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» LymeNet Flash » Questions and Discussion » Medical Questions » Person in our area with ALS in a bad way.

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Author Topic: Person in our area with ALS in a bad way.
kimoo1
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Member # 7107

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Does anyone know who I can talk to, to get this person some help. We live in the upstate New York. I have gone to Dr. H. but not sure if he could help him? I don't want to give these people false hope but any help would be great. Thanks Kim
Posts: 14 | From Fort Ann N.Y. Washington | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

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Send them to your LLMD let him sort it out.
Theres alot of people that are bdiagnosed wrongly with als when its lyme and coinfections.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
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If the person is very advanced with ALS the chances of recovery are very, very low.

Almost everyone I know who has recovered from ALS was treated for Babesiosis as well- and the over-the-counter homeopathic pill Ledum has been helpful for some- and IV Rocephin or IM Bicillin-

Orals can speed ALS people up and make them die faster.

Doc L says one of 7 survive. Locally we have had 3 of 4 but they were caught right away.

Limb onset is better prognosis than bulbar onset.

I know a lot about it if they want to call me -
Even with help there is only a chance- but there is a chance and some people are responsive and go back to good lives-
Best wishes,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
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Als story Link

Als story Link 2

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
   

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