Have you had fatigue that bad? I have had that for weeks now. Have you found anything to help with it? Now I'm even too fatigued to type more...
BF
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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posted
Yes, I've known fatigue that bad. At my worst I found that talking exhausted me.
Try keeping blood sugars even by avoiding overly refined foods like fruit juice, cereals, granola bars, etc.
Hopefully you are not vegetarian. I found protein each meal helped me.
Have you ferritin checked -- ideal between 35-75. It's your iron stores.
You might check one of those saliva adrenal tests to see what your cortisols are doing.
Check your thyroid: TSH (want <2.00) and free T3 and free T4.
I hope you are under the care of a good integrative doc who can explore what may be going on? Good luck!
Posts: 211 | From NC | Registered: Dec 2005
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Yes actually I already ordered a saliva test (adrenals, thyroid, sex hormones) so hopefully that will tell something. My TSH was 2.6 the last time it was checked (blood test) and frees were pretty low.
I have a pretty good doc yes but even she is clueless...
Of course, this might have something to do with Biaxin that I just started yesterday.
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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posted
I dont think we have babesia in this country.
My only treatment is Biaxin at the moment, just started it. Plus many supplements.
quote:Originally posted by Lymetoo: Are you being treated for babesia? I would suspect that to be the culprit. Sorry you're so exhausted....been there.... and it's rough!
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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I've been in places of not being able to reach in for the words, the response....as I lay in bed and the voice of my partner was just an echo of a fade.
Completely energy less.
I think it was the brain inflammation at its worst.
I should count my lucky stars this part of the "fatigue" has improved with antibiotic treatment.
posted
I understand what you are talking about. Sometimes I will get so weak (suddenly!) that I can't ever think straight. I think it must be something akin to having a stroke...you can't get your thoughts (as disorganized as they are) to your mouth!
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
I've started addressing mitochondrial dysfunction, and it seems to be making a big difference with my energy level. This is the power center of the cells.
You might want to look at info on mitochondria, and supplements including:
CoQ10 Acetyl L-Carnitine D Ribose NADH B complex vitamins
Good luck.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Years before my Lyme dx I experienced this and was helped when I was treated for dysautonomia.
I recently tested positive for Babs and will be interested to see if my treatment, which I just started, helps this area of my health. It would be great news if it did because it's the most physically disabling problem I have.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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quote:Originally posted by bejoy: I've started addressing mitochondrial dysfunction, and it seems to be making a big difference with my energy level. This is the power center of the cells.
You might want to look at info on mitochondria, and supplements including:
CoQ10 Acetyl L-Carnitine D Ribose NADH B complex vitamins
Good luck.
Interesting. I might try those. How big doses are you using?
-------------------- Please dont suggest "ask your LLMD" because we dont have them here in this country... I just have to count on you fellow patients. Posts: 246 | From Finland | Registered: Dec 2006
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
Here's a recent thread with a couple of links to good articles.
There are some good research articles on CoQ10 and Parkinsons floating around out there. As I recall, they recommend up to 2400mg daily. I've been taking 1400 daily for the past five days, and I notice a big difference(but the stuff is really pricey.)
I'm not sure my amounts are going to give you a good base line or starting point, as I am still experimenting. You could ask others if you post a new thread.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
At my worst, talking, listening, typing and watching TV, all made me mentally exhausted.
It lasted for a month or so.
With abx treatment, it's gone for a while.
Posts: 1078 | From Fairland | Registered: Apr 2006
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Has this become worse since starting Biaxin? IF so, you may be herxing.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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posted
Yes, I get this when herxing. My dr came me similar herbs as Bejoy posted above. I am doing better now.
Posts: 368 | From freehold, nj | Registered: May 2007
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