posted
Can anyone tell me the names of the main 'offenders' (if that is what you think of them as) in Lyme research groups, who put together these poorly designed studies? Ideally their name, organization, and email or phone number.
I speak and do 'science' and I want to try to propose and co-organize a study with these people, if I can. The only way to make progress here is to bridge this gulf, and speak 'their' language and try to prove things on 'their' terms. If the treatments really work, then they can be proven in properly designed experiments.
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
If you are interested in pursuing this you should contact the doctors at ILADS. They can fill you in on all the details. http://www.ilads.org
P.S. Just so you know, we've been stung a few times before with people who say they are someone that they are not. It helps if people can verify your identity. Hope you don't mind but this is what I found on you. Is this you? http://newarkbiosci.rutgers.edu/Faculty/Adams.htm
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Yep, that is me....I'm an Assistant Professor and that's my web page at Rutgers
Posts: 12 | From Wanaque, New Jersey | Registered: Jun 2007
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bettyg
Unregistered
posted
jon, terry had the best idea; good work sherlock terry finding jon's info.
jon, yes, we have daily attacks of TROLLS/troublemakers who are healthy who prey upon us sick lymies. 1 claimed to be a dr. giving out advise galore.
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Jon,
I think that is the right approach. There is alot of history here on this, and there is already alot of peer-reviewed published data that the IDSA team that wrote the incorrect lyme guidelines have ignored.
However, to my knowledge, there are only one or two controlled studies on the use of more than a short course of abx for late stage lyme. The studies that the IDSA keep quoting, like the Klempner study, have methodological flaws and selection bias that keep it from being generalizable. There is even a peer-reviewed critical analysis published on these biases.
That however, has not stopped idsa ducks that want to deny treatment to lyme patients from citing it as proof that abx do not work against lyme disease!
I agree with you that more studies are needed. You should check out the work of Dr. F at the Columbia Lyme Center:
There is so much research needed on tick borne diseases. Most doctors are so ignorant, and people are suffering. Although there is a paucity of published research on the use of abx for chronic lyme, there is ample clinical evidence for their efficacy in long-term use.
Why in the world has this research not yet been done to date, even though lyme is the largest vector borne disease in the US, and the incidence is growing rapidly?
Please keep us posted about your research efforts.
Posts: 2557 | From home | Registered: Aug 2006
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
I also think you should contact Dr. Fallon at Columbia. This is what he is working on, building bridges.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You can give it a shot but if the truth is ignored it wont happen.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Welcome*)!*)!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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