posted
I posted something about this awhile back because nobody wants to talk about it, but I'm basically having the same problems with female sexual dysfunction that I was having.
I'm pretty convinced hormones are not to blame this time as I have plenty of lubrication, but rather blood flow or nerve conduction this time - or maybe some neat little combo of both.
First, I think about sex constantly. In fact, I'm not sure I thought about sex this much as a teenager. I'm not complaining either - if this is the only benefit of Lyme, I'll take it.
But my problem is that it takes me forever to climax - I sweat profusely - and I notice I do not get the equivalent of a male erection - like I used to.
Is it blood flow or nerve conduction or both? And will this ever repair? And why can't I have Viagra?
I know my blood sugar was a little high last time I had it checked, and I hadn't even eaten.
I also still have a visible network of inflammed blood vessels over the left side of my chest. I think these are significant, because I did not have a problem before these blood vessels appeared.
I used to have one long blood vessel extending from my chest to my groin, but that one has disappeared.
IP: Logged |
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
I have heard that women can take the little blue pills with good sucess.
Dont know anything about them myself.
There are also some herbal remedies that are roughly equivilant for men,,,I dont know why they cant work for women!!
I guess for "THIS" problem you may want to start out herbal and work up.
One thing I saw someplace your diet,,,right?? maybe a MORE balanced diet that includes some 'small ' portions of meat MAY help more than you think.
Possible a depleted amino acid or Vitamen helping out your non-functioning mechanics!!
One steady diet with one set of nutrients is cause for alarm!!! Life is all about 'balance'!!regards--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
| IP: Logged |
posted
Don is right about ensuring you have all the correct aminos and such, but if you want to try Viagra or Cialis, there's no reason not to. I've taken both (as a man) and while they are not the miracle pill that some (healthy!) people make them out to be, they are helpful.
If you can't find someone willing to prescribe them (most GYNs should), and don't want to order them online, you could also try some of the following herbals.
Ginseng, Ginko, Eluthro and the big guns: Yohimbe. Yohimbe is the strongest blood flow/stimulant that I know of, but be careful that you get it from a pure, organic source. It greatly helps some people, but it can make your heart race and make you feel flushed.
I suggest giving the viagra or cialis a try if you can. If it doesn't help, then you've ruled out a simple bloodflow issue and can look to other things.
Oh! Something like Rechts-Regulat or Wobenzym-N may help with "blood quality" and hypercoagulation.
Posts: 691 | From East coast, USA | Registered: Jun 2006
| IP: Logged |
tailz
Unregistered
posted
So they have a Viagra for women now? I didn't know that.
I've tried ginseng and gingko - nothing. I have tried every dietary combination I know of - nothing.
I just added in more fats as I had no Omega 3 source I could tolerate for some time there. I found that though I get deathly ill on every type of fish I can think of, as well as flaxseed oil, I do okay with cod liver oil. I guess I just can't digest the proteins.
I actually think this may be babesia related (though I'm negative so far).
posted
Viagra can be used for female sexual disabilty/dysfunction. Its no different than the male version. The only think I'm not sure of is the dosing.
Do you have any blood tests to suggest you have a hypercoagaulation problem? Heparin is pretty serious stuff, and needs to be monitored constantly. I would highly suggest having an extensive clotting factor, fibrinogen etc... test if you're thinking of going on it just for lyme. Thats why I suggest Wobenzym or Rechts-regulat instead - both are safer "first steps", especially if you don't know for sure you have a coagulation issue.
Posts: 691 | From East coast, USA | Registered: Jun 2006
| IP: Logged |
tailz
Unregistered
posted
Actually, I'm not sure if I have a clotting problem now. I think I did though for an extended period of time (2 years), and I may be very clogged up from that episode.
I know when they would draw my blood my veins would collapse every single time if they tried to get more than one or two tubes from me. I was never hard to get blood from - and I'd get a bruise instantly - a hematoma. Even if they would use smaller tubes and needles - same thing.
And let me tell you - with all the noise I starting making with all my symptoms, it was not uncommon for them to draw 10 tubes at a time as I demanded more tests. On the bright side, I hope they took some of my babesia and malaria along with my red blood cells. ha ha
One phlebotomist picked the tube up and said, "Boy, your blood clots fast - look." I picked the tube up and begged her to get my doc to order some sort of clotting test - but I was thinking PT or PTT - I forget which I'd need - but she told me to just mention it to my doc.
Of course, when I mentioned it, my doc didn't listen as this was 'all in my head'. Yeah - with my luck I have a huge clot sitting in the sex area of my brain now. Nice, huh?
Another thing that was happening when these blood vessels appeared over my chest was I would get feelings of warmth or heat, kind of concentrated in one small area - for no apparent reason - like on my thigh or calf or ankle. Then I'd get a major dizzy spell and my gums and lips would turn blue-grey.
I have no doubt had I continued like that, I would have died of a heart attack or stroke. Then, of course, my dx would have been 'stroke' or 'heart attack', as this sickcare system is not very bright if you ask me.
I have to look into those though - those are two supplements I have not investigated yet. Honestly, I'm hoping just malarone or mepron will unclog me. Unfortunately, it's taking forever to be approved. If it's not approved, I don't know what I'm going to do.
IP: Logged |
tailz
Unregistered
posted
I'm looking at the Rechts Regulat - fify some dollars?
I'm also worried because I have allergies to certain foods in it - like peas, onions, most fruits...
Why don't you get some lumbrokinase then? No soy there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
tailz
Unregistered
posted
Marnie - I read that one article - ha ha! I was actually on Wellbutrin, but it made me anxious and hyper - I only lasted like 4 days on it. I'm not sure if it increased my sex drive. I had no boyfriend, and I was too manic to think about sex.
But I get a WICKED reaction to cinammon and can't take it. See, at one point (before I knew I had Lyme) I thought I had diabetes because my symptoms would go through the roof after I'd eat and I wasn't sure if it was my blood sugar. So I read that cinammon was good for diabetes and tried it. I'm allergic to it now.
In fact, my blood sugar was a little high at my last appointment and I hadn't eaten - I only drank that morning.
My doc also wanted to put me on Synthroid because my thyroid is a little low - he said it is only working on 5 out of 8 cylinders. I'm afraid to take it though.
I read the Viagra article, too - this cracked me up;)...
"Dr. Boolel said that he and his team were continuing their research. But he said the researchers were changing their focus from a woman's genitals to her head. The brain is the crucial sexual organ in women, he said."
It's interesting - I actually had very low testosterone levels while on Paxil, and my GYN put me on testosterone. Within just a couple of days, my drive and ability were back. Unfortunately, within a matter of a couple of months, my testosterone levels went from a low of like 16 to a whopping 706! That's more than most men have. lol I found this out only because I noticed I was growing a cute little mustache. Needless to say, I stopped it.
Now I seem to be backwards though - I have desire in my head, but my body isn't cooperating. I don't think it's low testosterone though, simply because I have pretty decent muscle tone again. I had withered away to skin and bones and dropped to 88 lbs at one point.
I did see copper magnetic bracelets at The New Age Shop. I haven't been there recently, but as soon as I picked one up, I felt sick - I felt metals being pulled into my hand and it freaked me out. Maybe I should try that though now since I've detoxed? I've thought of trying magnets alone, too.
Lumbrokinase? Holy cow - it comes from earthworms. Hmmm? Did you try this one, Lymetoo?
IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
tailz,
I've tried viagra. It did help my body jumpstart, but it did nothing for me mentally.
Lyme has basically destroyed my libido.
Sometimes I take viagra just to have something going on. It does work, though I get a wicked headache from it.
Not sure this is helpful, but I thought I'd pass along my experience!
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
tailz
Unregistered
posted
I'm thinking there are other infections going on. I'm pretty sure babs, or even malaria, is one of them. But I wouldn't doubt we all have all of them.
If we kill all infections, won't it all come back?
I kind of guessed though that Viagra was another bandaide approach. This stinks. Thanks though. I don't think I'd try Viagra anyway - I was getting dizzy spells again today.
IP: Logged |
tailz
Unregistered
posted
Salicylates are my problem - I can't tolerate any blood-thinning foods - cinammon is just one of them. Check this out:
I can't comprehend this tonight though to figure out my vitamin K, B6, etc...
IP: Logged |
JimBoB
Unregistered
posted
quote:Originally posted by tailz: What do I do if soy makes me sick though?
I read that garlic thins your blood, but I get a wicked reaction to that one, too.
Are my blood vessels forever hopelessly clogged?
I still think if they'd get rid of cell phones and wireless my body would get the right 'signals'.
YOU need to get rid of the cell phones, not THEY. Yes, they are bad for you. I have never had a cell phone, and never will. jim. ###
IP: Logged |
JimBoB
Unregistered
posted
NOW down to the nitty gritty, Tailz.
You certainly do NOT want to try Viagra with all YOUR problems. NONE of those pills are "good" for people with Lyme and/or co-infections.
I have tried them all, plus Yohimbe and Yohimbine. Plus I have invented an appliance that WORKS (for men), AND am writing a book that I hope to sell on ebay soon. Won't tell you any details of it, as I am not here to solicit anything.
BuT I will tell you that Viagra did very little for me when I used it BEFORE I had Lyme. I had five pills of it in 1996, and a couple of them worked, but the others only gave me really bad side effects.
I tried Cialis, after I got Lyme, and IT did absolutly nothing for me, except for the bad side effects.
I also tried Levitra, since getting Lyme, and mostly just got the side effects the second time I used it, which was about two months ago. When I tried it a couple of years ago, I did get some help in the erection department, but I did not like the side effects at all. Felt terrible.
Yohimbe made me feel really wierd when taking it, and did nothing in the erection department.
Yohimbine, is the only pill that helps me SOME. It works fairly well IF I use an appliance I invented also. I take the pill about 45 minutes before I want to have an orgasm. One GOOD thing about Yohimbine, is, it is cheap.
I get 100 pills of generic Yohimbine at K-Mart pharmacy for only $16.99. They used to be only $14.99 for 100, then went up to $27.99, but recently they only charged me $16.99. Don't know what is happening there.
You can take UP to three pills a day. BUT I wouldn't. You can get headaches from them also. I used to take one everyday whether having sex or not, but then I just took one before sex. Which was probably 2 or 3 times a week.
I would ask my doctor about it, since you have to have a prescription for it anyway. There are pills just for women too. Also, herbs designed just for women's libidos. I tried sex herbs and found they did little or nothing for ME. But each one is different.
posted
Jim, but I don't HAVE a cell phone. My daughter has one and I've practically begged her to trash it. She doesn't live with me anymore though. It's the cell phone towers that are driving me crazy anyway, and I can only avoid them so much without leaving this planet.
I haven't heard of Yohimbine. And what is this 'appliance'? I'm trying to get away from EMFs. I hope it's not something we all need to plug in because I honestly think women are more affected by these EMFs than men are. Seriously, when I was infusing, all the women looked like they'd been hit by a truck - I looked like I'd been hit by 12 trucks - and the men just sat there calmly reading the paper.
IP: Logged |
posted
AnnXYZ - hmmm? We need to come up with something here for JimBob. Any ideas? lol
Actually, since I started this thread, I kind of want it named after me;) I'll even test it out for JimBob. lol
IP: Logged |
JimBoB
Unregistered
posted
Sorry, girls, but YOU can't test it out. It is FOR men, and is mechanical, not chemical. The Yohimbine is chemical.
IT is an extract from the Yohimbe. IT works better for me than the whole Yohimbe bark does. But even it in itself is not enough for me MOST of the time these days.
This is because of not only from the Lyme, but because of losing my complete colon and half of my sphinctre muscle. But all this works for ED for other reasons also. NOT if someone is totally "dead", but for those who can't MAINTAIN an erection.
No, no name for it. I do have a name for the book/CD though. BUT I will be marketing it under a different name than my own. I live in an area that everybody knows everyone. So I have picked a name for myself that noone else in the world has. At least according to Google.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Tailz,
I have had this problem off and on with Lyme.
My biggest problem is interest.....I have none.
I am on armour thyroid (15mg) a day.
I don't see or notice any side effects from that other than my hair isn't falling out anymore,
My voice isn't as deep and my fingernails are finally starting to grow again.
It didn't perk my interest in the sex department though.
That is not to say that my husband and I don't continue to have personal relations,
It is just that this is the last thing on my mind.
Hopefully as you progress with treatment, the culmination will follow too.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Tailz, I don';t have any documentation to back this up but I have noticed that Babs makes people very sexual!!!! I really believe this!! I have no documentation!!! But I would wonder re Babs if this was me!!! (And it was*)!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
tailz
Unregistered
posted
JimBob - well, why don't you make a mechanical thing for women then? That's no fun. And when you do, it gets named after me;)
Geneal - so my thyroid probably is low too then. My hair falls out and my fingernails hardly grow at all. I'm supposed to take Synthroid, but I'm scared of it. I even tried taking kelp - but holy cow, I feel sick when I take that. I'm not sure if it's the iodine or some other ingredient in kelp though.
I'm wondering if my thyroid is slightly low because I keep sweating my 'iodized' salt out. I notice I sweat more than any other human I've seen.
CaliforniaLyme - I've wondered if one of these bugs strums on the sex hormones myself. I have this theory that it hangs out in that very area of the brain, perhaps because it needs to regulate an environment that is conducive to its own reproductive cycle.
Hmmm - then maybe I don't want to get rid of babs. lol No - I have to. Very few guys would ever be able to go this long. lol
IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Tailz,
See about armour thyroid. I only take 15mg a day.
About the staying power.....you must be every man's dream come true.
Send me some of that stuff.
BTW, I have babs and definitely don't feel sexy.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
tailz
Unregistered
posted
Geneal - every man's dream come true? - hardly. What man wants to go at it this long? - most of the ones I've been with are done in a blink.
You should feel sexy though with babs - it's just kind of useless because the body doesn't follow suit. lol
I'll check on that thyroid supplement. Thanks!
IP: Logged |
butchieboo
Unregistered
posted
Oh I don't know...maybe it's the company they're keeping. Perhaps they sense your dislike of all of they're gender...
I'm sure your sunny disposition only attracts the kind of men who...Get on; Get in; Get off; and Get out...as fast as they can! LOL BB
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Tailz,
Thanks to babesia I have lost over 29lbs, and two cup sizes for my bra.
I feel about as sexy as a stick.
Of course the poison ivy covering my body isn't a great motivator either.
I am sure you are a dream come true for someone special.
Just like you.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
tailz
Unregistered
posted
You know, BB - you COULD be right, only I've found them to be that way my entire life, and my attitude is only relatively new.
Surely you understand the psychology of cause and effect, right? Man is a jerk to me - THEN I decide I abhor him.
Is there something wrong with that sequence? Maybe you can help me in this post, since you couldn't seem to in my other post.
And I'm sure I'm not alone here on this forum in my experience with guys who seem to be in some kind of a hurry either, though I appreciate your making me feel kind of 'special' here.
Geneal - I've heard babs can cause weight loss, and I'm sure you are one sexy stick. By the way, I was only ever an A cup - and in recent years, I have even disappointed an 'almost A'.
But I don't think with me it's a matter of feeling attractive to the opposite sex - or sexy.
I think with me it just boils down to body parts that refuse to respond to my brain's romantic intentions. I sure hope my nerves didn't die down there, because that would just be brutal.
IP: Logged |
posted
Several months ago, my LLMD starting ordering some in- depth heart testing. She said that if her concerns were correct that the medicine "fix" would be Viagra.
As it turned out I had some of the tests done and then received my letter from Novartis pulling Zelnorm due to possible heart complications. I didn't have the rest of testing done, just stopped taking zelnorm.
elle
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
| IP: Logged |
tailz
Unregistered
posted
I think I read something about Viagra being a potential cure for Lyme. Is that what you're saying? If that's the case, it could be why it seems more women come down with the chronic form, because we aren't given it. Then again, I'm not sure.
I'm not sure what Zelnorm does either, so maybe I should shut up. lol My brain is not working at the moment.
IP: Logged |
butchieboo
Unregistered
posted
No Tailz,
I can't help you. A person has to really want and need help to get help.
Instead, you seem to me, to be here for a different purpose. One that truly reveals just how sick you are.
Did you read steere's press release book and commit it to memory, or are you it's author.
In any case, you give a prime example of all the stereotypes the steere doctors use to explain away chronic lyme disease.
By attacking the patients.
Shame on you. I will SOB your posts in the future. BB
IP: Logged |
tailz
Unregistered
posted
BB - Better reread my posts. In no way did I explain away chronic Lyme Disease, nor did I attack any patients.
In fact, I have posts on here about how I think EMFs are behind chronic Lyme and are the reason why it is so perseverant.
Did you forget that I have chronic Lyme and I myself am a patient?
I defend myself against you, but that hardly constitutes 'attack'. I don't know what your problem is with me - I bit my tongue once with you, but you obviously feel threatened.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Cool]](cool.gif)
![[tsk]](graemlins/tsk.gif)
Printer-friendly view of this topic