posted
So true. I have no faith in our 'modern' medicine. After 23 doctors failing to help me, and the fact it was me who figured out what was wrong with me...
There is something seriously wrong with medicine today.
Tick born illness can strike anyone at any time, and yet there is NO RESEARCH BEING DONE?!?
Tons and tons of donated money goes to aids research and we have bairly any information on Lyme and other tick born illness.
I donated blood in 12th grade when my doctors were convinced i had R. Arthritis.
My blood was then devided and givin to 2 different people, one of which was a cancer patient.
The reason why HIV and AIDS becamse so known was because people were very afraid they could get it, and with blood transfusions.
The SAME STORY aplies to lyme, but for some reason no one will let people know this!
AH!HH~H What is wrong with the world!?!? Why on earth is this a problem?!
posted
I, too, had diagnosed my own Lyme, and my records are littered with things like patient suffers from 'psychosomatic tendencies' due to her poor self esteem or accusations of 'doctor-hopping' - they were assuming I was 'hopping' in search of more Klonopin, and I was NOT. I 'hopped' only because I needed antibiotics and thought I had some sort of recurring infection - not something chronic.
One doctor used a word in my records, and I forget what it was now, but it meant 'no expression - emotionless'. Why show emotion? My feelings mattered even less than my health apparently.
Basically, I should be dead by now. I was treated for depression and anxiety for a decade before other symptoms became more pronounced. Prior to that I'd been on long term antibiotics for acne - the very ones used to treat Lyme and coinfections.
Enlarged lymphs in my groin? Go to a GI doc.
Sore joints? Go to a rheumatologist.
Pelvic pain? Go to a GYN.
Allergies? Go to an allergist.
Sinuses? Go to an ENT.
Tremors? Go to a neurologist.
I remember sitting there just last summer - weak, all bones, shaking, my face all sucked in and drooping, covered in smelly sweat, anxiety through the roof, in menopause at 42, my gums dissolving on me - telling the doc that this ALL started with enlarged lymphs in my groin and now she was sending me to another neurologist, rheumatologist, ENT, and now a periodontist?
She wrote in my records, "Patient looks older than her stated age." And I did. In fact, I looked so darn feeble that people at the grocery store were asking me if I needed help carrying my bags to the car at 42?! There were nights I didn't think I would wake up with how my heart was beating - and the dizzy spells and breathing problems - holy cow.
I sat in an ER numerous times last summer and listened to docs discharge at least 2 other women with 'anxiety attacks'. I wanted to burst through the curtain and grab that doctor by throat.
My neighbor saw me out one day and approached me saying that I looked thin when I first moved in - but what was going on now?
I could not figure out why complete strangers noticed the urgency of the situation, yet all of my doctors just sat back with a smirk on their UGLY faces while I suffered, telling me that there was nothing wrong with me - hee hee - it's all on my head.
I am ALIVE today - but no thanks to them. Even one I had some amount of faith in - well, my forgiveness doesn't seem all too important to him, and I've yet to see him listed as an LLMD.
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
good post,
Tailz- you sound so much like me.
my coworkers were the first to notice the weight loss......they were fearful i was dying and they meant it.
Dr smirked at me too, and one kissed me on the head and told me i was a good Italian.
by luck i asked for a thyroid test and one dr ran what i asked and one of the numbers was low. I was put on armour and i really think it helped me get back on track.
3 months after starting i was gaining weight, got my period back, temps are normal. I now dont have to wear a blanket in the grocery store.
Modern medecine is where we treat the symptoms so we dont have to think about the cause.
posted
Yep, and what gets me is the family and friends who can't seem to understand why we have no faith in modern medicine....when they wouldn't put up with that from a mechanic working on their car.
posted
Tincup posted March 8, 2005, Lyme Disease Survey Responses,
FINAL RESULTS shown below! February 27, 2005 - March 9, 2005
1. How many doctors did you have to see before being properly diagnosed? 112 responses Average number of doctors consulted before being diagnosed - 14 Answers ranged from 1- 120 different doctors
2. Have you had problems getting insurance to pay for doctors or treatment? 87 responses? Yes- 63 No- 24
3. Have you lost income because of Lyme disease? 106 responses Yes- 99 No- 7
4. How much does it cost you (average) per month for Lyme related expenses? 61 responded Average cost per month per patient- $4,472.49 Low- $500.00 High- $21,492.00
5. How many different medications do you take per day? 77 responded Average - 14 different medications per day Low- 3 High- 25
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tailz
Unregistered
posted
Those stats are just too scary. I just want my life back.
I've thought of sending all these docs copies of my positive test results, but somehow, I don't think it would enlighten them. I highly doubt they'd suddenly start testing over half their patient load for Lyme.
And there are at least a few that I hope remain clueless - at least until they end up with chronic Lyme so they can feel what it's like. Mostly, the ones who laughed at me.
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I think most of the problem lies in the politics of modern medicine not in the science or in science's fully realized potential to help suffering patients...
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