canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
I was just reading Melanie's post, and she mentioned she was cold.
I've been having cold "flashes"? I'm having one now. Feels like waves of goosebumps.
I'm also on Bicillin. Anybody know what this is?
I have a requisition for hormone / thyroid bloodwork (will get it done tomorrow) due to my unusual recent rage outburst. Could these "cold flashes" be hormones too?
Update -- OK I just "Googled" "cold flashes" and lo and behold also a symptom of menopause - so hormones.
I guess a change in symptomology during treatment is a good sign...all a little scary, though.
Thanks, and best,
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I can get the chills for either (1) no reason other than I have tick borne disease or (2) when I herx.
For instance, during my last herx, I had a rip roaring headache which woke me at 3 a.m.; I had nausea and the chills. I was in my bed, fully clothed, with my mattress heater on HIGH (25); with a down comforter on top of me, AND another comforter on top of that and I was STILL cold!
About that time I thought...this must be a herx, for there is no way in the world I should still be cold!
It was a herx. Next day I was fine.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
canbrave,
For me, it was either a symptom of Lyme or one of the co-infections.
I was freezing for the first six or seven months of my treatment. Then, that symptom just seemed to disappear.
That first Christmas, though, everybody was giving me fleece and mittens. I remember it was 97 in the summer, and I was under three blankets and still shaking.
Hopefully, it will be a symptom that iwll disappear for you, too!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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posted
I can definitely relate. I get cold usually in the late afternoon/early evening. I have to put a heating wrap in the microwave, wrap it around my neck and shoulders, dress in a warm outfit and crawl in bed.
My temperature drops to 94 - 95 and then I slowly warm up to my normal 96-97 after a spike of up to almost 100. This happens almost every night.
Posts: 237 | From WV | Registered: Mar 2007
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posted
Do you have Babesia? If you do, this is a known symptom of it. I have two forms of Babesia (WA1 and B. Microti) and have hot and cold flashes all the time. My mom is going through menopause, and at one point, I could relate and sympathize! Babesia messes with hormones, and the docs that I've seen believe that the imbalance is the cause of these symptoms (go figure if they mimic menopause! ). Lyme can also cause these symptoms because it messes with the thyroid. Come to think of it, Bartonella can pull these shannanigans as well because it often times sets up camp in the brain (hypothalmus gland can be affected).
If this gets real bothersome, have you hormones tested (spit tests are the best). If they are severely imbalanced, consider replacement therapy with bio identical hormones (google it).
Take Care! K-lyme
Posts: 227 | From CA | Registered: Apr 2004
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hardynaka
Frequent Contributor (1K+ posts)
Member # 8099
posted
thyroid hormones, lack of TH3 could be a problem.
it can be babesia or bartonela.
it can be hypophyse (sp) problem.
it can be result of herxes.
I had all these problems, now treating hypophyse.
Selma
Posts: 1086 | From Switzerland | Registered: Oct 2005
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
better question:
why are you up at 0500 am?
i know the feeling, i usually wake early
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Subnormal temps were one of the things I noticed when I first came down with this too.
Also shaking inside.
I still get the shaking inside when I am over doing it.
It takes a while of warm tea, hot baths and warm blankets and not doing anything for me to recover.
Most the time when it gets like this I am too low functioning to do the hot bath and fix tea. I just get under a lot of blankets and wait it out.
Not sure why you feel cold. Not sure why I get cold.
Just know that not over doing it helps me.
I bet you both. I am up at 4 am this morning. Took sleeping pills at 8. It seems 8 hours sleep is all I get whether I want more or not.
Not really sure when I feel asleep.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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ByronSBell 2007
Unregistered
posted
I have wavesof chills come over me but I have more waves of heat than chills
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Thank you all for your replies; seems we have something else in common!
You know what's strange? I'm in a part of the house that is very warm (hot), and I am wearing a quilted jacket. I am sweating away here, yet I still feel chilled inside!
How's this for a hypothesis...in my process of healing, I am feeling chilled in order to increase my body temp, and kill the bugs!
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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ByronSBell 2007
Unregistered
posted
babesia can cause these problems too, i am seeing my LLMD tomarrow and I am going to try to go into deep discussion about this...
Have you been monitoing your body temp with a thermometer? It can be low if you have drinken something prior to taking your temp.
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
I haven't lately, but generally I'm a cool 96.7 for the past 3 1/2 years...I have had some days a few months back when I was astonished to see 98.6
When I'm feeling a bit better (ironic), I'd like to repeatedly take my temp. as motownlyme has done. I think it would prove interesting.
I have noticed that when I'm surprized / stressed, my temp. plummets.
This is a new thing about being cold, however. Here I am sweating, and chilled inside...
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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ByronSBell 2007
Unregistered
posted
I am on armor thyroid (low dose) right now and it has fixed my body temp! it stays 98.4-98.6
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Just like one of the posters above, I get cold every early evening and it keeps up until I get in bed with the electric blanket on high for a long time. It does not matter if it's 90 degrees outside. It happens almost every evening.
Just like she said, it is a wave of goose bumps and my arm hair stands on end. The wave of bone deep cold usually runs around my body at chest level in a band about 8 inches wide and includes my arms as well.
When I took high enough doses of Samento to be in constant agony from herxing, it stopped, only to come back as soon as I took my scheduled 12 day breaks from the herb. Because of this, I think it is the Lyme.
My normally low temp is at it's highest in the evening, so it makes no sense.
I had early menopause due to Lyme, and am way past that problem. I've had all hormones tested, using spit tests and some blood tests,and all were normal except DHEA-s, which was a tad low. That has been treated.
I am on Armour Thyroid and my TSH and other numbers are normal so my duck refuses to raise it, despite my low temp. Some docs say the free T4 must be in the upper half of the normal range, which mine is not. My temp ran about 95.6 before thryoid tx, but now runs about 97.6, which is still too low.
However, I know several non-Lymies with slight hypothryoid who do not even bother to treat it since they feel fine, and they are not cold at all. I still think it is the Lyme (or Babs) trying to chill the body, since it likes cooler temps.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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