djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
hello all-
ive been on rocephin for two months and seem to have hit a wall. not sure (how can you be?) i think i am going to try iv doxy. anyone else have good experience with this? thanks guys!
d
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I tried Rocephin, Claforan and Primaxin before I found that IV Doxy was right for me.
It helped me tremendously.
I was on it for almost three months.
Right now I am about 85% better. I've been off ABX for almost two months.
And hoping to post my 'Success Story' soon. Not quite ready yet....I want to make sure there are no relapses coming.
Be sure to watch your sun exposure, the sensitivity on IV doxy is even worse than orals.
LC
Posts: 116 | From Pennsylvania | Registered: Mar 2005
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
thanks. my llmd said to do the r for a couple more weeks to see if we can get more out of it. i was told the iv doxy is 2 times a day, out of a ball like my rocephin.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I infused 400 mg once a day (over two hours) and yes it came in a pressurized ball.
Easy to do, just took a long time.
Good luck!
LC
Posts: 116 | From Pennsylvania | Registered: Mar 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Good luck- hope it works*)!!!! Anyone around here with an MS or ALS like presentation has been on Rocephin for 6+ months minimum (excepting one MS woman who did 1 months 3 separate times! kept relapsing- but made incredible improvements in one month! then ehr non-llmd doc would take her cold turkey off and she kept relapsing- did it 3 times!)!!!!!!!
Myself it did not take apparent effect until 7th month- I believe it was working before then- but that I could not see effects-!!
But who knows- IV Doxy could be the one for you- I hope so*)!*)! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
p.s. (3rd time he did not take her off cold turkey but transitioned her to orals Tindamax- just like all the rest of us- if you do get gains and seem normal again don't go cold turkey on abx transition to orals!!!!!!!!!!!!!!!!!)
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
thanks sarah-
i am on tindimax and just added biaxin w the rocephin. i think we are going to try the doxy and see what happens.
my worst symptoms are in my neck, spine, and head and dont "seem" to be improving. but, they could be. ill find out the reaction to doxy in a couple weeks when i transition to it. thanks!
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
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to be improving. but, they could be. ill find out the reaction to doxy in a couple weeks when i transition to it. thanks!
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