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» LymeNet Flash » Questions and Discussion » Medical Questions » bone marrow donors

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Author Topic: bone marrow donors
pippifern
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Can/should people with Lyme be bone marrow donors?

pippifern

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To our good health,
Pippifern

Posts: 36 | From Cape Cod | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
bettyg
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NO TO BONE MARROW, ORGANS, TISSUE, EYES .... EVERYTHING.

please look thru my newbie's links, advise, of 50+ pages i sent you .... there is a link in there from MELANIE REBER that discussed this in depth; 40-50 replies! [Wink]

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CaliforniaLyme
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No no NO!(*!*)!*! GOSH NO!*)*!)!!!!!!


BUT that brings up an interesting story...

I know this Lymie in LA, this incredible woman, who was married to a doctor and had a daughter and was convinced they all had Lyme. Husband had MS diagnosis. So they test and test and TEST and negative, negative, NEGATIVE!!!!!!!!!

This is a true story.

So this woman, who is incredible, as you shall see, insists and arranges for them all 3 to have BMBs!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

BONE MARROW BIOPSIES!!!!!!!!!!!!!

And has those tested-

AND they are all 3 PCR positive for Lyme, Ehrlichiosis and Babesiosis!!!!!!!!!

True story. Incredible woman.

Wouldn't have been able to do it if her husband wasn't an MD of course, but still, incredible woman!!!!!!!!!!!!!!!!!!!!

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There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
pippifern
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Thanks to both of you for the concise resounding answer. Too bad. It feels weird all of a sudden not to be able to help out in this way.

How interesting that the CA woman's biopsies ended up being The Test that worked.

Take care!

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To our good health,
Pippifern

Posts: 36 | From Cape Cod | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Considering the sickest people need bone marrow, we definately don't want to give them unhealthy marrow ... they have enough of a fight already.

Same thing with bood.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
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Oh no, that is too bad. A friend of mine has had leukemia, and I have been on the bone marrow potential donor list for years.

Sorry to hear that I will have to take my name off that list!

Sarah, thanks for the story about the BMB -- incredible that those were PCR positive!!

This helps explain why babesia and lyme are so hard to wipe out if not caught early....

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merrygirl
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This stinks. I just signed up to be a bone marrow donor before I got Lyme. (I am/was also an organ donor) thats too bad I was hoping to help someone some day.
Posts: 3905 | From USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
   

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