posted
Just wondering if those of you who experience tremors from lyme always have that symptom, or does it come and go. My tremor,which first began in my hands about 7 years ago, then moved on to my legs, is costantly there. It is most noticeable when doing a physical activity. When I first looked into it, seeing a few neurologists, one said I had an essential tremor, another one said I had an enhanced physiological tremor, and the other said they are both the same thing. Testing positive with the Igenex Western blot may now explain why I experience tremors. Anyhow, please share your experience, and let me know what medication helped to reduce or eliminate that symptom for you.
Posts: 24 | From Los Angeles | Registered: Apr 2007
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Mine is constant although speeds up with any kind of exertion.
I did not have it the first two or so years of Lyme treatment. Seemed to come on a bit before my Bartonella test turned positive. Am on Bart treatment now but it has not calmed down.
My LLMD said my autonomic nervous system is on overdrive, which I think it is, from all these diseases. I personally think the nervous system issue is contributing to the tremor, but I don't know.
It's miserable - all I can do is empathize with you.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
I used to have tremors of my hands and head. They were some of the symptoms that lead to my diagnosis of lyme (that, and along with facial numbness, brain fog, joint pain, etc.)
What has finally made the tremors go away -- not completely, but at this stage, they are gone over 80% recently -- was high doses of long term amoxicillin. I am taking about 10g/day of amoxicillin, and I weigh 135 pounds.
I am also taking the buhner recommended herbs, andrographis and resveratrol. And treating for babs with malarone.
Good luck. I think high doses of long term antibiotics have virtually eliminated my tremors, though not 100% completely, they are much better.
Posts: 2557 | From home | Registered: Aug 2006
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posted
I had hand tremors for the first year I had lyme. I also ocassionally have whole body tremors. In the last 3 months my Lyme has gotten worse but the tremors have vanished.
Good Luck
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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I had the tremors as well. After the IV Rocephin and continous Co Q10 I can tell you that they are essentially gone.
Mine where constant like an internal vibration. However they would intensified with any body movement, startle or stress.
Kindly,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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posted
Julia, how much CO-Q 10 did/do you take a day. My LLMD just reccomended that I begin taking 400mg/day.
Posts: 24 | From Los Angeles | Registered: Apr 2007
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I take 200mg a day. It will take a few days for you to start to feel the tremors fading.
However, I notice that if I stop the CO Q10 within about a week I can start to feel the mild tremors starting up again.
For me this is a very small commitment. I plan on taking them as long as I can...
Kindly,
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi again,
CoQ10 has not helped me in terms of tremors - I've been taking CoQ10 for years, long before Lyme.
However, it's good for your heart and energy levels so even if it doesn't help the tremors, it's a good supplement to include.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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