LymeNet Flash: No herxing on IV Rocephin--is this a bad sign?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » No herxing on IV Rocephin--is this a bad sign?

UBBFriend: Email this page to someone!

Author

Topic: No herxing on IV Rocephin--is this a bad sign?

Kawai
Member
Member # 10005

posted

I've probably had Lyme for 15+ years. Was misdiagnosed with MS and took Avonex and steroids for 1+ years before a LLMD said it's definitely Lyme, not MS.

I'm on my 3rd week (4 days on/3 days off) of 12 weeks of IV Rocephin. I don't have any herxing (maybe slight nausea on some days and I do seem to feel a little better on the days I'm on it, but maybe it's wishful thinking).

Is it a bad sign if there's no herxing on antibiotics or is it just going to take a long time since I've had it so long and was probably making things worse with the other medicatons?

Posts: 46 | From Wisconsin | Registered: Sep 2006 | IP: Logged |

Cobweb
Unregistered

posted

Kawai-I'm on the same regimen-4 days on Rocephin, 3 days off, and I have had the same concern-I feel better on the days I'm infusing. At first I seemed to crash on the 3 days off, but I think there is some holdover now, so I even feel better on the days off.

But I was taking oral Ceftin for like 8 months prior to IV. Add Doxy and I feel like I'm going to die.But I have wondered about a reverse Herx so to speak.

I think I'm headed in the right direction with Rocephin.
Carol
ps-meant to add- my WBC dropped lower than it ever has-2.9 and LLMD wondered if it was because of herxing-even though I felt better.

IP: Logged |

ByronSBell 2007
Unregistered

posted

I have heard Rocephin is great for masking lyme symptoms but is not a great treater.... I hear alot of people relapse easiest with this drug from my LLMD and several lyme books.

IP: Logged |

timaca
Frequent Contributor (1K+ posts)
Member # 6911

posted

I had a significant herx on IV rocephin on day 12 (I did 3 days on, 1 day off)....and again on day 27. That was my experience.

Timaca

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005 | IP: Logged |

lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

posted

There are a lot of antibiotics you haven't tried yet, it sounds like. Rocephin might not be the best one for you. See if you can add tinidazole a few days a week and see if you don't herx like crazy on that.

Mary

Posts: 1034 | From North Carolina | Registered: Aug 2003 | IP: Logged |

Kawai
Member
Member # 10005

posted

I was on Tinidazole and 2 others prior to the Rocephin and had minor effects (left side of face was numb, feet were tingly).

He also has me on Art on the days I'm on Rocephine, but I'll ask him about adding Tinidazole again.

Thanks.

Posts: 46 | From Wisconsin | Registered: Sep 2006 | IP: Logged |

treepatrol
Honored Contributor (10K+ posts)
Member # 4117

posted

Wait it should come

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/