posted
I have not yet talked to my doctor about this, but I thought I would see what anyone had to say on this, if they have experince with it.
I have Lyme Disease, Anaplasma, Ehrlicha, and Babesia. _______________________________________________ This is the Lab my Nurse Just Ran: I am at a 3.1 for my while blood cells which is below normal. The normal range is 3.8-10.8.
My Abolute Neutrophils count is 1367. The Normal range is 1500-7800
Also, my red blood cell level is only .2 above the cut off point of normalcy. ______________________________________________ This is the LAb my old Duck ran (almost 1 month ago) : White Blood Cell Count at 2.9. The normal range is 4.5 - 10.5. My MCH (i dont know what this is) is at 32.3 which is higher than normal. the normal range being 27 -31. ________________________________________________
I do not know what this is from. I only took this test after I started ABX, and so I do not know if this is because of the ABX or something else.
I do know Ehrlichia attacks one kind of blood cell (red or white cant remember) and Anaplasma attacks the other kind.
How do you treat Ehrlicha and Anaplasma?
Does anyone know if this is something I REALLY need to be concerned about? Like, can I leave my home? or will I get sick?
I know my levels are below normal, but how bad is this really? I am so afraid I could be at as much risk as someone with advanced HIV or something.
Does anyone else have this problem or know anything about this?!?
posted
I'm sorry, I really don't know. On my last blood work (in April), my lymphocytes were low. I know that's a type of white blood cell, and from what I looked up on the Internet, it suggested (at least in my case) a virus of some type or bacterial thing.
My regular duck didn't even mention it, so I guess she felt it wasn't anything to worry about.
I did show it to my LLMD...he really didn't say much either, but I think he was worried about other things with me.
Posts: 83 | From us | Registered: Nov 2006
| IP: Logged |
ByronSBell 2007
Unregistered
posted
My lymphocytes were low here as well, DUCK said they were suppose to be in the 800-1000 range and mine were in the 400. Not sure which lab he used...
I think it is caused by lyme/chronic infection
IP: Logged |
northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
up
Skyler, are you being treated yet for the hme/hge?
All my counts were within lab ranges, but sometimes at the top, others at the bottom.
I did some googling on hiv supplements to see what they recommended. I figured if I was that sick, the lab reports were not fully representative of my immune functioning.
Also, a search on here for immune supplements may provide some older discussions of what people have used.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
| IP: Logged |
northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
hme/hge are old names for anaplasmosis and ehrlichiosis. I forget which is which. I think they split off anaplasmosis and gave it a new category.
The hme is human monocyte ehrlichiosis. The hge is human granulocyte ehrlichiosis.
One was changed to anaplasmosis.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
| IP: Logged |
posted
Rocephin is known to drop the WBC. That is what happened to me when I had serum sickness. I do not know if that is the same with you. It is probably a side effect separate from the serum sickness. Mine was dangerously low (like around 2 or so), but I cannot remember now exactly what the number was.
As long as your doctor knows - I am sure he/she knows what is reasonable for rocephin.
Mine is actually pretty low now, in the aftermath of rifampin. My neutrophils are low and my WBC is 3.5.
I think that some of it has to do with our body combatting the multitude of broken up bugs.
Posts: 588 | From Rhode Island | Registered: Jun 2006
| IP: Logged |
posted
my white blood count has been below normal to.. i asked my llmd he said it wasnt uncommon to see to an elevated white blood count or a low blood count. for whatever thats worth... brian
Posts: 217 | From Everywhere | Registered: Nov 2006
| IP: Logged |
posted
My WBC has been low as well. My new LLMD just told me that my low count is due to Ehrlichiosis. If we treat it properly, my immune system and WBC will go up.
Maybe something similar is going on with you...?
Good luck! Schnuddelka
-------------------- When given lyme make lymeade! A tick check a day keeps lyme away! [email protected] Raising awareness by creating as many lymebassadors as possible! Posts: 158 | From Northern Wisconsin | Registered: Oct 2005
| IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Interesting thread.
We just got back from local doc visit today. Hubby's blood counts are all excellent after a month of IV.
Skyler, how is the rocephin working for you? Is it helping your Lyme related problems?
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
posted
Dr. C says that Low WBC is a red flag for Ehrlicha. My WBC popped back up in the normal range after taking Ambrotose a glyconutrient.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
posted
Thanks all of you for your imput! I makes me feel better to hear I am probably not going to die from this, lol. I overthink everything.
I am doing pretty good on IV Rocephin. I herxed the whole first week of it, the 2nd week was less bad, but still bad (the 2 weeks before on IV once a day did not do anything to me but make me mildly tired). And now I have a 2 day break, and today I am feeling pretty amazing! I feel as good as my good days before starting treatment! I feel awesome! lol. AWESOME! and that makes me very happy!
I wish all of you the best of health! Thank you SO much for easing my mind! on thursday I am going to visit my doctor and we will discuss the low wbc count, but I am sure its just because of the rocephin. I have always had an imune system of steel (in the past), despite the lyme, go figure. I have never had the flu (and I have been around it quite a bit) and before this year I would never catch colds or anything. I think I will be ok.
posted
You're welcome and I'm so glad you are feeling so much better!!!
Posts: 83 | From us | Registered: Nov 2006
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My white count last week was down to 2.3. My LLMD stopped me for a week, and when it was checked last the other day it was 3.2. That's the lowest it's been in a while, but it happens with antibiotic use (for me anyway). Maybe if you stop for a week, it will go up. It's not great for treatment purposes, but that's the way I could continue on the meds. I was on amoxycillin when it happened (1500 mg) a day, now she switched me to minocycline, 100 per day because it causes dizziness for me. I guess this disease isa trade off.
Be well, LIP
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
posted
An ND suggested my daughter take shark liver oil for low white blood cell count. She said to take it for 60 days. We did that--just got the blood work back. Her WBC is normal for the first time in ages. It will be interesting to see if that holds, or goes back down now that we're off the supplement.
Posts: 991 | From California | Registered: Feb 2006
| IP: Logged |
posted
My wbc count has been low since treating this disease. My llmd says it is very common, he sees it all the time. Hopefully when treatment is over your count will be back up.
Posts: 323 | From Michigan | Registered: Sep 2006
| IP: Logged |
tailz
Unregistered
posted
I had elevated eosinophils at one point with my chronic diarrhea, and the GI doc where I used to live put me on metronidazole 'on a hunch'. Which bug does that mean I have?
This did help my diarrhea, but after that, doctors sent me through a whole boatload of mazes all over again, only to eventually send me to yet another GI doc down the road - but by then, I was too far gone and my colon was mush.
I've been reading all sorts of things on here about ehrlichia and how it can be fatal, and how a 10 year old little girl died of it, and if you'd have seen me last year at this time, I know I didn't have much time left.
Had I continued on like that, I wouldn't have given myself even a month.
I was wondering though - have you ever had your antistriatal muscle antibodies and antiacetylcholine antibodies tested? My antiacetylcholine antibodies were okay, but my antistriatal muscle antibodies were 'equivocal' - the last acceptable high normal value.
Basically, I had started going autoimmune. Striatal muscle is smooth muscle. I'm guessing between my lung and colon issues, I had started to develop antibodies to 'self'.
Therefore, don't be dumb like I was and start taking echinacea which will only stimulate your immune system to attack you. I would make your first goal detox.
IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Yup- HGE & HME can cause low WBC!!!!
Sounds like you are doing okay now though!*)*)!!
Glad to read it*)*!)*)!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
Carol B
Unregistered
posted
I know my WBCs were down along with other stuff that was off-doc didn't seem too concerned about it-although I am taking a bunch of supplements to help support immune system.
I was freaked at first-Doc didn't get too concerned until WBC dropped to 2-right after I started IV Rocephin. Counts are coming back up although still a bit low.
I have been in treatment for a year and a half- my... where has the time gone? but just started IV rocephin in March along with pulsing Flagyl. Seems to be helping the most as far as over all sense of well-being. I am feeling encouraged.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[dizzy]](graemlins/dizzy.gif)
![[Frown]](frown.gif)
![[confused]](graemlins/confused.gif)
![[bow]](graemlins/bow.gif)
![[group hug]](graemlins/grouphug.gif)
Schnuddelka
![[spinning smile]](graemlins/spinsmile.gif)
![[woohoo]](graemlins/woohoo.gif)
Printer-friendly view of this topic