Smile]

Kudos to you!

This is the exact kind of *Fantasy* that I ideate when I leave a bozo's office...oooh, I'm so glad you did it. I'm getting quicker on the uptake; maybe next time I encounter a bozo, I'll be joining the hardcore club.

xoxo

canbravelyme.

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

Posts: 1494 | From Getting there... | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
My sense is that one major problem is they think they're going to be reported to the medical board, so they won't deal with Lyme/co's.
Maybe true in other States but not so in California. They are protected by law.

The most pragmatic approach requires that we not alienate the doctor but I find that is often not possible and I'm only willing to go so far to accomplish that. It is so frustrating dealing with those who refuse to look at the facts.

I was surprised when a relative who is a doctor told me that out of the thousands of collegues he has met, there is only a handful that he likes. In his opinion, most are egotistical jerks.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Terry-
Doc Y from Santee near San Diego- one of TWO best LLMDs in the state- was reported to State Board a couple years back now- it DOES happen here!!!! She never drew a salary and that is a fact- her accountant who also works free of charge for her is the brother of someone on the Lyme memorial page- he verified-
Just fyi re LLMD history- Dr. SH son of Dr. NH was her partner in this office for years before he split to go out on his own-
Docs ARE afraid here too- we had one local doc in San Jose break down almost weeping and tell a Lymie she needed IV Rocephin BUT he couldn't treat her because he didn't want to lose his license!! (I have never sent ihm another one!! Eeeek! Poor woman!)
****************************************

Santee's Dr. Yang: Saint or sinner?
She treats the poor but may lose license

By Anne Krueger
STAFF WRITER April 2, 2005

SANTEE - Standing in the cramped waiting area of her medical office, Dr. Therese Yang clasped hands with a patient while Linda Vipond, the
mother of another patient, offered her prayer.

RONI GALGANO / Union-Tribune
Dr. Therese Yang (second from left) took a break in her Santee office for a moment of prayer and inspiration with staff and patients. With
her were medical assistant Jessica Gallagher (left), patient Barbara Coultas (standing) and Linda Vipond (sitting, right).

"Lord, thank you so much for the healing hands of Dr. Yang," Vipond said.

Many of Yang's patients, a lot of them uninsured or underinsured, are highly devoted to the 44-year-old physician. Some call her the Mother
Teresa of East County for her willingness to treat the chronically ill and those who can't afford to pay.

The Medical Board of California has another description of Yang.

In a complaint filed last July, Yang is accused of being incompetent and grossly negligent in prescribing potentially addictive drugs such
as OxyContin to mentally troubled patients.

A hearing is scheduled for August in which Yang faces the loss of her medical license.

Yang is vowing to fight the medical board charges, saying she's facing scrutiny because she cares for patients other doctors don't want to treat.

"I'm guilty of love," she said.

RONI GALGANO / Union-Tribune
Patient Angel Vipond (left) consulted with Dr. Therese Yang in Santee. Vipond praises the doctor, but the state's medical board alleges she is negligent.

Yang, who has run her family practice in Santee since 1997, has never taken a salary. Finding the money to keep the practice going is a
perpetual problem.

Patients pay what they can, depending on their insurance coverage and financial situation.

She moved from a 5,000-square-foot office on Mission Gorge Road to an 800-square-foot office in the same complex because she couldn't afford
the rent for the larger space.

She relies on grants to help pay expenses, most notably $355,000 she has received from the Grossmont Healthcare District over the past seven years. She has just two full-time employees and one part-time employee to help run her practice.

Yang said it's all worth it to fulfill a mission she has felt since she read about Florence Nightingale when she was 10 years old.

"In San Diego, there's plenty of doctors to take care of the people who are insured," she said. "I could help the people who weren't getting care, so I felt I had to do that."

Yang often spends up to an hour at a time with a patient - good medicine, but bad business for a medical practice, she said.

One of her patients is 31-year-old Angel Vipond, who with her mother makes a two-hour drive each month from her Morena Valley home to see Yang.

Vipond suffers from Lyme disease, a tick-borne illness that she said causes her migraines and continual pain.

Linda Vipond said Yang was the only doctor in Southern California willing to treat her daughter.

"I love her, love her, love her," Linda Vipond said of Yang. "She's honestly been a lifesaver."

Yang recently met with Angel Vipond in a tiny examining room, then wrote prescriptions refilling Vipond's OxyContin and other medications. She and Vipond hugged at the end of the examination.

Later, Yang confirmed that Angel Vipond was "A.V." - one of five patients named only by their initials in the medical board complaint.

The complaint alleges that Yang excessively prescribed controlled substances to Vipond, described as an "extremely troubled young woman
with a severe psychiatric illness."

The board contended that Yang failed to maintain adequate medical records and conducted superficial physical exams before writing
prescriptions for drugs that Angel Vipond didn't need.

Angel Vipond staunchly defended Yang, her physician since December 2000.

"She is really getting knocked on," Vipond said. "That is really, really wrong."

Yang said four other doctors diagnosed Angel Vipond with Lyme disease. Yang said the medical experts who examined the records of Vipond and
other patients didn't have all the information they need to draw a proper conclusion.

"I'm not surprised they were looking at our stuff," Yang said of the medical board investigators. "I am surprised they were unhappy."

Yang said that, unlike a typical family practice, many of her patients have chronic illnesses and also have psychiatric problems.

She said patients who are prescribed controlled drugs are carefully monitored and must show that the drug is making an improvement in their lives.

The goal

"Our goal wasn't to give them the narcotics," she said. "Our goal was to make them functional in society."

The medical board allegations say that some patients got worse after being prescribed drugs by Yang.

The medical board said one patient was prescribed five to 10 times the typical dose of OxyContin, although he was diagnosed as suffering from a drug dependency.

Another patient taking OxyContin cut his wrists while he was in Yang's waiting area. Yang said the suicide attempt was a cry for help, and the
patient has dramatically improved. Again, the medical board provided only initials in their complaint.

Despite the charges, Yang continues to receive support from community leaders.

Gloria Chadwick, president of the Grossmont Healthcare District board, said she was aware that Yang faced allegations but didn't know the
details.

"I truly believe everybody is innocent until proven otherwise," Chadwick said. "She's got a very good heart. She's very beloved by the
community that she works with. We've only heard positive things."

Sandy Pugliese, president of the Santee Chamber of Commerce and community relations manager at Sharp-Grossmont Hospital, said Yang is a
valuable asset for the East County.

"She feels this is a calling," Pugliese said. "She has a heart of gold."

Yang graduated from the University of Michigan medical school in 1984, and practiced in Arizona before coming to San Diego County in December
1988 to work at the Mountain Empire Health Center, a clinic that serves the backcountry.

Own practice

In 1994, she began working at the newly opened Lakeside Community Clinic until she started her own practice three years later. Yang said she can afford to work without a salary because her husband, Peter Yang, is a radiologist at Sharp-Grossmont Hospital who makes enough to support her and their four children.

Even though Yang isn't paid, keeping the medical office open costs about $200 an hour, she said. Yang has been sharing the office with a
semiretired doctor, James Kenaga, to help pay expenses.

The office waiting area contains only a few beat-up chairs crammed together. Next to the waiting area is one of three examining rooms, where a sliding partition does little to muffle conversation between Yang and a patient.

Medical files fill up the shelves lining almost every wall. Yang's desk is in a room little larger than a closet, where drugs and supplies are stored.

The office setting is humble, but Yang's patients don't care. Some have joined together to try to raise money to help Yang run her office and fight the medical board.

Georgianna Hemington, who travels from her Las Vegas home to be treated for Lyme disease by Yang, is outraged by the medical board accusations.

"Her principal concern over what's pending with the medical board is not what would happen to her," Hemington said. "It's for her patients
and the uninsured. That speaks a lot for her."

Yang said it will cost her as much as $140,000 to fight the medical board accusations. But she said the battle will be worth it if she can
keep helping those who have no place else to go.

"The biggest difference is we genuinely care," Yang said. "We want to keep the heart in medicine."

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Lisianthus
LymeNet Contributor
Member # 6631

Icon 1 posted      Profile for Lisianthus   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chris, You did a great job defending yourself, but I would have expected this from an ID Duck! And I would have paid him either.


There are some herbs that kill parasites btw --


Beneficial Herbs Include:


AGRIMONY for treating trichomonas,

ARTEMISIA used to expel pinworms and treat malaria.

BARBERRY tincture is used for giardiasis & malaria.

BLACK WALNUT tincture and capsules are used for worms & parasitic infections.

CLOVES powdered cloves are used to kill larvae befor they hatch.

ECHINACEA tincture is used for trichomonas.

GARLIC oil is used for parasitic infections.

GOLDENSEAL tincture used for malaria & giardiasis.

IPECAC syrup is used for dysentery.

OLIVE LEAF EXTRACT is used to kill viruses, bacteria, fungi, yeast and parasites.

OREGON GRAPE ROOT used for giardiasis & malaria.

PAU D' ARCO antiparasitic.

PRICKLY ASH used to to eliminate pinworms.

Usually a combination of herbs works best to destroy parasites at all stages of their cycles. There are many effective commercial preparations available with specific, easy to follow directions.


Website about parasites and helping herbs:

Health Concerns Parasites
Parasite/herb Info.
How to get rid of parasites with herbs

Here is some stuff I found on Albenza:
http://us.gsk.com/products/assets/us_albenza.pdf


Hope this helps you,
Lisi

[ 25. April 2007, 11:50 AM: Message edited by: Lisianthus ]

--------------------
yahoo 360 http://360.yahoo.com/my_profile-UqSNGiA9crUMRW.lFNGN5Jk-?cq=1

Posts: 986 | From Michigan | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
The Official Alligator Pit!!!:

http://tinyurl.com/yr8fvq

[ 25. April 2007, 02:33 PM: Message edited by: Lymetoo ]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Robin123:


And what about just sending the info to his office anyway, on the 3 Bb forms, and the drugs for the cyst form, etc?


I would!! It would probably "make his day!" [lol]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's a crime...a real crime we have to go threw soooooooooooooo much abuse from the ducks [Frown]

But you did a great job not backing down & standing up for what you know to be true. I wish I didn't have such neuro symptoms that often leave me tongue tied in similar situations when I have encountered a duck.

I am so very sorry you had to go threw this bad duck visit & hope you can get the treatment you need.

Also ditto several other's voices here & sending him the info on BB 3 other forms anyway.

And would also like to ditto fighting the payment on this bozo. I would report him & refuse to pay & then move on with my life.

I have read somewhere that pumkin seed oil can kill parasites as well. I have been taking it for a while now & feel it may help. I also am a fan of the pau D arco tea . I think it hits the lyme as well as parasites.

Hope you can shake off those feathers & feel better soon

Take care [group hug]

Dana

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the info CaliforniaLyme. Apparently the board will use whatever means available to get a lyme Doctor. The fact that she prescribed pain killers is what they used against her, not treatment of lyme. Does anyone know what happened? Did she lose her license?

This is what I was referring to. Looks like the complaint was filed before this bill passed? Ughh! Disgusting.:-(

California
Physician protection bill passed 2005.
AB 592 expands the existing alternative/complimentary safe harbor to include Lyme disease. If a medical practice does not result in death or serious bodily harm, a physician shall not be subject to disciplinary action for providing complimentary or alternative medicine practice, including the practice of Lyme disease. To qualify for this "safe harbor", the physician must have performed a good faith prior medical exam of the patient, obtained informed consent from the patient, and given the patient information regarding conventional treatment as well as the CV of the treating physician.

Medical Board of California: Physicians who treat Lyme disease longer term are now authorized to review Lyme disease cases. This will ensure that physicians who treat Lyme disease long term will not be subject to medical board actions.

Mandatory lab reporting: Lyme disease is now laboratory reportable. The DOH will call physicians to confirm that the cases meet the CDC definition for surveillance purposes before including these cases in their surveillance numbers.

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
My first dumb duck encounter came several weeks after being dxd with Lyme by another dr.

I stood my ground and let this guy have it as best I could. HE DID NOT LIKE IT AT ALL!!!! [Big Grin]

When I was heading toward the office where you pay, the nurse came up to me and said there would be no charge today.

I said, GOOD, because I wasn't intending to pay him anyway!! [lol]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
That's almost as bad as when I went to a doctor about lyme.

She told me she actually had a guy come in with a EM rash, sicker than a dog. She said she diagnosed him with the flue, gave him antibiotics, and it cleared up.

He never went back to her, she said.

I felt so sorry for this man cause I knew he has lyme.

She didn't know what the hell she was doing, so I left.....

gezzz, what we have to go through.......

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
idducksrdumb
Junior Member
Member # 11691

Icon 1 posted      Profile for idducksrdumb     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the posts and information regarding parasite herbals.

I guess if you go in to a university asking to be evaluated for parasites you get it worse than thinking you have Lyme.

I wouldn't have paid, I would have deducted the time I waited from the time he saw me and I would have billed him for my time but I'm on disability and have Medicare so they'll pay the University. He draws his salary from USC.

BTW, this clown went to medical school in Grenada and he is white American, no accent. Isn't that where people go when they can't get into American medical schools, even the bottom of the barrel? Now he's running the ID Dept at USC, wonderful.

I may send him the info re cyst form to him, no letter just data, otherwise he'd trash it which he'll probably do anyway.

Someone asked how I know I have Lyme. I don't really, given the lack of success of any treatment including various abx for two years. My initial WB from Igenex was IgG positive and IgM indeterminate but I had many bands positive that they didn't count. All co-infection testing was negative at Igenex, MDL and Bowen.

I guess the bottom line is avoid universities, except perhaps if you know in advance the doc is legit. Uni's practice "defensive medicine" but if you have AIDS you are treated like royalty.

That is all ID ducks seem to know these days and treatment is pretty standardized, how boring.

I had a similar encounter at UCLA when I was first sick, the clown kept telling me to try to go back to work. I've learned to avoid those types as most of us have, but yesterday I succumbed, should have known better.

Pity we don't have a Sharpton and Jackson et al looking out for us. It seems that most of the good Lyme docs were either sick themselves or had a loved one who was sick.

My LD is now on 5 years probation, perhaps one of the previous posts explains why. I fear she will lose her license. I didn't read the article but whatever good that was written about her is true. She is a living Saint.

Time to put it behind me and move on. Thanks for the support, I didn't know my story would elicit such a response. I'm not new by the way, just forgot my old screen name.....duh, all part of the depression ya know [Big Grin]

Chris

Posts: 5 | From CA | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
6t5frlane
LymeNet Contributor
Member # 8628

Icon 1 posted      Profile for 6t5frlane     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chris, I know what it's like to have no answers. That said you sound angry like many others here. At this point I guess you have to leave the possibility that you may Not have Lyme. I wish you well.
Posts: 408 | From NY | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chris,
I'm so sorry that you have no answers. If you have a positive IgG WB then you must have had lyme at some point. Perhaps you have biotoxins that your body cannot get rid of? I've read that if one cannot get rid of them, they continue to circulate and make a person sick even though the infection is gone.

Also what about anti-virals and metals?

I really hope you find answers.

One other thing, have you had your WB IgM re-done after you started treatment? Mine turned IgeneX positive after I started treatment for lyme. Maybe you aren't rid of the infection?
Terry

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chris -- maybe you could try the new Lyme antigen test being offered at www.centralfloridaresearch.com. It's described as being a more accurate test and is covered by Medicare.

Also, is Dr Y still able to treat Lyme patients while on probation? That is such a sad story, about a doctor with a heart of gold being treated like that.

What I did when I was trying to establish with an ID doc, knowing full well that it was probably going to be a problem:

I had all my Lyme info brochures ready in my hand, including "Lyme in California" ones. I popped the question about treating for my diagnosed Lyme disease. He said, "There's hardly any Lyme in N. California." And out came my hand, and in less than 10 seconds' time, he found himself holding all my info. He was one surprised duck!

Now I'm thinking we can immediately remind them that the Columbia U TBD center is opening and going to come up with some more answers hopefully soon.

Posts: 13171 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Robin123,
Good for you. I read awhile back that you had put up some brochures, or at least I think that was you. Did you get him interested in treating lyme? I think it's great that CA has a law to protect lyme doctors. Maybe that would be something good to mention to a potential doctor in CA? I'd like to see that law in every State in the Country. I have no doubt we'd have a lot more doctors willing to treat us.

Is Dr. Y on probation?? I did find some info that indicates that she is still in practice.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
idducksardumb

Just a quick thought. If you can you may want to think about treatment for the co-infections. The tests for them are as inaccurate as lyme. Like lyme, there are many strains of certain co-infections but presently only tests for a few strains.

Sometimes tx failure for lyme is because of the presense of co-infections.

I was treated for several co-infections regaurdless & continued to improve.

take care
dana

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
idducksrdumb
Junior Member
Member # 11691

Icon 1 posted      Profile for idducksrdumb     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dr. Y is still practicing. I don't know what happened, but according to the CA medical board's website: FIVE YEARS PROBATION WITH VARIOUS TERMS AND CONDITIONS. DURING PROBATION, DR. Y IS PROHIBITED FROM SUPERVISING PHYSICIAN ASSISTANTS.

Sorry for the all caps but I cut and pasted. The effective date was 9/05.

Thanks for all the advice and support, peace and healing to all.

C

Posts: 5 | From CA | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Ruth Ruth
LymeNet Contributor
Member # 11059

Icon 1 posted      Profile for Ruth Ruth     Send New Private Message       Edit/Delete Post   Reply With Quote 
About the testing for parasites... it seems like every lab says it is the best out there and no one else can do it as good as they do.

So, how to choose? In this area there is one called BioHealth Diagnostics. They do the GI tests. They even have some different lyme tests. Anyone used them before?

I go back and forth. What is the right approach? Spend tons of money on testing for all these hard to find critters? Or just use those "theraputic probes" and make it up as we go?

I sure hope you find the answer to your healing puzzle Chris.

And peace in the journey.

--------------------
When I lost my grip on Faith in the maze of illness,
Hope gently clasped my hand and led on.

RuthRuth

Posts: 478 | From California | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320

Icon 1 posted      Profile for beachcomber     Send New Private Message       Edit/Delete Post   Reply With Quote 
As much of a jerk as this guy may be or seem to be in your paraphrasing, I must say it appears you went into this with the notion that it wasn't going to work out. Your responses seem a tad cocky to me.

I don't excuse the Doc for his ignorance. But, I think you should move on and focus on finding positive help for whatever it is you need to be treated for.

I can't tell you how many supposed LLMDs I went to (with very postitive tests in hand) who told me I had anxiety, Whipples, depression, a sleep disorder, on and on. Surprisingly, it was an OD and an IDMD who finally & unanimously agreed that I did in fact have LD. These 2 saved my life.

I just kept moving on until I found the right MDs. I never looked back, as frustrated as I was. I went into this journey knowing how little knowledge of LD there is in the medical field, and in general for that matter.

Take a deep breath. Forget about this experience. Move forward and get some help. You don't need to stress yourself out like this.

JMHO

Posts: 1452 | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Terry, I was able to put info in someone's hand, but I think he was still followig his industry's politics.

I post a half-size Lyme/co's info sheet with web sites on bulletin boards all over SF, plus I hand out wallet-sized Plague Alert slips with web sites on them.

I have noticed that some of the half-size sheets are being moved to more prominent display. When I check in with the staff, it usually turns out that someone there is from the East coast and understands the seriousness.

It is spreading here. We now have a Golden Gate Park tickbite Lyme infection report. We will be breaking the news here in May newspaper articles...

Posts: 13171 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Robin....could you share with us what you have on these handouts and posters?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
MariaA
Frequent Contributor (1K+ posts)
Member # 9128

Icon 1 posted      Profile for MariaA     Send New Private Message       Edit/Delete Post   Reply With Quote 
I saw one of hers at a cafe in Berkeley and it's well-done!!!

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

Posts: 2552 | From San Francisco | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Robin- you are AWESOME- and inspirinG!!!!*)*!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.