posted
I have this in my limbs and it is driving me nuts. It is really intense in my feet(mostly soles) and calves. I started Doxy 4 weeks ago. It fluctuates throughout the day and sometimes I even have a good few days. Right now it's been 3 days of really intense burning and I just cannot believe that I would have to take this a lot longer.
So did anyone's neuropathic burning and tingling go away with time? I read so much that nerves are slow to regenerate and sometimes beyond repair...
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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Keep in mind that it gets worse with treatment, and then gets better. Talk to your doc about your pain options. My doc put me on an SSRI which helped with pain along with the depression and anxiety.
Keep pushing through it. It will let up soon.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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posted
I think this is very common among us lymies. I too have pain, burning, twitching aching in both of my calves and my both feet. Right foot only upon waking but left foot all the time. Mine is worse at night.
I agree with the last post, it is always worse when on ABX. must be herxing.
I would also like to know what kind of pain medication works to relieve this.
take care, and hope you feel better
Posts: 73 | From phoenix, az | Registered: May 2005
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posted
I was on Paxil CR at first due to my thinking that I was going out of my mind.. EVIL DRUG. Its very effective towards depression and anxiety, but difficult to stop. Withdrawl symptoms were horrific. To me, thats a last resort drug.
I was then put on Lexipro 10 mg /day. It must have been an effective pain killer for me, because once I stopped it, I noticed how sore my body is all the time. When on it, I never really noticed much pain.
My nerve issues were mostly numbness and tingling. Not much burning. So, what worked for me as a pain killer, might not be as effective for someone who's dealing with burning nerve pain.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Yes, abx were the only thing that helped the burning & tingling.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Yes. I had the "hot foot". It was one of the first sypmtoms to go away after I started abx
Posts: 10 | From Maryland, near DC | Registered: Jun 2007
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I'm glad to hear such encouraging other posts, but mine has only somewhat improved but is far from gone. So I'm just posting that for some of us, it's a really resistant symptom.
I have burning throughout almost my entire body (it started in my feet and spread upward) and have tingling in my legs. I have it 24/7, have had the burning for almost four years, the tingling for 18 months.
Lyme meds quieted it down a bit in my upper body but not legs. Bart treatment has quieted it down a bit more, the burning waxes and wanes a little now rather than being constant - the tingling remains.
The heat off my burning back used to wake me up at night but at least it doesn't now, so there is some improvement.
It seems that many of us with Bartonella mention neuropathy, although obviously Lyme and other coinfections can cause this too.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
for years I felt like somebody set fire to my feet and tried to put it out with an ice pick. Neurontin+ultram worked to let me sleep, but only time helped to actually get rid of it...but I still have spells where I have to sleep with my feet out from under the covers.
this has gone on since about '99. I think the regeneration is real slooooow...
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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posted
interesting...so it seems to very individual since there are so many variables.
did any of you have this strange feeling of an "invisible sock" and/or tightness in the calves? I have this and it usually precedes or happens after the burning.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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