posted
My original treatment began 11/2000 with Amoxicilin. started slow than maxed out at 4500 mg a day along with Probenecid 1500 mg. In Feb 2001 I switched to 3 weeks of IV rocephin and then went to a few months of suprax 800 mg. The neurological symptoms declined once the IV abx was given and then over all after a few months after stopping the meds I started to feel human again. So in total, I was treated for about 7 months with oral & IV antibiotics. I think I was bitten in 1997.
But now I am back with problems and tested positive again. So maybe I should have been treated longer or maybe this is a new infection. Haven't figured that one out yet.
-------------------- Life is too short for drama & petty things, so kiss slowly, laugh insanely, love truly, forgive quickly and rejoice in the fact that most of us are indeed unstable. Posts: 59 | From Laurel, MD USA | Registered: Jan 2003
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bettyg
Unregistered
posted
mine was 20 months pulsed abx
saw something the other day where someone was on abx for 4 solid years!
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posted
It would be nice if people also included the main major symptoms they had...like, peripheral neuropathy, arthritis, CNS...for us who are relatively new into this and trying to figure out where we stand (since arthritis probably responds differently to abx then neuropathy).
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i have been on antibiotics on and off since december of 05. first doxy, then biaxin, then amoxy, now ceftin.
i was off for just a couple of months and symptoms started coming back.
mostly head -- eye twitching, facial numbness, pain, jaw and teeth pain,joint and muscle pain...
i really, really don't want to stay on antibiotics because i end of having so many side effects.
am getting so discouraged.....sigh......
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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ByronSBell 2007
Unregistered
posted
Been on ABX for 8 months now with only 10% improvement... still have 40% to go!
Infected: Dont know when infected but symptomatic for 1.5 years before starting treatment.
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Ten months and counting. I have at least another two to three months
Of babesia treatment, then going after those cysts.
I also have at least six more months on valcyte for CMV.
I guess I am in for the long haul.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
After one year on abx with much improvement -- but much more to go -- I am beginning to accept this as a long-term project. I suspect that I will need at least another year of continuous abx to resolve some of my long-standing problems from years of untreated tbd.
Posts: 2557 | From home | Registered: Aug 2006
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posted
I have been on treatment for the better part of three years - IV and almost any oral combo. My LLMD doesnt believe in not treating people and he isnt ready to give up on me yet. I do trust him too. I take probiotics and supplements. I have only had brief periods of feeling better - not well just better- but as soon as I go off ABX I quickly get worse again. I had my first bad reaction to ABX last week. I was on IV Merrim 3Xs a day for 3 weeks when my white blood count crashed and I had to go in hospital for 24 hours - stopping ABX and getting a shot to boost WBC fixed problem right away but not a fun experience. Here is my current problem - LLMD wants me to go on Zith and Plaquenil because he know I tried to stop ABX from May to 3 weeks ago and symptoms got worse but I'm nervous after recent event. He said Zith doesnt cause that effect to WBC. My symptoms are severe nuero - like brain fog, double and blurred vision, difficulty finding words,reading writing - disorientation, severe balance problem, numbness and tingling and extreme fatigue to name a few. Since its already been almost 3 years what would anyone else do? By the way - 1st diagnosed 15+ years ago. Thanks for input1
Posts: 28 | From long island ny | Registered: Jun 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Have you been treated for coinfections?
I had disorientation, poor short-term memory, got lost driving, difficulty finding words, dizziness, joint pain, muscle aches, air hunger, heart palpitations, night sweats, loss of appetite, diarrhea, stomach pain, and extreme, debilitating fatigue.
I've been in treatment since Jan. 20th, exposed to Lyme 35 years ago.
I went from 15% in January to about 75% now (when not herxing). So, I've seen significant improvement.
This month, the babs symptoms are finally eliminated, so I'll switch from Mepron to Malarone for a couple months to just be sure it's gone.
I'm also taking abx/Plaquenil (cyst buster) along with the babs treatment. Plus, lots of supplements and probiotics.
The PA at my LLMD's office estimates it will be another 6 months to a year on meds, then we'll switch to herbs.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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