LymeNet Flash: in trouble, need alternatives....

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » in trouble, need alternatives....

UBBFriend: Email this page to someone!

Author

Topic: in trouble, need alternatives....

ally
Junior Member
Member # 12102

posted

Hi,
I'm new to the list, having been brought here by a strange (though I'm sure, not unusual) series of events...

I am 28 years old, and was misdiagnosed for 14 years. I was diagnosed and started IV treatment last year. After 8 months of IV, my insurance co decided that I was cured -- brilliantly concerned with my wellbeing, obviously.

So, I have been off of ABX for 6 months, and have started to seriously relapse. Severe chest pains, joints made of stone, occasional hallucinations (always good party talk), extreme fatigue -- I sleep 12 hours/night and wake up feeling like I was run over with a mac truck.

Because of the insurance thing, I went to my GP who said that there couldn't possibly be any live spirocetes left in my body (who teaches them this crap) and that I would have to live like this for the rest of my life. Take some Tylenol.

*SERIOUSLY*

How bout you take the tylenol and put it....

Anywho, so I REFUSE to believe that this is the best I can feel like (I felt much better after the ABX), and I need some help and ideas.

I had two...

1. HBO - how does the home system work? The really high pressure chambers freak me out a little.

2. Cat's claw - someone suggested this to me.

And any thoughts about pulse therapy?

And ANYTHING ELSE THAT MIGHT HELP!?!?!?

Thanks a bunch!
Ally

Posts: 3 | From Connecticut | Registered: Jun 2007 | IP: Logged |

ByronSBell 2007
Unregistered

posted

There are alot of choices with lyme treatment...

Alot of people are having great success with herbs, buy the book Healing Lyme.

There are rife machines, oral antibiotics, salt/c, heating the body, many detox therapys, IV hydrogen peroxide, and more...

IP: Logged |

ESG
LymeNet Contributor
Member # 4816

posted

the book Healing Lyme is written by Buhner, available at amazon.com. You can also search Buhner as a 'subject' here on LymeNet.

Search yahoo's groups as there is a lyme-Buhner group there, with great people & great ideas.

ESG

Posts: 424 | From Connecticut, USA | Registered: Nov 2003 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

Dear Ally,

Can you pay out of pocket and see a LLMD???

That is what I would do.

Were you treated for possible co-infections?

Sorry you are not doing well.

I know that having to pay your own way when you have health insurance is a crime.

There is no price I wouldn't pay to get my, my husbands, or my children's health back.

Do you still have a copy of your Western Blot?

All health records?

Could you possibly appeal the insurance decision?

Hang in there.

Please find a LLMD asap.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

BOEJR
LymeNet Contributor
Member # 1734

posted

Hi Ally,

I offer the HBOT affordably, contact me and I will discuss it with you.

In a nut shell. If you have been relatively well. The HBOT will help you to maintain those gains. If you are chronic then I would suggest a full series (sp) of 40.

If you are still able to function then I would suggest one or two sessions just to maintain your immune system. You will herx too to some degree.

The pressure is 2.4 ATA for lyme. As to the freak part I can tell you that I have been able to talk in to the chamber the worst clostrophobics. However ativan and xanax work too [Wink]

I would take the cats claw as well...

You will need an Rx for the sessions.

Blessings,

Julia

--------------------
Please consult your LLMD before making any changes to your treatment regimen.

Posts: 641 | From NJ, USA | Registered: Oct 2001 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/