posted
I can't believe this, I really can't. I was researching today trying to find answers and gaining knowledge about this horrible disease and I came across the most shocking peice of my puzzle yet.
from an article I read:
The family is part of a cluster of Lyme disease cases that has infested North Shore towns such as Hamilton, Wenham, and Ipswich. According to a study published in the New England Journal of Medicine in 1989, nearly half of the residents of Argilla Road in Ipswich had been infected with Lyme disease.
The most shocking part of this is I worked 3 miles from this road and at my job is where someone told me "you have something on your neck", IT WAS A TICK!!!!! Since this time, I moved to Florida and have been dealing with this for years!!!!!!!! I recently went to an LLMD, got my bloodtest (ignenex and other labs) and unfortunately, due to the severe nature of my sickness cannot afford to follow up with this LLMD due to unexpected financial problems (my husband has been out of work to take care of me). Not only that, I called my family up north and my mother told me that my cousin was one of the people on Argilla road (in article above) that contracted LD and went undiagnosed for 4 years.
I went to the nuero yesterday and he said LD, but I fear that all these tests he is running will come back negative (MRI and Elisa & PCR). I have to find a way to get this $$$ for my results, I have emailed the LLMD but no response. I have hope though and faith that this is the answer to my life long pain and misery!
I'm really blessed to have come across this board, I pray for each and every one of you.
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
| IP: Logged |
You won't know what the test results will be until you get them. I hope you're having them done through a good lab.
Lyme is also a clinical disease. Even when people don't have positive test results, they are started on abx.
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
Vanilla
Unregistered
posted
Sorry and too bad the LLMD will not just give you your test results. As the patient they belong to you.
IP: Logged |
posted
I to am from Long Island and now live in Florida. Very interesting what you wrote. I came accross this information and will paste it below. Perhaps, this might explain why Long Island and Conneticut have so many cases. And remember the West Nile outbreak in Manhattan. Also, if you have insurance, and need a good LLMD who does take insurance I can give you a name just email me.
Babesia can live inside the red blood cells. There is suggested evidence to link this organism and some of its co factors with genetic engineering and biological weapons research. (Plum Island Weapons Lab off the north shore of Long Island, NY, just 30 miles as the crow flies to Lime Connecticut. Some individuals have begone to differentiate lyme into old lyme and new lyme. Borrelia infections have been around for many years before the presence of Plum Island weapons laboratory
Posts: 21 | From Tampa, Fl | Registered: Feb 2007
| IP: Logged |
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
where in florida. there are many agencies that can help in florida
docdave
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
| IP: Logged |
posted
sorry..want to add something else....isn't it amazing how the literature/publications before 1994 used to reflect how "fast" this disease was spreading at that time...imagine now....
Well definitely: "cluster of Lyme disease cases that has infested North Shore towns such as Hamilton, Wenham, and Ipswich" doesn't sound appealing at all...
Posts: 983 | From The sky | Registered: Feb 2005
| IP: Logged |
isn't it amazing how the literature/publications before 1994 used to reflect how "fast" this disease was spreading at that time...imagine now....
Yes, I was thinking this the other day, amazing!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
MrsDizzy,
Are you dizzy all the time too>?
Damn this disease.
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
ALL THE TIME! The dizziness was the first to bring me down, then the headpressure, visual disturbances and cardiac problems. The malaise, I can handle due to pain killers, but the Nuero symptoms are what kill me and scare the sh** out of me.
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
| IP: Logged |
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by stymielymie: where in florida. there are many agencies that can help in florida
docdave
Name one!
Sorry, Mrs Dizzy. I'm pretty sure if you can't go back to the LLMD and fax them a signed release (An email won't work for hippa, etc...) they have to give you your test results.
I'm almost positive they have 30 days to produce them or you can report them. Like Vanilla said, "they are your results." I had to do this with my ex-LLMD to get my positive babesia test from years ago.
I hope you are able to get some help, soon. Hang in there.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
| IP: Logged |
posted
Thanks for all your help, I know how tough it can be to muster up the energy to do this. It is so greatly appreciated. I would be lost without this board, really. I will get the tests, I don't care what it takes. I can't afford to let someone step all over me anymore, this is my life...it's time to take control!
Bless you all!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
| IP: Logged |
posted
Don't know if this would help you at all, but I go for chiropractic care and they adjust my upper cervicals. It can stop dizziness for me.
Meaning my occipital to atlas junction and also my C1 vertebrae has been involved with dizzy symptoms. Something about spasming muscles pulling on our vertebral/bone structures and affecting nerves.
Has to be done by a very good upper cervical chiropractor.
Posts: 13171 | From San Francisco | Registered: May 2006
| IP: Logged |
For those of you in Florida there is a great LLMD in Naples and Tampa.
let me know if you would like to have his contact information.
kindly,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[bow]](graemlins/bow.gif)
![[group hug]](graemlins/grouphug.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic