quote:Originally posted by Geneal: False negatives are very common in Lyme disease.
If you are able to afford a Western Blot through Igenex in Ca.
That would probably be your best bet.
I second that!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I don't know if your doc will treat you but finding a Lyme doc would be cheaper in the long run probably than getting tested and tested for the coinfections- because even if your doc DOES treat because of a screwed up group called the IDSA the treatment guidelines for chronic Lyme are only for a monht of abx!!! So your doc may follow those guidelines- in which case even with tx you would be in trouble!!!
Since you know you had Lyme already I wouldn't bother with a Lyme WB because all that will do is show you had it once already- ALSO because of teh Kettle Forest strain in Wisconsin- you have a large strain of Lyme in WI which tests negative on standard tests even those from Igenex- but re your title I would get tested for
Babesiosis HME & HGE Ehrlichiosis Bartonella
at Igenex but know that there are false negatives with those too!!! Mainly if I were you I would concentrate on finding a real good Lyme doc which will probably be hard to do where you are- many good wishes, another Olson, Sarah 1: J Med Entomol. 2005 May;42(3):457-72.Links Presence of Borrelia burgdorferi (Spirochaetales: Spirochaetaceae) in southern Kettle Moraine State Forest, Wisconsin, and characterization of strain W97F51.Caporale DA, Johnson CM, Millard BJ. Department of Biology, University of Wisconsin-Stevens Point, Stevens Point, WI 54481, USA.
Lyme disease, caused by Borrelia burgdorferi Johnson, Schmidt, Hyde, Steigerwalt & Brenner; babesiosis, caused by Babesia microti Franca; and human granulocytic ehrlichiosis, caused by Anaplasma phagocytophilum Bakken & Dumler have been reported in Wisconsin, mainly in the endemic areas of the northwestern part of the state. People exposed to blacklegged ticks, Ixodes scapularis Say, from this region can potentially contract one or all of these diseases concurrently. Within the past several years, there have been cases of Lyme disease reported from southeastern Wisconsin, an area that contains deer, mice, and similar vegetation found at regions with high endemicity. However, past white-tailed deer surveys suggested no existence of I. scapularis in southeastern Wisconsin. However, in 1996, we identified questing adult I. scapularis in the southernmost part of the Southern Kettle Moraine State Forest, Walworth County. To determine whether an established population of I. scapularis exists in this region, we performed a detailed survey of the abundance of host-seeking I. scapularis adults and the presence and abundance of subadults feeding on white-footed mice, Peromyscus leucopus Rafinesque. We also tested for possible infections of B. burgdorferi, Ba. microti, and A. phagocytophilum in ticks and B. burgdorferi harbored by mice. In 1997 and 1998, a total of 249 P. leucopus mice and 118 questing adult I. scapularis ticks, in addition to 157 larvae and seven nymphs feeding on mice, were collected and their locations were recorded from the Nordic trails of the Southern Kettle Moraine State Forest. Only one P. leucopus and its attached engorged I. scapularis nymph were infected with B. burgdorferi, whereas none of the engorged larvae attached to mice were infected. However, 4.2% of questing adult I. scapularis were infected with B. burgdorferi. The abundance of questing adult I. scapularis was 1.6 ticks per hour. The prevalence of subadult ticks on mice was 27%, with a mean intensity on infested mice of 2.0. I. scapularis adults were not infected with either Ba. microti or A. phagocytophilum. A unique strain of B. burgdorferi s.l. (W97F51) was discovered, showing 33 nucleotide substitutions and one codon insertion in a 567-bp fragment of the OspB gene, compared with Borrelia bissettii (strain Ca389). The sequences of ospA, ospB, ospC,fla, and rrs genes and the rrf-rrl intergenic spacer region were compared between W97F51 and other B. burgdorferi s.l. species. Although W97F51 was most genetically related to B. bissettii, the genetic identity of W97F51 was less than that of B. bissettii conspecifics. This study documents the existence of an established population of I. scapularis and the presence of B. burgdorferi with a novel strain in southeastern Wisconsin.
PMID: 15962800
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Your idea of having your GP work with you is good.
Dr. B's Guidelines might help.
It is a clinical dx so hopefully he or she can start you on abx.
While that is going on, I would work towards some how trying to come up with funds for a LLMD.
I know it sounds overwhelming, but hopefully it will work out.
I am not sure, but I think if your GP is willing. They can join ILADS and get answers to their questions or just read enough on the site to do their own homework.
Sounds silly I know. But, it would be just grand if more docs would do thier homework.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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