Topic: Just started artemisinin................. wondering
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
what type of reaction I would have if I do in fact have babs.
I am not sure there really is a "babs herx."
I test neg for babs but from time to time think I have it.
If I do have it and take Art would it intensify babs symptoms?
thanks, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
robi
If one is not testing positive for babs my one son's first llmd said that artemesinin can be a challenge test for babs. I forget the dosage she gave him but within a couple of days his painful myalgias in the legs and arms increased in intensity and the llmd used this response to then put him on a protocol for babs.
His brother - now on mepron/zith/omnicef for 7 months - says that on the weeks he is off art (3 weeks on/1 week off), he feels worse/noticing a difference.
The overlapping of symptoms complicates treatment, doesn't it? Lately I have been reading here so much about bart treatment. I really think our llmds are seeing that bart and babs have been undertreated.
Do you have symptoms that could fit the profile of babs?
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
| IP: Logged |
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
....Robi, I'm assuming you're just taking one 100 mg cap a day to start.
You need to report back here on day 4 or 5 at which time you'll have established an intimate rapport with the word OW! if indeed babs is much of a factor.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
| IP: Logged |
I just started Artemisinin on Friday so I am glad you brought this up.
I too strongly suspect babs(hot flashes, night sweats, pink dots, shortness of breath, etc.) but never have had fatigue. The past two days I have had bouts of unbelievable fatigue that pass shortly, but I find strange. Also, my joint pain has worsened considerably since friday. Could this be an effect of the ARt?
I took 200 mg (2 pills) for two days, and today 3 pills/day, and in two days 5/day.
The nurse just said to take however I need to. But I would like more clarification. Should I take with or without meals? Spread out the pills or all at once?
Also, I am not on an antibx right now. Is it okay to take art alone?
Thanks!
Posts: 117 | From Chicago, IL | Registered: Jan 2006
| IP: Logged |
robi
Frequent Contributor (1K+ posts)
Member # 5547
My symptoms do indicate babs ........... sorta. Nothing real prominent. I have been more dizzy since I started rife .......... so I think the babs may be rearing up. (if I even have babs)
I am just so confused.
Here's the thing ........... I felt pain increase about an hour after I took the art. But ya know, I have pain increases with out doing anything. I don't feel anything is distinct.
I do sometimes sweat at night ........... its hot and well it could be menopause ........... yes the sheet are occasionally soaked.
Charlie,
I took 100mg .......... took one on the am, afternoon and will take one at bed.
My confusion brain fog is definitely escalating. And I am getting a headache. Fingers and toes tingling. Muscles aching!!!!!!!
So could this be a reaction so quickly? or would it really take 4 or 5 days.
Wish I could sort it out.
LZO, I am taking alone without other abx also........... i guess we do need to find out if it is ok to take alone.
Any info, thoughts, ideas appreciated
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
liz28
Unregistered
posted
It seemed to cause fogginess (more than usual, anyway) for a week. Afterwards, it retained the ability to instantly relieve babesia symptoms for short time periods.
IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I am being tested for it, and decided to try Artemsia (Dr. Zhang's) 400mg every other day, once a day, to start.
The first day, I got a headache, brainfog and fatigue.
Yesterday, I tried to do some yard work, but after 15 minutes, my muscles hurt like heck.
Today, I didn't take one, but my stomach has blown up like a balloon and I'm having breathing problems.
As I type this, I'm breaking out in a sweat and my head is hurtin'
I'm guessing this means I'm positive. I'll let the doc know what's going on.
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Robi
Thats a tough question. It seems like lyme, babs symptoms run differently in people.
I didn't get the night sweats but tested positive for babs and have most of the other symptoms.
I didn't take the art alone but with abx in the brew so can't give ya much feedback. But when I went to increase the art gradually upping it all hello broke loose.
All my lyme symptoms got worse & for the first & only time in my life I sweated like there's no tommorow. They would come on like hot flash's.
After I finished my babs treatment I no longer get my low grade fevers ~ that must have been all these 20 years from the babs. So it did clear something. And after I stopped babs treatments it seemed to take extra long time to clear the herx's & toxins.
Good luck with the art. Please try to ramp up slowly ~ it can hit ya like a ton of bricks.
Take care Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
robi
It sounds like your body is responding to the art. Both my sons took it with abx - 300 mg daily - 3 weeks on/1 week off.
Look at the Zhang protocol to see what he recommends.
Did you see the recent postings of cryp????? being recommended by Buhner now for babs?
I hope rifing is a key to your treatment. Keep us posted.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
| IP: Logged |
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Wow! i got the sharpest shooting pain in the spleen area this AM. It actually made me scream. I have always had low level pain there (part of why i and my docs suspect babs) but this was a definite shooting, stabbing pain. Quick but intense. I am hoping this is a result of babs being killed.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I got that while Herxing on Babs ALL THE TIME!!! i got it PRE TX as a symptom- terrible- but then it was excruciating until it was gone and I haven't ahd to feel it in over 6 years!!! If oyu keep on with tx I bet yours will go away, toO!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
posted
I believe that art needs to be taken with zith or one of a few other abx (I forget which ones - I'm on zith) so that the babs doesn't get resistant. Hopefully someone else can confirm this, but I know I've seen that caveat a LOT here on the boards.
We're pulsing it here - 3 weeks on and one week off. I'm also on Mepron and Bactrim along with the zith and art. Husband is babs negative, but I suspect he has it - got nasty/moody on art and now is taking his week off and is not nasty but IS fatigued pretty much. We'll see what happens when he goes back on.
-------------------- Getting older is when we would rather not have a good time than have to get over it. - Oscar Wilde Posts: 386 | From Radnor, PA - where the ticks run free | Registered: May 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic