posted
I have been having problems sleeping for a while, but now it is worse. I haven't gotten real sleep in a while. Lately I have been sleeping at school, on the bus in the morning and afternoon, and sometimes come home from school and go to bed again.
But, lately I have been going to sleep and waking up feeling even more sleepy than when I went to sleep. I can't handle it anymore because this morning was even worse. I slept on the way to school, but went home as soon as I got there. (My mom is my bus driver so I went home with her.)
And I went to sleep. Or tried. I can't seem to get my sleep. My eyes are hurting, I feel really sleepy and weak-like. And when I don't sleep I get a stomache ache and feel sick. I haven't been eating a lot lately either. I just don't feel like eating.
Although, I have been trying to make myself eat in the hopes it will calm my stomach, but it doesn't.
I am so tired and I can't get sleep. I can't go to school like this and I can't be missing school at the same time.
What should I do? Any ideas on how I can get sleep?
I am always tired and I can't get rest. I don't know what to do. I am usually always tired, but it has gotten worse lately since I play tennis and it wears me out more than just regular daily stuff.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
hey-
have you been diagnosed with lyme?
if so, are you being treated?
fatigue is a common symptom, and sometimes is one of the first to hit people.
are your parents involved in helping you?
some of us on here are so fatigued and weak we can barely move.
the important thing is that you get treatment and help for whatever is wrong.
send me a private message if you have any other questions i can help with.
hang in there, you're going to be ok.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Hi Christi -- I think most of us have trouble sleeping. From what I've seen, people have to figure out what sleep aid to take. I take 25mg benedryl every night to go to sleep. I also add a 1/2 tab of ativan if needed. Everyone's different in terms of what will work for them.
Posts: 13171 | From San Francisco | Registered: May 2006
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
3mg timed released Melatonin from source naturals. TC told me about this stuff ............ the only thing that has helped at all.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
Like robi I think time released melatonin is great. I prefer Jarrow 1mg time release though, I've found it to be the best time release melatonin for me.
I take 1-5 a night.
-------------------- "You know, the worst, meanest, nastiest, ticks in the world are politicks," - Steve Nostrum Posts: 242 | From South NJ | Registered: Dec 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hey Christi-
I got an early awakening sleep disorder from Lyme- boy was that awful- I would wake up every night at 2:36 or something, I forget now but it was on the dot EVERY night- and be unable to get a wink after that- and then crash in the early afternoon like I was bludgeoned with a hammer- later the early afternoon fatigue hammer thing turned out to be babs!!! ANYWAY, you should... yes, I'm going to say it, I am sorry, talk to your doctor and see what they can do for you-
and ask your parents as a birthday present to take you to an LLMD "just to rule it out"!!!!!!!! how could they resist that plea? Just an idea!!!
Best wishes always, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Also try your best to stay on a schedule. Get up at the same time, eat at same time, ect.
Use your bedroom to sleep only. Don't watch TV, snack, ect. This will help condition yourself that the bed is for sleeping.
If you cannot sleep, get up and read for a half hour or so, then try again. DO NOT get interested in something and stay up to long. (easier said then done.)
****** another thought for those who struggle with sleep: My sleep patterns greatly improved when I started taking T3 (cytomel) for my thyroid.
My thyroid was not very low, but the right, low dose meds made a huge difference.
Von
Posts: 258 | From Washington State | Registered: Nov 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
i second and third melatonin.
when that doesn't work, i reach for tylenol PM. without fail, 2 of those keep me asleep all night, which certainly helps psychologically, and no doubt physically.
FYI- even when i get sleep, i am tired again by 9 or 10 am, and without Provigil, do not have any hope of staying awake all day.
keep trying until you find something that works for you. lack of sleep makes everything worse!
hugs- dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
As my LLMD has told me repeatedly, good sleep is one of the most important parts of getting your immune system to work . . . and that means getting into the deeper sleep where the body has a chance to repair itself.
As other posts here have said, different things work for people. You have to try to have your doctor work with you to find what will help. For me I find 1 Klonopin Wafer works really well. But there are tons of different meds out there to try, slowly, until you find one that works.
Good luck on getting a good nights sleep.
Gailsy
Posts: 31 | From Bloomfield, New Jersey | Registered: Nov 2006
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Although I have trouble falling asleep and waking up early. Going to bed isn't the biggest problem.
When I go to bed I wake up and it is like I never went to bed. I CAN go to sleep, but it is like I haven't gotten any sleep at all. That is something I can't control. I talked with my mom about it and she was talking about sleep apnea (several people in my family has it) and how it can make you stop breathing, but that wakes you up, but you don't realize you are waking up during the night.
So, you wake up feeling like you never went to sleep because you woke up so much but don't realize it.
I guess it could be a possibility. She said I should take Tylenol PM to see if it helped. But, I am not sure because I can get to sleep EVENTUALLY, I just don't get anything out of it.
How can it help with that?
I have been asleep all day. Except for about an hour. I wake up really easily, too. I can always hear people in the kitchen talking or something.
I have been in the same sleep pattern as always, I am just not getting anything from going to sleep. I haven't been eating lately. I haven't felt like eating or had an urge to eat. I ate once today just a few nuggets. But, I didn't want them. I made myself eat them.
That is it! Usually I stay hungry. But not the last say 3 days or so. And I haven't gotten sleep in about week and a half. I mean I have slept but I wake up like I never went to bed in the first place.
I have had times before where I did this, but it was only a few days or so. This time has been much longer than usual.
And I tried benadryl(spelling?). It didn't work.
I am going back to sleep as soon as I am done with this. And I have school tomorrow, if I feel up to going. Next week is our last week and I don't know if I am going to make it through. And then we have exams Tuesday and Wednesday of the next week. Which I will have to take because I have missed to many days.
And I will be missing this Monday because I have to go to the cardiologist for my echo.
Oh and I don't have a problem talking to my doctor. If I can't get some sleep soon and continue feeling the way I do, I am going to have my mom call one and see what I can do. I can't continue being this tired and sleeping all the time for no reason.
Here lately I have been going to sleep anywhere and everywhere. Normally I can't do that. But, I go to sleep at school, on the bus, after school, during the evening, and at night. And I sleep for most of the weekend. Because I can't get enough sleep during the week going to school.
So....I would think I have a sleep problem!
Well, that's where I am headed now. Also, I don't usually snack at night, and I haven't been turning the t.v on because it distracts me more trying to go to sleep. I try everything I can to make myself sleep. But, nothing helps. I haven't been drinking caffeine lately either.
So, I don't know what it is. I just wish I could get sleep that made me feel refreshed! That's all!
OH YEA!! I didn't go to school today, obviously, BUT I MADE THE TENNIS TEAM!!! I was the there first choice! My name was the first on the list!! Last night I won all of my games and was unbeatable! I did, however, let one girl win the last set we played because I felt bad. So, I won 24 out of 25 sets I played! It was GREAT!
Well, even through the excitment I am tired so, off to bed I go. Thanks for the replies.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Get Source Naturals Timed Release Melatonin. May work for you!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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caat
Frequent Contributor (1K+ posts)
Member # 2321
posted
I use cheap melatonin from grocery outlet- 2 tabs of 3 mg. works fine. When that doesn't work- ambien.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
My LLMD just Rx neurontin to aid in sleeping.
Took just one quarter of a pill last night...
Woke up at my normal 3-4:00 am time, but was able to quickly go back to sleep...
First time in a long, long time.
It is not supposed to be habit forming, which is of big concern for me.
Don't you have your heart test next week Christi??
Let us know how it goes....
Please, please continue your search for a diagnosis.
I just found out my five year old daughter has Lyme and possible co-infections....
Ask for an Igenex test for your birthday....Just the test and nothing else.
It may be the best gift your parents can give you....
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
"the i'm sleeping but not gettign anything out of it"
that's what i was trying to address. i understand that feelign 100%. for a long time i refused to take naps because i felt there was no point- i didn't wake up feeling any less tired. and even with melatonin or the PM's and a night's sleep, i wake up tired every day. so why take the more pills?
what took me awhile to realize was that even if i felt just as tired, my body HAD gotten rest it absolutely had to have.
keep trying....
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Ok, well I tried tylenol nighttime or whatever last night and it didn't help at all.
It took me over an hour and a hlaf to fall asleep and I woke up constantly over and over again after that. I was tossing and turning and couldn't sleep. And I woke up about 2 hours before I am supposed to get up and couldn't go back to sleep. So....
That didn't help. But, I did go to school today. I made myself.
Yes, my heart test is Monday. Of course, I will let you know how it goes.
Well, I don't know what else to say so I guess I will go. I need to try to get some sleep because the Grey's Anatomy finale is tonight and I have to be awake to watch it! So, nap time calls!!! And then bed time! See ya!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Yow, Christi.
did you take TWO tylenol PM's???
are you drinking/eating anything with caffeine in he afternoon/evening?
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Yes, I took 2. It said to take that many but no more.
I have to nap. I can't hold my eyes open. And I feel really sick. I can't help it.
I haven't been eating much lately. I have eaten less the past 3 or so days than I normally would in a day. I don't feel like eating even though I know I should. The thought of eating makes me feel sick and everything tastes really bad.
And I start feeling worse when I start eating. My stomach is having issues so I figure maybe not eating is letting it recooperate, maybe. I'm not a doctor, but it would make since I guess.
I don't know. But, I haven't been drinking caffeine. I haven't been drinking as much either. Everytime I put anything in my mouth I feel sick. And EVERYTHING tastes really bad and makes me sick so...I just don't eat or drink unless I have to.
I mean, I drink just not as much as normal. Enough to keep me from dehydrating I guess.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Naps don't work anyways. I can't go to sleep. I just lay there with my eyes closed for nothing!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
drink water, as much as you can even when you can't eat or drink anything else.
when i fall away from doing that i quickly feel: weak, sick to my stomach, more exhausted than usual, and shaky.
my husband usually has to remind me what i'm feeling is related to not drinking enough water.
sure enough, two big glasses of water perks me up enough to get rid of those acute symptoms of whatever.
here's more standard insomnia kind of suggestions: don't watch tv close to bedtime or do anything that keeps your mind racing. MAKE yourself do something to relax. whatever works for you.
sit in a dark room. close your eyes. go back to light happy memories. better yet, create/imagine yourself someplace that is entirely peaceful and imagine it in every detail. EVERY detail. what it looks like, smells like, sounds like. what time of day. everything. go back there again and again until it is a refuge for you and you know it as if it were real.
then, when you're struggling to sleep, relax your body from your toes up to your head, and as you do, go to that place.
mental imagery like that is extremely powerful. i trained myself to use it for childbirth so i did not have to take pain meds. it worked....
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Ok, thanks. I have actually done everything you just explained in Psychology class with one of those relaxaion tapes. With the woman who tells you everything about the surroundings and you hear it and imagine yourself where she says. It worked then. I sometimes repeat it to myself to relax.
I did sleep a little better last night. I didn't wake up AS MUCH. Not constantly anyways. But I was still over-tired when I woke up. Just no as bad as the last few days. I have been having stomaches constantly and headaches that come and go constantly.
THANK GOD IT IS THE WEEKEND!!!! The only thing (surprisingly) that makes me feel better is playing tennis! I relax and focus on my game. I just play and have fun. It seems to be the only thing that helps no matter how bad I feel. Which is strange but I think it helps me relax and forget about stress and everything going on right now.
I am about to go play right now. And this weekend I will sleep and play tennis!
So, thanks for the advice. And I will try that relaxation thing tonight and see if it makes a difference! HAVE A GREAT WEEKEND!!!!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Ok, I have been feeling bad for about 2 weeks now. I haven't been eating the same. And I can't sleep. I have thrown up some every now and then when I eat. And I have been sleeping without refreshment all the time.
Why is it that I feel better when I play tennis?
I can't explain but my stomach hurts and I feel bad and really tired and I can't see straight, but when I go play I feel better while I am playing. For the most part.
I have felt like everything is finally starting to cave in. Like I have been waiting to happen all along. I told you guys I would have to wait until somethng happened and I think that something is happening.
I have felt HORRIBLE for about 2 weeks now. I am way further down the hill than I was. I have had a stomache, headaches on and off, sneezing, not eating, not having refreshing sleep, but sleeping constantly, and I just feel like this is it.
I feel like I can't possibly go on anymore. I look back on this past week and wonder how in the worl dI got through it. And this coming week is the last week on school and I wonder how I am going to get through it.
We are going on vaction to Florida in less than 3 weeks and I wonder how I can possibly go feeling the way I do. There is no way. I just can't.
I have to go to the doctor on Monday and I am totally stressed about it. I know it is bad to hope something is wrong with me, but I am actually hoping this echo tells me something. Anything. Just something that can get me where I need to be going.
I am to that point that no matter what they tell me I am ok with it just as long as they tell me something. That's all I ask. Is that they give me a name to whatever I have. No matter what it is.
I hate feeling like I am in the dark. Like something is wrong but I am the only one who can tell. I am in my own world. I have been feeling really bad lately, sick, weak, tired, and just plain bad.
I hope it is just something that will pass because I can't live like this much longer. Hopefully it is just the stomach virus that is going around really bad or something. I hope I am not to that point where it has gotten a little worse and it will continue to get a little worse all the time.
But, anyways, I am venting again, sorry. I can't help it.
But, any ideas on why tennis makes me feel better? Maybe it gets me away from everything. Away from life and my problems. Makes me think about other stuff and forget everything going on. I don't know. But I wish I could play constantly! That way I would feel better!
Well, sleep is calling my name once again.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Suggestions:
-Relaxation or guided imagery CDs (if you PM me, I will mail you some! I have copies of about 15 good ones!)
Over the Counter:
-Melatonin -Valerian Root -Simply Sleep -Sominex
Prescription:
-Ambien -Lunesta -Ristoril (I take 30 mg every night) -Ativan -Remeron -Trazedone -Klonadine -Clonapin
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
I have tried a few things like benadryl and tylenol and that kind off stuff, but I am kind of afraid to try anything else right now. I tried not drinking caffeine. But, I don't drink much coke or anything anymore. I am trying to cut down on stuff like that. I figure playing tennis is good exercise and I would like to lose a little. So, I am going for the eating healthly! But, lately I haven't felt like eating at all.
My mom says I should ask one of my doctors about the sleep thing. And I am going to a new one Monday. A cardiologist for an echocardiogram. So, I will probably wait and see what happens first. It was been about a week and a half since I have gotten refreshing sleep. Maybe by some miracle tonight will be the night! I sure hope so. I am so incredibly tired now and it is starting to talk a huge toll on how I feel.
I think it is why I have been feeling so bad lately. With headaches and stomaches and not wanting to eat and such.
Maybe it will pass. At least I hope and pray it does. I don't know how much more I can take. People have gone crazy from not getting sleep. I don't feel crazy, I just feel sick!
Well, I took a warm bath and everything to see if that would help and I have laid on the couch all day but I didn't sleep once, so I am very tired now. Maybe I can finally get some sleep.
My bed is calling! See ya.
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
DOCTOR TOMORROW....I am never going to sleep tonight. I am extremely nervous, stressed, and scared about it. I don't know what is going to happen and that scares me. I am very worried about it. Both that something will be wrong and that nothing will be wrong.
Either way, it scares me. If nothing is wrong, I am at another end. If something is wrong, that doesn't surprise me, of course, it just adds to my list of unusual things so....
The echo is just one more test to add to my list and the cardiologist is just another doctor to add to my list. Basically, it is all about the lists! Seems like it anyways.
So, I am going to bed now even though there is no way I can sleep. But, I am going to be sick if I don't get sleep. And I have felt better today. Maybe it has finally passed. I hope anyways.
Well, signing off, worried, scared, nervous, and totally stressed!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Dear Wilsongal,
Hope the doctor visit was productive. Sounds to me like you have some underlying physical situation that needs to be discovered--the nausea and trouble eating on top of the sleep problem.
I have found two things helpful for sleeping: having a fan or other constant noise sound in the room so that I'm not distracted by people doing things in the house that make noises and physically working if I can't sleep until I'm tired enough to go to bed.
Since it sounds to me like you have some other physical problem, drugs may not be an optimum choice, especially psychiatric drugs like clonopin or neurontin, which can have very, very nasty side effects.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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