posted
Thought I would throw this out there. I understand that Oprah is considering doing a show on Lyme Disease. If anyone is interested in encouraging her, giving her information, or possibly being on the show, you may use the adress below to contact her. If the link does not connect, just copy and paste to "search."
posted
I wrote Ophra shortly after I was diagnoised with Lyme to ask her why she's never done a show and whether or not she'd consider doing one. I wrote a NOVAL to her, so I am glad to see that perhaps she might consider it. There must be alot of inqueries
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
just e-mailed
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
If she actually does a show on Lyme, I'll fall out of my chair!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
tutu, we don't have to catch you when you fall out of your chair, right?
if we're going to get it done, i feel the time is right that WE WILL ACCOMPLISH IT with all the letters written, etc. and her MODERATOR NO. 5 has been reading them and correcting anyone wrong!
do you believe in snake eyes/gambling? we're on a roll .... we want a CHRONIC LYME SHOW .... 2-3 PARTS since it emcompasses so much! doesn't hurt to wish, does it?
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posted
Its more important than ever that we get the right kind of Lyme show. Something that explains that it is a chronic, debilitating condition on par with many other diseases and that there's not enough research being done. Have a doctor explain why the IDSA is a failure in this case. We can't afford to look like crazy hypochondriacs. There are a ton of people to whom Oprah's word is as good as law, and if she does a show it can't send the wrong, or incomplete message. If it does, it will set back understanding and funding for research of this condition for years.
Posts: 691 | From East coast, USA | Registered: Jun 2006
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
3. Post our stories on Oprah.com Lyme support group board
There is a post from Oprah staff member within the Lyme board confirming that the health support boards are by and for members, so by posting our stories we're not actually contacting Oprah's staff directly. But hopefully with enough stories on there it will help us get maximum attention.
(This is where it's located on the website: O Groups > Support Groups > Health Support Groups > The Agony of Lyme Disease !!! )
Also There are a bunch of other options on this page, and you can request email notices for shows on topics you're interested in, such as Medical or Health & Fitness. http://www.oprah.com/email/email_landing.jhtml
I am going to do the "email the producers" then tell them which story is mine on the support board so they can read all the miserable details!
Every little bit helps!
Posts: 227 | From South of the North Pole | Registered: Jan 2007
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posted
We're at 146 posts now, the most recent one being from Chicago. I've always wanted some folks to post from the Chicago area, since that is where Oprah is located.
I'd like to see the show include longterm patients, plus kids, and Lyme-treating doctors and vets. And Lymetoo can demonstrate balance problems when she falls out of her chair...
posted
robin, you beat me to it; 146 stories as you mentioned since 131 over the weekend when i went in a little.
i too was impressed LAURIE, CHICAGO, posted; we've got many folks in Chicago and local areas surrounding!
I'd love to be on the show; how about you tutu with your balance problems; cute ROBIN!!
we've got to keep the momentum going with Dr. C in Missouri's charges being dismissed/he won!
IF THE SHOW "HAPPENS", perhaps it could be another way nationally/internally to fundraise for Dr. Crist and other LLMDS currently being investigated! I know I got the cart ahead of the HORSE again, but we're thinking of plans B-Z rght!!
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