posted
Over the year, I have developed fibrosis in various parts of my body, mostly my legs, arms and face. Has anyone experienced this problem with Lyme or any other co-infection? I have been going to various doctors including rhumatologist who insists that I don't have scleroderma. When asked "then what is it?" The answer is (invariably) "I don't know?"
Posts: 123 | From Los Angeles | Registered: Oct 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome to Lyme Net!
Have you been diagnosed with Lyme disease? If so.. how long ago did you contract it?
Is the fibrosis situation getting worse?
Are you on antibiotics now.. or were you?
Sorry for all the questions.. but any info you can provide would help us to help you.
It's a long, tedious story. I found a bulleye's rash on my leg in June 2000. At the time, I was surrounded by deer. I immediately went to my rhumatologist (I have lupus) and was told that there was no lyme disease in Southern California and I didn't need to worry. Symptoms, (very similar to those of lupus) started setting in. At the time, my lupus was in complete remission. My doctor said the lupus had come back. Two years later, my Lyme test turned positive. In 2002, my legs started getting thicker in some parts, then it was my tongue and my face. It is not swollen, it is thick. The wrinkles on my hands have disappeared. I suspected scleroderma, but according to the experts, I don't have the disease... Last year, I went as far as the Mayo clinic in Rochester tot ry to find out a reason for the fibrosis. There, I was told I don't have lupus, I don't have scleroderma, I don't have Lyme. A tongue biopsy showed epithylial hyperplesia with submucal edema. When asked what it meant, translated into English, the answer was: Swollen tongue... Dahaaa... My problem is that I am allergic to antibiotics, so over the last few years, I have started a treatment and stopped a week or two later. I finally did a mercury detox, and was able to take a combination of Zithromax and bioxin for three months. That's the extent of my antibiotic intake. I haven't taken anything for the last year. I was also told that Lyme would not cause your tongue to swell, nor Lupus for that matter. They want me to have another tongue biopsy. I'd like to avoid this procedure, if I can. At my last visit with my Lyme doc, he prescribed Cipro and Biaxin. What do you think about this combination. I am getting ready to try it. Thank you for your interest.
Posts: 123 | From Los Angeles | Registered: Oct 2006
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