posted
Hi every body, I am at alose and would gretly appreciate your assistent. I think I might have been infected in 1987 when I lived in the Washington DC area. Back then no one was looking for it. I had the typical bite/rash on my upper groin followed by sever flue like illness and years of medical problems ranging from skin problems to repritory infections and painful lose of mobility in left arm with an unexplainable nurological failure.
Giving the years that have passed since the initial posible infection can it still be correctly deteced and trated in me or am I simply a lost case and have to pray things dont get worse.
Posts: 2 | From Hawaii | Registered: May 2007
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Welcome to our group. It certainly can be checked if you use the correct lab.
I was infected 43 years ago and didn't find out what was really wrong until last fall. I have been to so many doctors it is unblievable. Not one of them every mentioned Lyme disease.
I did not however, have a rash nor do I ever remember be biten. I grew up on a farm and spent as many hours as possible riding my horse and picking wild flowers in the timbers so no doubt at some point I was.
I was tested three times with the Eliza test which is the one most doctors use. All of them came back negative.
Finally I was tested by the Igenex lab and it came back as chronic lyme diease. I will send you a private message with their information.
It is very hard to find a doctor to treat you once you know what you have. Others on the group have more information then I do and they will be sending you messages with lots of information.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hey Roy- WELCOME!*)*!)!* You should know that the thing you MOST LIKELY have if you got infected in WASHINGTON STATE- or most likely have along with Lyme- is called WA1 Babesiosis. It is the most common by far tick borne disease in Washington state and presents very much like Lyme!!!! You could also have both- or neither- you need to go see a good Lyme doc- we call them LLMDs to find out!!! I would go see whatever doc you already have and let them know that you were in a WA1 Babesiosis endemic area (there are different kinds of Babs so it is important to test tfor the right kind) and send your blood to Igenex.com to be tested- I hope your doc is open to TBDs but if not find a Lyme doc-!!!
The good news is if you have Lyme or Babs or both- or even bartonella or Ehrlichiosis/ Anaplasmosis, other TBDs- YOU CAN GET BETTER WITH TREATMENT*)!*)!! Best wishes,
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bettyg
Unregistered
posted
welcome roy! i'm sending you a PM, private message, of my 52 pages newbie links, advise, symptoms, western blot info by IGENEX diagnostic lab for ticks/lyme disease, and ssdi/disability info.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I have had it since 1988 and didnt start treatment till 2001 your not a lost cause get a LLMD and Get Treated dont wait you have a bumpy road ahead.
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