posted
Does anyone have a good protocol for "maintenance" meaning, I just want to feel as good as possible each day. I don't believe I'll be cured, I've been doing this for a decade.
I'd like to try Biaxin, 500 mg 2 x a day. I tried amoxicillin, 1500 mg a day, and it did nothing, symptom wise.
Any advice? Thank you in advance.
Posts: 69 | From Washington | Registered: Jan 2007
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posted
The folks at www.cpnhelp.org do an interesting maintenance. You could check over there. I think they do two weeks a month at first and than taper to every two months...??? not quite sure.
I know it consists of two weeks of doxy and zith m/w/f with flagyl thrown into the mix the last 5 days.
But do note this is only after they have done the abx for at least a year (or longer) and are feeling very well.
Posts: 554 | From Naples, Italy | Registered: Jun 2006
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posted
Thank you for this info, I'm going right there. Having someone reply gives me a big boost of hope. Thanks!
Posts: 69 | From Washington | Registered: Jan 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Dear Search
My doctor says we must correct 4 things to be well and healthy.
Mind - negative thinking stress Chemicals Biotoxins Alkalinity
The body can do a fabulous job of dealing with issues and keeping us healthy if we nuture the body.
Once you have knocked down the bacterial load, it does no good to keep taking the toxic drugs and in fact, begins to do harm.
Find a doctor affiliated with ACAM to help you bring your body back to a state of health and keep it there.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
ACAM=American College for the Advancement of Medicine
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I think maybe ya need more than maintainance?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
As far as needing more than maintenance, I've already been thoroughly treated, enjoyed "remission" for a few years, and just want to get back to that with a maintenance dose of antibiotics.
I don't believe I can be cured with the knowledge out there now, but I will keep searching for answers. I'll share what I find if I can see anything promising out there. I am interested in the salt/vit C protocol, but it doesn't seem to do anything but make people feel a little better.
One other issue, my spleen showed either a "hematoma" or a "parasitic sack" when I had a CT done of my abdomen. The doctor was SURE it had to be an old bruise basically, because I would have been really sick (which I was) and would have had to travel to a third world country to get a parasite that would cause that.
I'm in a state where there is NO help for lyme patients, there isn't a doctor here that won't laugh at the idea I could have lyme, despite a positive test from Igenex (and interestingly enough, a negative test from the ID doc here).
Anyway, I haven't thought about a parasitic infection before. I'll search the site for info people have posted on that, but maybe there is a natural protocol for parasites?
I'm keeping a positive attitude, it helps that biaxin alone knocks out my symptoms, but I don't know for how long it will.
Thank you all again. I'm going to repost the spleen/parasite question, so it won't be burried here. Posts: 69 | From Washington | Registered: Jan 2007
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
What about seeing a NEW....
LLMD?
Maybe there is someother treatment.
Try seeing another LLMD if you have not.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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posted
I really would love to be under the care of an LLMD but I'm in Washington state and not one exists here. I don't have the funds or the will to travel to California, I did for my initial treatment and I did go in to remission for a few years, so I think I'll just try the same treatment again. Is there anyone on this board from Washington state?
Posts: 69 | From Washington | Registered: Jan 2007
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
If you're interested in alternatives, which it sounds like you are, you could see someone associated with Dr. K school of thought- he's a naturopath who does a lot of teaching. His information seems really strange (I have a hard time with it!) but he has a really good track record with difficult cases. www.neuraltherapy.com is his website for his workshops, and I'm sure there's some way to find an affiliated doctor from there in Seattle or thereabouts.
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Search
I didn't find your separate post about parasite cleanse.
My doctor had me do a parasite cleanse and this is how.
1 bottle Ecletic Institute's Intestinal Cleanse. When bottle is finished, take 1 week off then do a 2nd bottle.
During this time, be sure you have at least one bowel movement daily to keep the dead parasites from clogging up the colon.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Searching4Answers: One other issue, my spleen showed either a "hematoma" or a "parasitic sack" when I had a CT done of my abdomen. The doctor was SURE it had to be an old bruise basically, because I would have been really sick (which I was) and would have had to travel to a third world country to get a parasite that would cause that.
I'm in a state where there is NO help for lyme patients, there isn't a doctor here that won't laugh at the idea I could have lyme, despite a positive test from Igenex (and interestingly enough, a negative test from the ID doc here).
I'm in a state where there is NO help for lyme patients, there isn't a doctor here that won't laugh at the idea I could have lyme, despite a positive test from Igenex (and interestingly enough, a negative test from the ID doc here). Go here-> Washington Lyme Literate/Friendly Dr's
One other issue, my spleen showed either a "hematoma" or a "parasitic sack" when I had a CT done of my abdomen. The doctor was SURE it had to be an old bruise basically, because I would have been really sick (which I was) and would have had to travel to a third world country to get a parasite that would cause that.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
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