I just started Fludrocort (generic Florinef) for low blood pressure/fainting. My aldosterone levels are very low. I wanted to ask those of you using it--Did it take awhile before you felt a difference or was it quick? Also, what did you feel? Did your blood pressure go up? Did you get less lightheaded, more energy? I'm taking a small dose, 1/4 of a .1mg tablet.
Thanks!
Posts: 30 | From CA | Registered: Oct 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I noticed a slight improvement, but cannot recall how long it took because it was over five years ago. I use it in combination with midodrine and Inderal.
That plus my Lyme treatment have greatly increased the amount of time I cam now able to spend upright, and on my feet, especially.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
I had similar problems and also noticed slight improvement with florinef. I think it took at least a few weeks to notice a difference because it works by helping your body increase blood volume, and that doesn't happen overnight.
Drink lots of water for best results. That is a very small dose. I had no side effects whatsoever at the standard dose of 0.1mg/day but everyone's different.
Abx for lyme was the bigger factor for me in getting rid of these symptoms. (Tried florinef alone before getting abx and it didn't do much, but it was helpful while I was on abx.)
Posts: 621 | From US | Registered: Jun 2006
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posted
Thanks ldfighter and lymednva. Sounds like I shouldn't be expecting anything dramatic immediately--if at all. And I should be looking at my lyme treatment to get rid of it....
Posts: 30 | From CA | Registered: Oct 2006
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
My daughter improved in first wk on Fourinef.
We added proamatine 10mg 4x a day with boosted functioning greatly.
Our pediatric cardiologist specializes in POTS and I notice that he is using higher doses than what folks here are mentioning that they take.
My daughter's testing showed severe POTS; maybe that is part of it.
posted
It took a few weeks to notice a difference, and I took .1 mg per day. After my tilt table test, I started on metoprolol 5o mg 2x per day, and it made me sick so I switched to Atenolol, and that worked great. Florinef and Zoloft were added to the Atenolol, and all together it took about a month to feel steady on my feet and not faint. Over time, as my Lyme got better, I was able to wean off zoloft, and stop taking florinef for good. Be patient. These things are trial and error with NMH.
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posted
Thanks Wildcondor and Char. Feeling steady after changing positions sounds good. I'll look forward to it.
I haven't had the tilt test done, but since I'm low in aldosterone and my adrenal output is low in general, I'm viewing it as replacing hormones.
Posts: 30 | From CA | Registered: Oct 2006
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These things are trial and error with NMH.
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