posted
I've been treating Lyme and Babs for 2+ years. When things are going along quietly, not too many problems.
But when something happens that kicks in your emotions (my mother has Alzeimers and she had a melt down).
As soon as my nervous system kicked in, I started to have my own melt down, tremors so bad I couldn't hold a glass of water, recently a police car was behind me (I wasn't speeding) and I had another melt down. I ould barely continue driving. Is this damage from the Lyme or Babs? Is there anything I can do for it. It's very nerve wracking...literally. Any thoughts?
Posts: 69 | Registered: Jun 2005
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butchieboo
Unregistered
posted
For a time not too long ago I had similar confidence issues. Like, "Black and White Fever". You're so insecure that you're afraid you're going to make the wrong move...and you "FREEZE".
This will pass with time, and treatment.
I can't say when or which abx it was per sey that stopped this particular personality glich. All I know is, all of a sudden I was'nt nervous about decision making any longe.
It may have something to do with seretonin levels. Which lyme can screw up. So, I got on lexapro, which is an SSRI, and a lot of those panick issues dispersed.
Believe me...I don't like psychotropic drugs. The ones previously tried on me made my symptoms worse. So I was fairly skeptic about trying another. But this one, at least for me, worked fine. Whereas, wellbutrin,prozak,buspars,klonopin,...etc did not work well and sometimes made me worse.
It's that difference in all of us added to the different strains of lyme affecting us all just a little bit differently. Due,at least in part,because of our own unique genetic makeup!
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I don't know what it is from Nancy but I had terrible trembling, shaking, and panic attacks, too, and just being so emotionally screwed up from being so sick- and going to a therapist REALLY helped me for about a year when I was really bad or actually coming out of being really bad and going into being really bad- when I was really really REALLY bad I didn't leave the house anymore-
ANYWAY, it helped. Your local support group probably can refer you to a LL therapist- but you should talk about this with your LLMD too because psyche stuff can be all symptoms, too!! Especially if there are nervous symptoms manifestations like trembles/shakes!!!!
Check out meds as always to make sure not side effects-!!!
Hope you feel better soon. Sincerely,
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Hi Nancy,
Those are exactly the symptoms I get when my cortisol drops too low. Crying, shaking, mental overwhelm, and an inability to pull myself back together, no matter how I try to talk myself back down.
Complete emotional and physical meltdown way beyond what a stressful situation warrants.
Symptoms go away entirely in about 10 minutes when I take my Cortef (low dose cortisol replacement).
An easy test to see if your cortisol is low is to lay down for ten minutes and take your blood pressure. Then stand up quickly and take your blood pressure several times over the next ten minutes.
Your blood pressure should go up to pump the blood back up to your head. If it stays the same or keeps going down, then your cortisol is low.
You can also check in a mirror in a darkened room with a flashlight to see if your eyes are equal and reacive to light. If not, this also can indicate cortisol problems.
YOur doctor can order a saliva test to measure your cortisol levels. (This is better than the blood test.)
Cortisol is produced in the adrenals. Adrenal hormone production often gets compromised for a variety of reason with lyme.
If this is the case with you, then chances are you also have low levels of reproductive hormones as well, which can cause PMS and a variety of other symptoms.
This can be aleviated with natural hormone replacement therapy. (Not the same as the notoriously dangerous pharmaceutical synthetics.)
Adrenal function comes back to normal for many people after good lyme treatment.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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tailz
Unregistered
posted
Therapy didn't help me at all. Neither did meds eventually. Oh my God would I get the shakes so bad when my ex lost his temper.
Though I knew I should be a little shaky, I would sit outside on the back step and try to keep my knees from jumping - which proved to be impossible.
My ex, by the way, does not believe me that he has bugs, but just had a brain tumor removed, and my daughter reports he's been more mellow and emotional. So after this, I will question psychotherapy and antidepressants both as a long term treatment option for anybody.
I have experienced similar to what you describe also - with police cars and 'close calls' as far as accidents are concerned. I get an AMAZING panic attack going down the slightest inclines, too - in fact, the only med to take this away has been Klonopin - which I refuse. I was PAINFULLY shy at one time, also.
My guess is you are toxic with metals, like I believe I am, since my tongue is turning black on minocycline. I have had to avoid all high iron and copper foods because, until I get rid of these metals, I believe cell phones and wireless are causing me to conduct.
I don't know that this will be possible though. The author of 'Cross Currents' has shown that even the 60 hz signals generated by typical house current are causing metals to redistribute in key organs such as the brain - they are also causing these bugs to cross the blood-brain barrier. He sites many studies that show just this, but there has been plenty of denial since the repercussions of this would devastate our economy.
So you may want to check out www.antennasearch.com. I do not think we will ever get rid of these bugs until we turn off these signals that appear to be conducive to their survival and not ours.
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I've been on IV treatment for lyme and bartonella. I take xanax .50 or a half when
things feel like this. I'm not an addict, nor do I intend to become one, but there are times,
when I feel like I'm mentally jumping out of my skin with treatment. I'm pretty sure I've had
lyme for 15+ years, and since I've started treatment, feelings like this have been
intense. I do not depend on the xanax, but I do have a psychiatrist that monitors what I take.
It doesn't agree with everyone, so what is good for me might not be good for you.
It's a disease that affects both mind and body.
Hope you get relief soon. I all too well know those feelings.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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tailz
Unregistered
posted
Klonopin helped, but I won't take the Klonopin for one reason and one reason only.
Whether or not you are a drug addict, if you ever happen to fall upon a doctor who thinks you are a drug 'dependent' - meaning PHYSICALLY dependent on the medication - you WILL be treated essentially like a self-induced drug 'addict'.
To find out my drug 'dependence' turned out to be undiagnosed systemic infection made my Lyme nightmare even more hellish.
I also caution everyone who agrees to take psychotropic meds, especially women, that someone with inside information very readily informed me that, once you confess to any person in the
medical field that you are on such medications, and God forbid physically dependent on one, you are automatically labeled and this will follow you via your medical record to your grave.
I saw it happen with my own two eyes, but even then, I really wanted to hold on to the fantasy that my doctors really cared about me enough to not lump in with others perhaps who did abuse this medication.
I don't know how many of you ever requested your entire medical record, but there is a reason why when you change doctors, they always mail the records directly to the other doctor, bypassing you.
To give you an example, if you break up with your boyfriend and happen to mention it to your doctor at one visit, you may find it in your record, though most likely the 'retell' will be wrought with inaccuracies - though now it is part of your 'official' medical record.
One family doctor had my whole life story written down in my medical record, in greater detail than even those of my psychologist - noting that I 'get through the day drinking Gatorade and green tea' or something like that.
Sorry I got off the subject here, but I thought this was worth mentioning. I just know that from now on, if a record is about me, I'M authoring it next time around.
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posted
well a problem with our medical system, doctors are deathly afraid to perscribe pain/addictive meds.
The defined addiction which is an actual problem is Psychological Addiction. Not physical addiction. People develop physical addictions which is not when meds are concidered abuse or a real medical problem (not that it does not need to be addressed, but its a natural occurance that will happen when you take any sort of substance of this kind).
The mental addiction, self medicating, that is the addiction that is serious and the type that needs to be of major concern for anyone taking meds of this kind.
I too experince this. That is why i do not drive (I have never driven in my life).
Its WAY too stressfull and gives me the shakes.
not fun. I have eliminated anything in my life that causes this to happen, and that is how I deal with it. I am lucky though to be able to do that. This is not always the option for many people.
I hope you can find help for this! I know its not fun at all, but hang in there!
posted
Skyler - But what if drug dependence - meaning physical dependence - is really untreated infection? Or infection that has learned to 'adapt' to a certain dosage of a controlled substance?
And though I myself was not an addict, I find myself wondering if maybe people who are being labeled as such, meaning purposely taking more than what is prescribed, are really just in situations where they simply cannot bear the discomfort of the (undiagnosed) infection any longer.
I know there would be no way for me to hold a job with this level of anxiety. But some people aren't as fortunate.
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I don't know why your thread was taken over and modified.
To get back to these feelings.
I have never had anything done to the root canals nor my fillings. I experienced the feelings/symptoms you described and feel there is NO connection between them and fillings nor radio waves or cell phones, whether I'm on an incline or going downhill,etc.
What I do believe caused them is the lyme infections affecting neurotransmitters in my brain that regulate emotions.
That is all. When I was treated for the infection I got better and regained my confidence. I was no longer agoraphobic,paranoid,insecure or tentative in any way. I lost the tremors/shakes whether internally experienced or outwardly physically noticeable, entirely.
I did'nt have to have any of my teeth redone!
I still have those same root canals and fillings. I regret I can't pick up my favorite radio stations nor aliens from space conversing with each others space crafts planning earths invasion either! LOL
So I believe these emotions are all related to the disease. Once your level of spirochetes is lowered. Or the ones interfering with the appropriate neurotransmitters in your brain are eliminated, you will feel much better.
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I think that SSRI helped me and a bit of Xanax has helped my tremors a lot. Also some extra magnesium helped me. I am not a big vitamin taker just probiotics and sometimes Magnesium or Epsom baths.
Good Luck- Melissa
BB stop being a jerk
Posts: 3905 | From USA | Registered: May 2007
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