lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
So I went to the doc to see about my latest IGINEX test and he said that it was negative..
What? For the past 4 years I have tested positive for LYME, hitting at least a couple of LYME bands, and now I look at the test and only one band which ising specific for lyme came up unequivocal.
What the hell is going on?
I am now taking Zithromax again in small dosages and herxing from it. I feel worse then my pain in my skin goes away and I can FEEL again.
This is so frustrating, after 4 years of treatment, on BIAXIN for years I am not better.
Now the LYME is neg then what is the ZITH hitting? Is it hitting mycoplasma?
Was the LYME test flawed?
I know my story reflects all of yours in some way.
Posts: 2905 | From New England | Registered: Sep 2004
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My most intense herxes have been babesia related, and it happens almost immediately, and the third day is the worst for me.
Posts: 175 | From Pa | Registered: Aug 2006
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
What did your test results show? Any positive bands at all?
Posts: 1366 | From Southeast | Registered: Sep 2005
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I test negative from Igenex, and I know I haven't been making antibodies since at least the early 70's, which would help explain why.
If you post your complete results here we can help you interpret them.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
An Igenex negative doesn't mean anything. Remember, blood testing for Lyme Disease isn't all that accurate, but it does happen to be a little more accurate with Igenex. Basically, the little lyme jerks in your body have decided to play an ever so not fun game of "hide and seek". It happens. Hey, if you are getting a herx reaction from the antibiotics, you've DEFINITELY still got the disease. Symptoms are worth a thousand words and mean more to physicians who really know the disease and its quirks.
Don't worry, it just makes you feel worse.
Take Care, K-lyme
Posts: 227 | From CA | Registered: Apr 2004
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posted
Dr. Bransfield's Reason's for Seronegativity...... the reasons why you can test negative and still have Lyme disease.
1. Recent infection before immune response 2. Antibodies are in immune complexes 3. Spirochete encapsulated by host tissue (i.e.: lymphocytic cell walls) 4. Spirochete is deep in host tissue (i.e.: fibroblasts, neurons, etc.) 5. Blebs in body fluid, no whole organisms needed for PCR 6. No spirochetes in body fluid on day of test 7. Genetic heterogeneity (300 strains, 100 in U.S.) 8. Antigenic variability 9. Surface antigens change with temperature 10. Utilization of host protease instead of microbial protease 11. Spirochete in dormancy phase (L-form) with no cell walls 12. Recent antibiotic treatment 13. Recent anti-inflammatory treatment 14. Concomitant infection with babesia may cause immunosuppression 15. Other causes of immunosuppression 16. Lab with poor technical capability for Lyme disease 17. Lab tests not standardized for late stage disease 18. Lab tests labeled "for investigational use only" 19. CDC criteria is epidemiological not a diagnostic criteria 20. Lack of standardized control 21. Most controls use only a few strains as reference point 22. Few organisms are sometimes present 23. Encapsulated by glycoprotein "S-layer" which impairs immune recognition 24. "S"- layer binds to IgM 25. Immune deficiency 26. Possible down regulation of immune system by cytokines 27. Revised W.B. criteria fails to include most significant antigens
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
quote:Originally posted by Boomerang: What did your test results show? Any positive bands at all?
The LLMD said that there was one positive band, he said that it wasnt indicative of LYME
Posts: 2905 | From New England | Registered: Sep 2004
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