Well, I am finally use to this PICC line and now it is coming out in 5 days.
The original plan with LLMD was to have it in longer but because of financial reasons and some reactions I am having to this PICC it will be removed on June 6.
That will be a total of 4 weeks of Rocephin. I feel much better. We are switching back to orals.
I can't remember the name of what we are switching too. I know it begins with a C and is supposed to be a form of the Rocephin. I pick it up later at the store so I guess I will find out then.
I was scared to start the rocephin and now I am scared to stop it.
Was having only 4 weeks a waste of time? We did the PICC to target my lingering neuro problems, which it did.
posted
My son who was only 9 at the time had a PICC w/ Rocephin but only had it 2 weeks before he had an allergic reaction, he then went to Doxy for another 2 weeks and started to see improvement prior to the removal. The home nurse removed the PICC and he didn't feel anything, so hopefully you will be fine. Unfortunately, our then Dr did not recommend any additional antibiotics so he went down hill pretty quickly,that was almost 2 years ago has been on oral antibiotics since we found a new doctor. Good Luck
What do you mean when you say the PICC is coming out due to "some reactions"?
Taking it out is a piece of cake - no problem. Incidentally, mine was in for 17 months.
- Andrew
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
From what our LLMD told us this last week, if after 30 days, you haven't had a reaction or response.....it's time to change meds anyway.
Although hubby is supposed to try 30 days of another IV antibiotic before the Picc Line is pulled...
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I have seen improvement with the Rocephin. Actually, great improvement.
The line is being taken out for a few reasons. First, insurance will not pay after 4 weeks. We thought at first that they were going to.
I was going to continue treatment anyway but I can not afford to pay for meds, LLMD appt. and traveling expenses.
My second set of reasons is that my body is not liking the PICC at all. I have had severe skin reactions from tegaderm and everything used to clean it weekly. We tryed two different coverings and I still break out in gigantic blisters. We think now that my skin needs to heal or everything is going to make me break out. We have been doing just sterile gauze dressings but I don't feel comfortable with that.
I am just concerned that I have made progress that I will slide way back...fast.
I am trying to tell myself that this is only a small set back. I am feeling rather disappointed though.
Positive thoughts..positive thoughts. It could be worse though. I could still be living in the land of limbo not knowing what the heck is wrong with me.
I do feel alot better though. How is your hubby making out? I hope he improves everyday.
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Hubby is doing pretty good! We went back to LLMD last week. He gave us a wonderful pep talk and said to hang in there. He is confident hubby will get better. Especially his brain.
He wants us to address some of hubby's low adrenal issues after hormone testing in April.
Wanted hubby to stay on IV and add cortisol and florinef. Also up the armour.
I'm so sorry you had problems with the Picc. Try not to get discouraged!!
posted
Hey KitKat-I'm going on my fourth month of Rocephin-but I have insurance that will cover it for 999 days-I have that in writing.
I will tell you that I have felt some improvement-but now feel kind of like I have plateaued(sp) -but that could also be the flagyl making me feel "worn out".
But I am like you- I don't want to ever stop the Rocephin because it's the first thing that has shown real improvement.And because my LLMD usually follows the IV with bicillin shots-which I dread.
I was fortunate that although I did have a reaction to the tegaderm,which even lasted for a week after removing it, I am doing fine with a dressing called PRIMAPORE.
Someone on here mentioned that they used burn dressings on their picc to let their skin heal-but I guess that's a moot point if you can't afford the picc.
Glad you are feeling better-hope your progress is here to stay!!!! Carol
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