robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Ok, so yeah I sleep a lot, but ............. I have a lot of awakenings.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
LOL good one....you had me going for a second, there is nothing but bad news here. i even quit coming for a long time because i was so depressed that things never seek to change. i am surprised no one is reading this. i can't wait to open the ones that might have something positive! thanks for the laugh. may you have many new awakenings....i think....
peace, kathy
Posts: 97 | From Simpsonville KY USA | Registered: Jul 2002
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tailz
Unregistered
posted
I just had to look at this post. Now I just need to think of something good of my own. Hmmm?
posted
And spend time with the crickets late at night.
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Vanilla
Unregistered
posted
Hey I am getting better and hopefully after I start a cyst buster in a month I get to go off all meds in 3 months and then do stronger Tibetan herbs once I am off all ABX. I saw my LLMD today and he is pleased with my progress and thinks the herbs are helping me.
i get to talk to this wide variety of folks with all types of jobs where we learn from one another, and advocate as TEAMWORK SHOULD be done!
i'd have never met you IF it were for our chronic lyme symptoms and fighting for our lives, for ssdi..social secrity disability, LTD long term disability for some, and fighing to get reimbursed by our health insurance companies.
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am thankful as I have Lyme and co-infections,
That I saw signs/symptoms in my children that led me
To getting them tested.
If I had never found out what was wrong with me,
My children would be facing a lifetime of illness and pain.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I was talking to my 10 year old son about how we learn from experiences even bad ones.
I told them that even though I hated seeing him going through this illness, I had nevertheless enjoyed all the time I had spent with him and the books we have read together.
I asked him if he felt he had gained anything from the experience. He looked at me wryly and said "well put it this way Mummy, there was no way you would ever had bought me a play station"
Posts: 67 | From UK | Registered: Oct 2006
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Well, Lyme has introduced me to so many doctors all of whom I never would have met otherwise.
And I have even learned how to talk to them in their own language and to instruct them on how much medicine I should take.
Also, I get to educate the conventional doctors on alternatives that work and how "the gas we put in our engine makes a big difference on how well our engine runs" (Jeez you would think that would be kindergarten knowledge)
I haven't done it yet because to date I have managed to escape lyme rage, but I am about to send a copy of my latest test results showing Babesia, Lyme, Ebstein Barr Virus, QFever and flat adenals to my ex-rheumatologist who refused to run any tests on me when I explained to him how my whole life had been battling one bacterial infection after another and how I felt I had to be a bacteria factory.
He simply did not believe in an infectious cause to Rheumatoid Arthritis and could care less about trying to uncover any cause for my RA.
Once I find the time to write this letter in a format that is printable without a zillion bleeps for the bad words that come to mind, I will be able to thank lyme for my satisfaction in laying out one pompous, totally ineffective doctor.
I do feel incredibly lucky that I have only had to deal with one such doctor so far.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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butchieboo
Unregistered
posted
Hey luvs2...so which infection caused your "rhematoid arthritis"?
All your rheumy duck will tell you is that you have a AutoImmuneDeficiancy....
Ya know....something like AIDS.....
The ducks know what causes RA and all the other arthritis conditions...they just have'nt isolated the particular bug D' jour or it's remedy or vaccine!
Save your breath....
Do you REALLY think all those ducks you were "educating" listened to you past anything you said after "lyme disease"?
It's more like they tuned you out like men do to their wives when we're watching football....
posted
I say do not save your breath. Even while watching football part of the male brain hears something even if it is only back ground noise.
If we all tried to educate all the ducks we have seen it might change things for the next person with a tick bite. I have seen a heck of a lot of ducks in my 16 years before getting diagnosed and at some point I would like to attempt to educate at least some of them. One might just listen. I have written to two of them and received no reply but that does not mean at some point I might not reach one even if his brain is stuck in football mode.
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Good point, Vanilla.
My LLMD is a former IDSA guideline spouting duck! However, he was always better than the average duck, if you get what I mean.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
I got to actually watch my tomato plants grow from babies to nice juicy red ones since I've been out of work doing treatments!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Ahhh victory was sweet my friends!
The duck rheumy who first diagnosed my RA and ran bloodtests that showed I was a high moderate, just 4 pts from severe; also ran my subsequent tests 1 yr later that showed I was a weak positive.
Even before the bloodwork when he physically examined me, he looked positively sick, he honestly stared at the floor as he said...and I quote:
"I am a science-based doctor. I don't understand a thing you are doing, but either it is working or mother nature has decided to spontaneously heal you because you are nearly dormant."
On my bloodtest results he wrote "borderline RA".
It was such a happy day for me!
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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since I've been out of work doing treatments!
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