merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Hi everyone. I hope that you are feeling well today.
I have been on plaquenil and Biaxin for 3 days. No Herx yet. I just feel tired, but not too bad.
I am just curious when others have herxed on this combo? I want to Herx so I know it is working, but at the same time I do not want to suffer, but you know what I mean!
Everyone keeps telling how great I look, and "You look so much better".
I want to be better really, but I guess a herx would be proof you know?
charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
you may not have any negative effects....the pill that got me dramatically better within hours, Bactrim, didn't cause me to herx at all...
Posts: 2804 | From Texas | Registered: Oct 2000
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
August 4, 2007.
Just kidding!! I have no idea. Like Charlie said, you may not Herx at all. I Herxed on some abx and not on others. When I was really bad I never Herxed on orals because my bacterial load was too high but after I got better on IV I did!!
I always got glad when I was Herxing, the worse the better, because I knew I would get that much better. I always feel bad for people who back off of Herxes because they are the price for the payment of better health for many of us... So I hope you either get better like Charlie w/o herxing or that you have a horrible nasty Herx (because it will bring you that much betterness*)!*)!!!!!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Cobweb
Unregistered
posted
My LLMD says not everyone has a Herx reaction-in fact only about 38%.
So herxing is not an automatic given with treatment.
The usefullness of keeping symptom charts was brought home to me though when I wound in hospital ER, thinking I was going to die of either heart failure or stroke.
ER doc consulted with LLMD. After bloodwork came back negative for both, the LLMD said it was possible herx reaction because the last month at same time I crashed,too.-Just not so hard I guess.
Anyway I got to go home, whew, inspite of skeptic ER doc who wanted to keep me for further observation and testing.
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
It would be great to just get better!
My Joints feel pretty good since starting the regimin.
Maybe I do not have too many bugs due to the IV roephin for 3.5 weeks and 2.5 weeks of Doxy before that. I did herx on day 3 of doxy and again 1 week later. No herx on IV.
Maybe that is wishful thinking since I couldnt walk Sunday night.
Time will tell I am sure.
I will probably post a crazy messsage about I cant take this anymore soon! Lol. Melissa
Posts: 3905 | From USA | Registered: May 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Today is day 4 and I just feel a bit better, still tired and a bit sore and a couple bad boughts of nausea.
maybe I will be lucky and not herx. If you do not Herx does it mean the meds are still working?
I contacted my LLMD about something else and mentioned the not herxing, he didnt seem concerned, and just to keep updating him.
I have been keeping a diary of all my temps and symptoms since my first hospitalization.
Posts: 3905 | From USA | Registered: May 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Melissa,
Nausea, being sore and tired can be a herx....
Maybe just a very tolerable one.
I think I herxed on biaxin around day 5....and again on/around 30 days.
It could be the dosages....how much are you on?
I am hoping you just keep doing better....without a major herx.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I am on 500 mg Biaxin twice a day and 200 mg Plaquenil twice a day.
I guess I am comparing this to my doxy herx where I was in the fetal position sobbing and waiting to die on day 3.
As long as the meds are working No herx would be fine with me.
I have been dealing with bad nausea for a few weeks now and isnt really new.
My temps are down to 100!! Woo hoo.
Posts: 3905 | From USA | Registered: May 2007
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cootiegirl
Frequent Contributor (1K+ posts)
Member # 3216
posted
Hi. Everyone is so different in how they respond to meds and what their bacterial load is. I've been sick for 6 years and have been treated for lyme, babs and bart. I've been on numerous oral combos and have never herxed. I'm one of the 'resident herx virgins'. I have continued to feel better over time. It's not the same kind of improvement that you see with a lesser bacterial infection but it's over the years that I have seen steady improvement.
I think too that herxes can run the gamut - meaning that some folks get really sick, while others might just feel a little 'off'. One of my lyme kids would feel lousy about once a month or so, while the other one would get a cold every three weeks like clockwork. I see both of these as herxes.
So just keep track of your progress and don't be disappointed if you don't herx! cootiegirl
Posts: 1728 | From New York State | Registered: Oct 2002
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi merry girl
When I was on IV I didn't start to herx till week 2. All hello broke loose on week 3.
Everyone seems so different in the herxing department & some times it's also a matter of finding a combo that targets your particular strain. But try to be patient, only time will tell.
hang in there Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Hi Merrygirl! I'm actually the one you met at the doctor's office. We are on the same treatment and my experience thus far has been a little odd. I was on the doxy for about a month and 2 week into it I felt my worse. Around week 3 I started turning a corner.
You and I started on the Biaxin/plaq on the same day. My experience thus far has been odd. Monday/Tuesday felt decent. Wednesday morning was awful, Thursday good and today I feel very weak and a bit of nausea. Not sure what is the Lyme, Herx or medication.
Would like to keep in touch since we share the same doctor and started the same treatment plan on the same day.
Hang in there and enjoy your better days. I'm with you though, I find the weight of "when am I going to Herx and how bad will it be" unsettling.
Posts: 561 | From mass | Registered: Jul 2007
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Plaquenil can reduce joint pain. So it's possible that you are herxing and the Plaquenil is moderating the effects.
Give it time. Most LLMDs don't want to change abx for at least a month unless there is a bad reaction.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
HI KS! I am so glad we got connected on here!! I wanted to ask you your screen name but I thought maybe a bit inapropriate!
I actually had a good day Tuesday. Then I am just tired. I was thinking that the Plaquenil maybe helping me feel better and that is why there is no Hex yet.
I think it would be great to keep in touch as you said!
I have prepared my family for the worse. I have had 2 bad herx on Doxy and they were terrible.
I think that my family would find it odd for me to feel bad 3 weeks into it.
I did email our doc to let him know about my normal MRi and just let him know no herx. He didnt think it was odd.
So YES definitely stay in touch. It is nice to know we are doing this at the same time. Please Pm me anytime. I am going to PM you my email address.
Good Luck to you!!! Melissa
Posts: 3905 | From USA | Registered: May 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
A herx is caused by a build up of debri from dead bugs. Maybe your bacterial load is down enough that your body is able to keep up with the die off now? Or, maybe you have beefed up your detox regimen? Or, maybe you are hitting different bugs with this combo than you were with the last? I think doxy can hit some strains of bart.
Perhaps your body is very good at getting rid of debri, unlike mine. I seem to be in one continous herx.
Please let us know how you do as your treatment progresses.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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