posted                

first Jay, make sure you have 2 copies of this, original AND COPY ONTO A DISK OK in case of a major loss my good friend! I had to retypea 50 page legal agreement from scratch when i didn't have a back-up disk! !

quote:

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Originally posted by groovy2:


Hi

With the announcement that PRESIDENT George Bush has Lyme Disease
It would be Good for you to do a segment on Lyme Disease and its treatment --

Bush having Lyme Disease goes a Long Way into
explaining why he can not talk well now --

One of the effects of lyme is Poor Speaking Skills
tongue tied - Forgetfulness - ect--
that he Clearly has-
and has had for many years ??--

If Bush was not treated with in 30 days of first infection and treated with the correct medicines AND PROPER DOSAGES, he is probably going to get much worse before he gets better -

One of the Most Knowledgeable NURSE PRACTIONERS about Lyme in the US lives in Austin TX--
80 miles from Crawford TX. where
bush got infected with Lyme--

Her Name is GS -- Google - - GS -
I am a patient of hers and I have lyme -

I have contacted Ginger and she OKed me giving you
her contact Info and she would like to do a interview with you-

Ginger is Very good on camera and DOES a Good interview-she has done many --

GXXXX XXXX also had Lyme and has recovered-

about 80% of Lyme suffers are Women --
the reason why is not clear yet

Gingers contact info-
Best to contact THROUGH her Email first -
--
xxxxxxxxx
xxxxxxmail.com
office ph # 415- xxx-xxxx

My Name is Jay BXXXXX
I got Lyme disease here in Austin Tx 20 years ago and became so sick before I started treatment that I was weeks from death -

Now after 2 years of Good treatment I feel
PRETTY Good most of the time and am getting my life back--

I will do interviews with you if you want --
I am fairly well spoken now that I am in recovery;
2 years ago I could barely talk --( Like George )

Lyme disease is in All 50 states and ALL OVER THE WORLD. ANYBODY can Easily be infected --

Just one tick bite and -- You COULD Become ME IF YOU DID NOT RECEIVE TREATMENT PROMTPLY BY USING THE PROPER ANTIBIOTICS AND DOSAGES AND LONG ENOUGH!

If Lyme is treated Quickly after infection Lyme can be stopped fairly easy -- and cheaply --
$100 medicine

After about Only 30 days of un treated infection Lyme is Very Hard to recover from --


ADD: THE LONGER YOU HAVE LYME, IT AFFECTS THE KIDNEYS, HEART, LUNGS, AND OUR BRAINS CAUSING SIGNIFICANT NEURO LYME COGNITIVE PROBLEMS.


I have spent about $50,000 OUT OF POCKET on medicine in 2 years SINCE MOST HEALTH INSURANCE COMPANIES WILL NOT PAY FOR OUR LYME TREATMENT AND CARE to get well - But it was worth it --
I'm broke now THOUGH -

Because of the High Doses of Antibiotics needed in
treatment there is controversy about treatment -
(more than 3 times the normal dose )

But I am proof that IT DOES work --

I finally figured out that I have Lyme was by seeing a TV program on it - ( Very Lucky )

(might have been 60 Minutes or ABC Dateline -
I dont remember for sure)

20 years ago I had the Bullseye Rash on my leg 3
weeks before I got Real Sick --

THROUGH the years 12 different doctors had No Clue
what was wrong with me - I had to figure it out -

Then I found Ginger and Became One of her
Success Stories --

(Ginger Had Lyme also and Recovered and is
Swamped BUSY treating people )-

I have spent the last 3 years studying Lyme and
have become very knowledgeable on it --

I can supply you with High Quality contacts -Doctors-further Data - Groups and
Treatment Info sites OnLine --

My story is Very INTERESTING and
I am Very representative of most Lyme suffers have
to go THROUGH to get well --

Things like Having go to Mexico to
buy medicine to be able to afford to get well -

MISDIAGNOSED for Many years -- ect.

This has Been Hell to go THROUGH this --
and I don't want Anyone else to go THROUGH what I had to --

I will supply you with my story on request
and would Love to share my story with you --

My Contact info is

Jay Xxxxxxx

Email-- Groovyxxxxxx.com
ph- 512-xxx-XXXX

Thanks for your Time--Jay Xxxxxxx

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JAY, i typed in the misspelled words in ALL CAPS and added ADDITIONAL COMMENTS IN ALL CAPS of thoughts you might provide.

also, how about showing the YANKEE ARTICLE, TROUBLE IN PARADIZE AT THE BOTTOM BEFORE SIGNING OFF.

you could also add about Dr. Jones situation making them aware of how hard it is for us to find a LLMD and especially a child's llmd and then Conn. Health Dept. making charges against him trying to take away his medical license. It's cost $1 million plus OUT OF POCKET to defend him.


thanks for ALL your efforts in writing all these folks; so GLAD you heard back from 1 of them.

IP: Logged | 

posted                      

quote:

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I can supply you with High Quality contacts -Doctors-further Data - Groups and
Treatment Info sites OnLine --

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Posts: 2775 | From MN | Registered: Apr 2001  |  IP: Logged | 

posted                      

quote:

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Originally posted by pab:

quote:

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I can supply you with High Quality contacts -Doctors-further Data - Groups and
Treatment Info sites OnLine --

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I wouldn't provide them with the names of doctors.

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Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | 

posted                      

quote:

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Originally posted by GenaD:

In other good news...The second most popular search on Yahoo yesterday was "Lyme Disease Signs." So people are wondering what it's all about!!!!

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Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | 

posted                      

quote:

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Originally posted by pab:

quote:

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I can supply you with High Quality contacts -Doctors-further Data - Groups and
Treatment Info sites OnLine --

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I wouldn't provide them with the names of doctors.

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Posts: 409 | From Florida | Registered: Dec 2005  |  IP: Logged | 

posted                      

Hi Jay!

Sounds GREAT!!!
I've been trying to work on some ideas for you, you can keep anything you like and disregard the rest.

I don't know if this helps, but here goes....

quote:

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(Altered)

Hi

This would be a good time for you to do a segment on Lyme Disease and it's treatment, with the recent announcement that the President of the United States has Lyme.

Lyme Disease would certainly explain his highly-criticized communication problems. One of the effects of lyme is difficulty in verbal expression. People experience problems with being tongue-tied, using similar words with different meanings, forgetfulness, etc.

The President clearly displays this difficulty
and has for many years.

If he was not treated within 30 days of his first infection and treated with the correct medicines he is probably going to get much worse before he gets better.

One of the most knowledgeable doctors about Lyme in the US lives in Austin TX, 80 miles from Crawford, where Bush was infected with Lyme.

Her Name is GS -- Google - - GS -
She was infected and recovered from Lyme herself, so she has first-hand experience with the disease. I am receiving treatment from her for my Lyme Disease.

I have contacted her and she OKed my giving you her contact info. She would like to do a interview with you, should you be interested. She has done many interviews and is quite good on camera.

An interesting statistic is that about 80% of Lyme suffers are women. The reason for this is still unclear.

Ginger's contact info:
--
xxxxxxxxx
xxxxxxmail.com
office ph # 415- xxx-xxxx
(It would be best to contact her via Email first.)


My Name is Jay BXXXXX
I got Lyme disease here in Austin Tx 20 years ago and became so sick before I started teatment that I was weeks from death.

Now after 2 years of good treatment I feel pretty good most of the time and am getting my life back.

I will do interviews with you if you want.
I am fairly well spoken now that I am in recovery. Two years ago I could barely talk (like George)

Lyme disease has been found in all 50 states and a lot of Europe and anybody can easily be infected. Just one tick bite and "YOU" become "ME". There are also other ways to contract it, besides being bit by a tick.

If Lyme is treated quickly after infection, it can be stopped fairly easily and relatively cheaply (approx. $100 medicine).

After about 30 days of untreated infection it becomes very difficult to recover.

I have spent about $50,000 on medicine in 2 years
to get as well as I am now. It was worth it even though I'm now broke.

There is controversy about treatment because of the high doses of antibiotics needed, often more than 3 times the normal dose, and length of necessary treatment. I, one of many, am proof that these doses do work.

I finally figured out that I have Lyme by seeing a TV program on the subject (It might have been 60 Minutes or ABC Dateline. I dont remember for sure). I consider myself very lucky.

20 years ago I had the bullseye rash on my leg, 3 weeks before I got really sick.

Though the years, 12 different doctors had no clue what was wrong with me. I had to figure it out myself.

Then I found Ginger and became one of her success stories. She had suffered with Lyme also and recovered. She is now swamped, treating other people.

I have spent the last 3 years studying Lyme and have become very knowledgeable about it.

I can supply you with high-quality contacts, doctors, further data, support groups and treatment info sites online.

My story is Very interesting and I am very representative of what most Lyme suffers have
to go through in order to get well.

I've had to do things like go to Mexico to buy medicine, that I couldn't otherwise afford, in order to get well.

I'd been misdiagnosed for many years, etc.

It has been hell going through this and I dont want anyone else to suffer like I had to.

I would love to share my story with you and will supply it on request.

My contact info is:

Jay Xxxxxxx

Email-- Groovyxxxxxx.com
ph- 512-xxx-XXXX

Thanks for your time and interest,
Jay Xxxxxxx

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My eyes are all messed up right now, so I have to stop looking at this.

Good luck, I hope you're getting something started. GOOD JOB!!!!!



Ali

[ 10. August 2007, 06:30 PM: Message edited by: AliG ]

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Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | 

posted                      

quote:

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Originally posted by grace1:
since he was treated early, probably had the milder stari...

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Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | 

posted                      

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Originally posted by saskia:
However your passion was clearly conveyed in your words and you got the major points across and in good chronological order..............Thanks again for your sincere desire to help our community of lyme soldiers. I am keeping you, your efforts, and all people involved in the lyme crisis in my prayers.

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Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | 

posted                      

quote:

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Originally posted by Vanilla:
Thank you for pointing out the important part to me lymetoo.

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Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged |