posted
Help! My meds ran out and I am stranded...my specialist moved to California 2 years ago and I have been relying on family and friends in Malaysia supplying me biaxin and plaquinil. Due to a hiccup in the process plus my bad planning, I ran out of biaxin. I went to 3 docs in NJ and all refused to give me anything, not believing in chronic lyme. The LLMDs are all booked till August.
I just need a few days biaxin to keep me going before the meds arrive. The Lyme started to return; I got it under partial control with some Lorabid I had left over but need something to root out the intracellular forms before they settle in (they are back; it hurts!).
Can anyone in NJ spare a bit of old biaxin or zithromax, just a few days worth (until my other meds arrive), that I can collect tonight or early tomorrow? I am despairate to get the spores killed quickly and stop the cramps and electric shocks.
I am sorry to beg like this -
My name is Jonathan, I'm a professor at Rutgers Newark. My email is [email protected] (best reply to it directly)
Posts: 12 | From Wanaque, New Jersey | Registered: Jun 2007
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Contact them and they should be able to get you in to see a lyme aware physician sooner than your LLMD appt in August for the time being.
I think it is dangerous to accept medications not prescribed to you from a stranger. I also have concern that you are not being monitored while taking medication. You should not take any medication without being under the direct care of a medical provider for monitoring and routine lab work.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good morning Jonathan,
I would surmise that a prof at Rutgers would be aware that this practice is highly illegal.
"A few days" of no meds is worth much more than a few years of incarceration.
Please rethink your post...and I would strongly advise anyone who might be willing to answer this to also rethink your actions.
My best, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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posted
It is a measure of my despairation that I am prepared to do this. I have obtained the medications I need now though I am not ever going to say where they might have come from. I am trying to save my life and/or my long term health, not only for myself but also for the sake of my family. Let me ask you, if you were relapsing and had nowhere to turn, nowhere at all, what would you do??
I am not ashamed to put my name out there. And yes if I was to be prosecuted I'd make sure to raise hell and ensure that the media knew WHY we are put in this ridiculous situation. I think we need a few pathetic cases like this hitting the headlines to change things.
Posts: 12 | From Wanaque, New Jersey | Registered: Jun 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i found that by taking garlic it helps my symptoms.
can you get some allicin? it's over the counter and would not get you in any trouble.
also, some samento or something.
just a thought.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
When I was relapsing after stopping antibiotics the Buhner herbal protocol helped me a lot. It took about 10 days of very careful and regular pill-taking before I felt like the backslide stopped. I did a lot of eleutherococcus tincture and other things from Stephen Buhne'rs Healing Lyme book at that point. It's all gotten a lot better since then.
I know someone who teaches at Rutgers part-time and has chronic Lyme, PM me for her info.
Maria
-------------------- Symptom Free!!! Thank you all!!!!
posted
I'm going to be the oddball here and tell everybody that, giving all the Lyme politics and how people suffer with these chronic infections (to the point of desperation), I do not blame Jonathan at all for posting something like this. He was refused abx by several doctors. It's not like he hasn't tried to get them legally.
I'll be honest here - I've thought about it many times. In fact, I will publicly declare that if I ever find somebody with meds for babs, ehrlichia, bartonella, etc... floating around, stranger or not, if I'm pretty sure I won't get caught, I WILL accept them at this point. If I OD on them, heck - better than OD-ing on Lyme toxins.
And like Jonathan, I'll blame my 'illegal activity' and 'poor choices' on my spirit's desire to continue on.
It's sick that people are being denied the very meds they need to get well. Maybe the whole world should turn into Jonathans - they would never have enough room in prison for all of us anyway.
Good luck, Jonathan. I feel for you and am in the same boat. My drug company only approved 6 zithromax.
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
....I bet you can ask around amongst friends and family and come up with some stray abx.
This forum is not the place to scrounge meds given the scrutiny lyme issues are under...
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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WildCondor
Unregistered
posted
Moderation needed! Please don't post illegal things on Lymenet. I understand your desperation but this is not a smart idea for a topic.
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tailz
Unregistered
posted
Awww, leave him alone. Look what the medical community's moderating has done to our health.
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tailz
Unregistered
posted
If anything, you should keep this post as evidence of what the medical community has done to good, honest, law-abiding people.
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JimBoB
Unregistered
posted
The BEST thing to do when you can't get the stuff legally, is to buy the Buhner book Healing Lyme Naturally and follow HIS recommendations to a T. Then more than likely, most of your pain will go away, and so will your desparation.
posted
Somehow I think guys get less sick from Lyme and recover more quickly and completely than women do with this disease. My guess is because women are more likely to be sent to a shrink and given a Cymbalta.
I have tried every natural remedy known to mankind (even out of my budget), and I'm still sick.
Nope - I'm still with this poster. This is how desperate we've become.
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I'm so sorry for your situation and I can totally relate. I forget where you said you were, however, I would go to the nearest urgent care or Doc in the Box and tell him/her you have a major sinus infection or something.
This is a desperate move to save your life! Call friends, family etc. and please be careful!!
Wishing you all the best,
Dizzy
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
just a thought, you can always go to an emergency clinic. they have them on every corner now.
don't know whether it would work or not, but at least it would be legal.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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tailz
Unregistered
posted
That's not going to help him.
I went to the ER dozens of times, practically screaming I had systemic infection. I couldn't even get a doc to get me in with Infectious Disease sooner (not that ID helped, but the thought would have counted).
I'm finding that they don't even want to prescribe oral antibiotics for ordinary infections anymore.
I had oral 'thrush' and they would only prescribe some sort of mouthwash - not an oral - even though I knew it was in my bloodstream, too.
If he has acne, perhaps a trip to the dermatologist and an 'acne' dx would yield him some Lyme and coinfection abx lomg term? I was on abx for acne for YEARS - little did I know these same abx treated Lyme and some coinfections (amoxicillin, minocycline, tetracycline, erythromycin).
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