djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
im 24, and i guess im looking for some other younger people that have been struggling with visual brain fog for an extended period of time
ive had it since last november, and i know for a lot of you thats really not that long, but without one day of reality in the last 8 months its starting to really get to me.
besides not being able to work, its impossible to socialize as well. its a very lonely brainfog life.
the kind of brain fog i am talking about is less of a mental dysfuntion and more of a spacy blurry disconnected feeling.
if there are any other people (which i know there are) who have struggled with this and still are, please share if you would.
thanks everyone, and here's to all our continued healing.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Im 28 and have been getting this since I was 15 when I first got sick.
Its worse around mold, which I cant avoid so I always feel this way at home.
Its also worse after lots of stress or sugar.
Now Im thinking that I have a yeast problem along with the LYME.
You are not alone and yes it makes you feel depressed and out of it. Its like what Im looking at is blurry around the edges. As if im not processing color, shapes.. etc. Very disturbing.
So yes, this goes along with brain fog. Ive felt like ive been 80 years old for more years in my 20s then Ive felt like I was in my 20s.
F-d up.!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I want my life back!!!!!!!
People dont know how bad and out of it we feel. The worst comment that I get all the time is.
Oh but your so young. F U!
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Yes, I have felt this way for about a year now, sucks, its like im spaced out and everything is far away. bdizzle
Posts: 217 | From Everywhere | Registered: Nov 2006
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posted
I am 20 years old. I have had lyme for atleast 12 years, but only found out what was wrong with me 2 months ago.
I have suffered from what i could not describe as living in a fog, on and off most of my life.
When I was in 8th grade i had it VERY bad. It lasted 2 years of day in day out "i am in a fog".
I now have mental fog (confusion, inability to think) and i know the difference you are talking about.
Now, I rairly get the spaced out, dreamy ,foggy feeling anymore that i had become so use to in my past.
I understand how hard it is so socialize, or do just about anything while living in that sort of fog.
I now can tell when one of those kind of fogs is coming on, and what i do to control it is to become very mentaly active. That is also how i would get out of those fogs.
I Hype meself up, talk to myself, talk to others. Pretend to be hyper, force yourself to be constantly thinking, talking to yourself, keep active active active. Call your friends and force yourself. Concider it like a roll you would have to play as an actor.
For me, if i do this i can actually work myself out of the fog. It might work for you. IT is hard to do. But the more you do it, the easier it gets, and hopefully soon it will not be a problem for you.
I really really really hope you cen get through this. I know its so hard. Hang in there.
If you ever need anyone to talk to, my AIM is soltice57. And please personal message me, i can send you my phone number and you can call me anytime! You don't have to deal with this alone.
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
I'm 42 now, but have had brain fog on and off since I was 22.
Over the last four years I lost most of my friends because I couln't have a conversation.
Even though I thought I knew what I wanted to say, I couln't put sentences together or remember names of things.
Driving was scarey because I wasn't always sure where I was or where I was going.
Since starting treatment four months ago, the fog has mostly lifted. Now I just have a couple of hours a day on some days where I can't make sense of things as well as I would like to.
I'm sorry you are going through this. Congratulations on finding out what the problem is so you can get well!
I hope you find more folks in their 20's who can relate to your experience! Yes, they are out there!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
thanks guys.
nice to know theres more of me out there.
i am sorry for everyone's suffering.
hopefully it will all improve soon.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Hi, I am 22 years old and have been suffering from what you are describing for the last year (when I first got lyme). I know what you are talking about, its kind of hard to describe.
I am a college student and felt myself become more and more withdrawn from my friends because of this. It has made me spend less time with my friends over the past year and awkward in social situations.
I used to be very outgoing and loved meeting new people and now its hard for me to do. It is very hard to deal with ecspecially at a young age. If you ever want to chat send me a PM or you can IM me BananaNutBread00.
Hope this helped, Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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I was about to turn 29 when I became sick. My symptoms have been mainly neurological. I often have brain fog as well and the feeling that I cannot take in everything that's happening, particularly in busy, expansive surroundings. And then there's eye pain, facial pressure, pressure in my head, light sensitivity, and ear pain. I have had many consecutive weeks on oral antibiotics when I felt great, but I'm not considering IV antibiotics.
I wish you well!
Posts: 2 | From North Carolina | Registered: Oct 2006
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
everything you all mention is all too familiar.
lulu- i added you to my buddy list, ill IM you
sky, i added u too. thanks! your suggestio sounds interesting but i dont think i can physc myself out of this, getting excited makes it worse ;(
todd- you felt better on oral abx? which one/s?
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
I'm 27, Got lyme and Bart backpacking in Asia somewhere. Could have been Oz. Been sick for a year. Brain fog only really surfaced for me when I started abx in January. Had it on and off for last 4 months. Totally identify with LULU. I was king of the party scene...loved meeting new people. I had plans to travel south America next.....thats out the window for a while! I have become a bit of a recluse for the moment. I will re-surface into society in a few months when I get this licked. LLMD says no booze for 2 years. Irishmans worst nightmare!! I'm starting Buhners protacol next week. Hope I have some success. I'm getting better slowly but not able to go back to my job in Finance for a while yet. It does age you...but its not forever. My love to all you other twenty somethings going on 60
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
After bout 5 months of being sick I started have the FOG --
after about 10 years of being sick the FOG was thick -
Felt like I had just burned 2 Fat doobies of Kind bud - 24X7 -- Was not Fun
To keep my mind sharper I would do mental exercises- design something -
Yep- after awhile you tend not to be around people as much --
I went from being the life of the party to sitting in the corner --
and then just staying home -OuCH
When you go out dont drink - -- Not worth it - Jay --
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Its comforting to see that there are others out there that may be feeling the same way as me.
About a year ago I had a seizure. I believe that it was brought on from a night of partying, lack of sleep, and energy drinks, but am not sure.
3 days after the seizure the brain fog that has been mentioned, set in.
I feel like I can't concentrate, I get dizzy, ringing in ears and sometimes little spots in my vision.
It is a 24-7 problem. I don't know if I have LYME, but the doctor mentioned today that I get checked for it.
What I am asking is, has anyone out there had these symptoms, and is it common with LYME? Also is LYME cureable and how long does treatment usually last?
Any help or reply would be appreciated. I thank the person who started this post, as it has given me a little relief to see that I am not the only one to feel this way.
[ 17. July 2007, 12:05 PM: Message edited by: Rooshie31 ]
Posts: 2 | From Maine | Registered: Jul 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Brain fog for me is like living in a dream.
Everything is surreal. I can do things in this dream,
But none of it seems real.
The good news is that is not how I feel all the time anymore.
I still get episodes of it, but it is not a continous thing for me right now.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
I lived with brain fog for a couple of years. It was probably the worst, after the pain. Neural Therapy fixed it. That was in 1998. But now we have LED, which is very effective. Look into it. Search here for LED (Laser Energetic Detoxification) and check the Explore article on Scott's website www.BetterHealthGuy.com
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
What helped me with brain fog are detox foot patches (any variety), Buhner's herbal suggestions of Vincamine and Huperzine-A, and Japanese Knotweed. Siberian Gensing helps with the energy level.
Recent posts about QUIN toxicity apply, I think.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
hey guys-
i am still struggling with this and i was wondering if anyone else was able to find some relief somehow by now?
also is there anyone on here who has tried low dose naltrexone and have it help them at all?
thanks, hope everyone is feeling somewhat better
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
WOW...I am sorry there are so many of us out there, but now I don't feel so alone! I am 22 and have been sick about 4 years...on tx for 2 and a half years. The neuro issues are the worst! It is so hard because I definitely have a problem making and keeping friends becuase of the obivous reasons. I can only go to school part time now, so it is taking me forever to try to grad from college...and I am trying to work but it is tough! It is nice to know there are other young singles outs there like myself trying to enjoy life through the fog. I am searching for some tx protocals to help me through this...but since Dr B closed down thats a struggle too. If anyone want to chat please write...melodyssey@aol. (I haven't quite figured out this system yet to send PM's) Its a big deal for me to try to type coherantly!!
posted
Hi, I'm 33 yrs old and I've been dealing with Lymes + Co-Infection for about 15 yrs. or at least thats what my LMD figures. I have finally been diagnosed and being treated for Lymes + Co-Infection through IV going on almost a month now, but I do understand the "FOG". I try not to drive anywhere because I get lost. I try not to hold a conversation with anybody because eventually I end up making no sence at all and I end up talking about nothing at all at least nothing that makes sense anyways. I've been dealing with this for so long, that it's almost second nature. I used to be able to talk to people and I used to enjoy talking in the adult world, now my speech is so bad that I stammer on every word I say, I try not to speak to anybody anymore, unless I have to. When I do speak, most people finish my words or sentences for me because they get tired of waiting for me to finish my sentence's or word's. I don't socialize with friends, family, for that matter anybody anymore, I stay home, it's easier and safe! The only ones who really see me are my kids and my husband. But I Believe and feel even they get tired of listening to me talk, but they would never say. My "FOG" hasn't improved since I've started on my IV treatments, but I've been so sick this last month, I can't seem to tell which way is up or down. I have noticed that I do have good days and bad bays with my "Fog". I keep telling myself it will get better. But I figure You have to take the good with the bad,take 1 foot in front of the other and duck the blows when they come. As far as the "Fog" goes just take it one day at a time. On the bad days, just tell yourself there will be better days and when those days come cherish them and remember those days on your really rough days. sometimes that helps me, I have noticed that writing also helps. Just something to ponder! Take Care and keep your Chin Up!
[ 28. August 2007, 10:48 PM: Message edited by: Mom of 3 ]
-------------------- Best Friends Are The Siblings God Forgot To Give Us!! Posts: 24 | From Wabasha, Minnesota | Registered: Jul 2006
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
anyone find any relief from this yet?
if so how?
i had a 3 month break from the fog (about 60%) clear but its back...
praying for everyone
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
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