Topic: Dealing with possible additonal diagnosis; two of us
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
I wanted to share about a strange turn of events over here.
I accidentally gave my son a tablet of Proamatine 10 mg prescribed for my daughter for POTS. I called cardiologist who advised to watch him next couple hours.
I watched him (didn't tell him).
He felt great. Burst of energy and cheerfulness. Just about ran up steps rather than usual dragging up!!!
I had wondered if he had POTS when daughter got diagnosed 6 mos ago...
Called dr and he agreed son should be evaluated.
Then described my dizziness, brainfog and cold fingers, hands, nose and eyeballs. I noticed this was really a problem night before all this when I was irresistably attracted to winter clothes when I was out trying to buy summer clothes.
Dr. wants to see me also!
I am grateful as I sense we are going to further improve with treatment.
I didn't notice the dizziness until my energy increased to point I was walking and driving a lot more. Also big blue veins across my chest and asthma have developed.
I am wondering if most lyme patients would do well to get checked for POTS. It looks like this has been a big missing piece of the puzzle.
I am excited, relived mixed with surprise and grief..
Char
Keep you posted!
Posts: 1230 | From US | Registered: Nov 2005
| IP: Logged |
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Char, Even though it may mean more doctors and diagnosises(sp?), ugh!
It sure does sound like a case of an happy accident. I piece of the puzzle is um... a piece of a the puzzle. I hope you all feel better as a result.
I do love when we stumble onto something fixable and/or manageble.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
What is POTS?
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
posted
POTS is part of the lyme picture although it can be caused by other conditions.
Do a search for (NMH) on lymenet.
A tilt table test can be very helpfull.
Dysautonomia literally means dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies.
Postural Orthostatic Tachycardia Syndrome Often more simply referred to as postural tachycardia syndrome, or POTS, this disorder is characterized by the body's inability to make the necessary adjustments to counteract gravity when standing up. The defining symptom of POTS is an excessive heart rate increment upon standing. However, as you will discover, there are a multitude of other symptoms that often accompany this syndrome. As such, POTS can be a difficult disorder to detect and understand.
Posts: 789 | From CT, | Registered: Jun 2006
| IP: Logged |
WildCondor
Unregistered
posted
Yes! It can be a BIG piece of the puzzle. Lyme and co-infections can inflame the vagus nerve and cause these problems and resulting symptoms.
POTS is Postural Orthostatic Tachycardia Syndrome (POTS)
posted
When you have this, do you only experience symptoms when you stand up? Or do you have symptoms 24/7?
Posts: 310 | From TN | Registered: Jan 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic