posted
Yes, I do. Like yours, mine has always been on the low side of normal, but in the last few years, it's REALLY low.
I have just been diagnosed with lyme and mold toxicity and a few other things, and haven't begun treatment yet, but I've been hoping the BP would get back up to low normal once the treatment starts.
Wouldn't care WHAT the actual numbers were, but when it drops, I get symptomatic...very dizzy, etc.
Posts: 83 | From us | Registered: Nov 2006
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i've had high blood pressure. normal until lyme, then it would balloon, go up and down.
doc put me on meds and now it is often really low, 90's to over 70's.
and my heart rate will go down into he 60's.
scares me sometimes.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
YES. Constantly for the past 2 years. See stars when I stand. Sometimes Cant stand up for more than a few seconds-I assumed it was NMH/POTS. Actually just saw cardiologist today. Not sure if she will do a tilt table test, but is doing an ECG in 2 weeks. Had a normal EKG as always.Im already taking florinef. Have had to use beta blockers too. And Im not sure if I have mold issues-i know my osmolality was high and Anti diuretic hormone was low-so put on desmopressin. I know this can be due to mold toxins-mentioned in the book the mold warrior...but hard to know if its not from Bb toxins??????? What tests did u have for mold....I am ordering the test panels formy house, but what other tests can be done to rule it out in your body?
-------------------- Ill since 1998 DX 2005 Posts: 93 | From tampa, fl, usa | Registered: Apr 2007
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posted
I have been running like 84/60 I have alot off dizzy light headed,faint ect....
Posts: 13 | From USA | Registered: Oct 2006
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WildCondor
Unregistered
posted
The low blood pressure you guys are experiencing can be from Lyme disease induced neurally mediated Hypotension (NMH). It's also called Autonomic Dysfunction, or vasovagal syncope, or neurocardiogenic syncope.
The Lyme bacteria inflame the vagus nerve leading from brain to heart, causing symptoms of low blood pressure, dizziness, fatigue, intolerance to heat and exercise and prolonged standing.
Check it out, here are some links. Treatment for the symptoms with beta blockers made a HUGE difference for me. Lyme treatment with IV and oral aggressive antibiotics for many years also improved, although not 100% resolved, the NMH.
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I will add that low blood volume can also be part of the picture with low blood pressure. Mine is caused by low blood volume which is due to a low red blood cell mass. I think this may be related to babesia for me since babesia supposedly bursts the red blood cells but I have no way of knowing. One of these days I'll have to research this further.
Low blood pressure can also be caused by the pooling syndrome. According to some specialized studies I have the pooling syndrome too which causes blood to pool in the legs and arms (making them splotchy, blue looking etc.). Essentially, the sphincters in the blood vessels (capillaries) are not pushing the blood back up to the heart and brain. This causes the heart to work harder and raises the pulse causing tachycardia. This is in part due to the blood volume depletion.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Those are great links! I hadn't seen all of them before.
The first time I saw the doctor who is now my LLMD he described my condition, among other things, as "profound dysautonomia."
It was my most disabling symptom at the time, and he began working on treating it first before addressing any other problems.
At that time my BP was so low that sometimes it wouldn't even register on my home cuff when I was standing. Sometimes it would register as 70/54, or something similar.
For me it took a combination of Florinef (first drug rx'd), Pro-amatine (2nd) and a beta blocker to get my BP so I could sit up for more than 30 minutes at a time, and without throwing my feet over the back of the sofa afterwards to get the blood to go back to my body from my feet.
Driving was a sight to behold, and I now realize I should not have been attempting it. However as a single person responsible for my mother and myself at the time there weren't a lot of options.
My NMH/POTS (it changes) didn't really improve enough for me to be able to do things like prepare simple meals, stand and talk to neighbors, etc. until I began my abx treatment for Lyme.
I still take all the meds mentioned above, but I am now able to function a little better. I still am a long way from normal, though.
I've only been on abx treatment for a little over a year, and having been ill for over 40 years, I know it will take longer to get things under better control and back closer to "normal," whatever that is.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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ByronSBell 2007
Unregistered
posted
Low BP here too! Lyme disease really likes our Vagus nerves... I wanna pass out when I stand really fast or do something that requires alot of energy
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quote:Originally posted by amberlin96: What tests did u have for mold....I am ordering the test panels formy house, but what other tests can be done to rule it out in your body?
They did a blood test for that. The tested for the 3 main bad guys and I had elevated levels of all three.
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Yes, very low blood pressure. So low that my feet actually turn blue from the blood pooling in my lower extremities. Beta blockers have made a huge different and help keep up my blood pressure. Dr. B said he saw this a lot in his lyme patients, so I guess it is a common symptom. Cardiologist also recommended I drink propell water. He said this will give me sodium as well as fluids to help with the syncope.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
I have had this for 4 years now. I've been mostly house bound because of the dizziness and fainting part of this disease. Blood pressure is normal until I stand then drops fast and I get so dizzy if I don't sit or lie down I pass out. I am positive for lyme by 2 labs. I have some abnormal tests and am wondering if anyone has had any of these tests, (Below). --- Positive Tilt table test Abnormal Brain stem response Very low Citrate, ( Lowest the dr. has ever seen), Low Renin, Low Aldosterone, Low Sodium, Low Vit. D
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Yes, I have Low Renin, Low Aldosterone, Low Vit. D
I have sodium retention - especially in the upright posture but normal sodium on test measurements. Lots of fluid retention. Never did the tilt table test but stayed in a research hospital for almost 2 weeks where I was studied by Dr. Streeten (a well known blood pressure specialist - now deceased) and he did specialized tests that showed the orthostatic blood pressure problem. He prescribes dextroamphetamine which I've been on now for many years. It is a vasoconstrictor. Dr. S. mentions it in his book on babs for fatigue. I'm still very tired.
My LLMD mentioned a medication similar to dextroamphetamine for this problem but can't remember the name off hand.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I had a positive tilt table test, which is good for documenting the problem, perhaps for SSDI or other disability related cases, such as LTD, disability retirement, etc.
I am also low on Vit. D, which I now supplement.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
TERRY ! , How did they test you for Blood volume?? Al
PS. Your mail box is full
Posts: 789 | From CT, | Registered: Jun 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Al, Thanks, I cleared out some of my mailbox.
I looked up my test results and I don't see a name for the whole test so I'll tell you how they listed it: Plasma Volume RBC Volume Total Blood Volume Whole body hematocrit
I've had the test done 2X and both times it was done at the nuclear medicine dept. They used a radioactive tracer.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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