posted
not running things together well at all. does anything help this? i always have akathisia and constant teeth gnashing, focusless energy in my skin, not knowing what i am even knowing what i am complaining about. i think it is related though dopamine.
i gave up on trying to get antibiotics again, the doctor i was seeing ended up not thinking it was lyme, and wanting me to see a neurologist. i don't really know what a neurologist would have to say, unless i have a recognizable form of early onset parkinson's i don't know about, do they any deal with chronic fatigue? if it is lyme, i never tried IV and it was not being offered. i cannot really remember to take oral antibiotics. but things that can help me remember and think and do immediately would be what i need, if it helped enough to have me remember things and think better. i really just can't think myself through actions even if i am getting memory properly. i often feel like i need to close my eyes just to remember what i was doing. nothing really helps tho, i never remember in syncronization with ability to execute with what i am doing.
i need to know something that helps with this, antibiotics i just don't see helping, i am not convinced it's lyme myself, but seems to go with a neurological theory on chronic fatigue. i don't really see how important it is at this point as another lyme diagnosis just puts me down an endless path of drugs that don't work for me or can't remember to take. this just took a lot of effort just to think and type.
Posts: 244 | From Ottawa | Registered: Dec 2005
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by danielb: ...but things that can help me remember and think and do immediately would be what i need...
If I understand you correctly, you are saying that you can't hold the ideas in mind long enough to sort them and do them in order.
One thing that would help this is more blood to the brain, so that the brain cells get more oxygen.
So...to get more blood to a lymie's brain, you need to reduce inflammation.
There are several supplements that will reduce inflammation.
Fish oil capsules or liquid helps reduce inflammation, and are good for mental health issues.
Coenzyme Q10 is an antioxidant that can help block inflammation, and help the cell's mitochondria produce more energy. Take at least 400 mg daily.
Resveratrol (Japanese knotweed source is best) reduces production of quinolinic acid, a potent neurotoxin.
posted
i take b vitamins and magnesium periodically. magnesium is hard to take much of. i take malate. i couldn't say if i experienced a difference at all.
would co-q10 really help me if i am 23? how much does it help things?
Posts: 244 | From Ottawa | Registered: Dec 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Daniel,
If it is lyme, the right oral antibiotics can really help with neurological effects. I do not know your history, if you have had tick bites or any other lyme symptoms.
Sounds like you have had a lyme diagnosis in the past. Can you see a lyme literate doctor? And is there anyone that can help you to remember to take your medicines if you get antibiotics?
Good nutrition helps alot, Carol has good suggestions above. But it has taken about a year of abx to clear up much of my brain fog and fatigue from lyme. Take care.
Posts: 2557 | From home | Registered: Aug 2006
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posted
i have no clarity on diagnosis. only a positive IgM with high 31 band. dr. fallon says false positives for WB IgMs may exist in large numbers. the doctor i was seeing a while ago also now thinks it is likely a false positive. however he is much less focused on neuropsych symptoms for an LLMD.
i think a doctor that takes these symptoms seriously while not being overly interested in certain dubious treatments and diagnostics, is what i need. if lyme, worried my problems may be lyme-triggered neuro-autoimmune, so wonder if other cases seem that way.
finding solid information is very very hard.
Posts: 244 | From Ottawa | Registered: Dec 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I had a few parkie symptoms myself but they were from TBDs!!! um, I needed Iv but many people do great with orals. If it IS Lyme it DOES matter to get a correct diagnosis and correct treatment. I hope you get a good doc and I hope you have good support in your personal life. You sound exhausted. Cyber hugs to you!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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