posted
I am 18 years old, and was diagnosed with LD about a year ago. Ive been fighting symptoms of LD for about 4 years, but it seems like a lifetime. Being 18 and having LD has created a whole new out look on life for me. It amazes me how some people can be so...so...( LD memory loss) ignorant to things they dont fully understand. How having Lymes is no longer a DISEASE, but through some elses eyes it becomes a convienience. Through someone elses eyes,you are not so weak that you cant get out of bed, you become lazy. Its not that your joints are killing you so bad you have to stop after just 3 stairs...you're out of shape. They dont see the pain when you cant remember what you ate for breakfast, where you were going, or what you were doing...you are probobly on drugs.
"i have Lymes disease" A concerned face. The smile that wants everything to be ok for you, The one i know to well. Followed only by "whats that?"
More people should know about LD, it shocks me that people think its simply JUST being bit by a tick. If they only knew.
Posts: 18 | From Clearlake, California | Registered: Aug 2007
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bettyg
Unregistered
posted
welcome! sorry to read you have lyme without the s on th end!
do you have a LLMD, lyme literate md giving you treatment? if not, post in seeking dr. area and read the top 3 posts first ok.
i'll send you a pm, private message, found below HELLO your nickname when it's flashing.
it's my newbie 60 page package of llinks, advise, symptoms, tests, disaility, much more, and treepatrol's archive of over 1000+ links of good info!
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posted
MRHCA, I couldn't agree with you more about the way a lot of people see us. I think you have described very well some of the frustrating social experiences we go through.
A lot of us are writing to Oprah now in the hopes of her doing a show on Lyme. I encourage you to add your story and comments there. It's at http://boards.oprah.com/WebX/.f161b7a/0. You can sign up at the O site and then post a comment on The Agony of Lyme Disease health group.
Posts: 13171 | From San Francisco | Registered: May 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
WELCOME KIDDO*)!)*!)!!!!!!!!!!!!!!
Welcome.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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It's very hard to make others understand. You are correct..to others it is just a tick bite. No big deal. To us it is so life changing and frustrating.
Hang around..you will learn alot and make many friends along the way.
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hello MRCHA,
Yes, it is very frustrating with people -- even family and friends -- who you expect to understand that you are sick! And they just don't. Sometimes it seems only those with tick borne diseases understand how truly difficult this disease and treatment can be.
I hope you are getting good treatment and seeing an llmd. Are you taking antibiotics? Are they working for you? I hope so! Welcome to the lymenet board.
Posts: 2557 | From home | Registered: Aug 2006
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posted
YEP! here I am as well, 18 year old male. Struck down by lyme disease my junior year in highschool and have not returned since! Use to be a full time athlete, hunter, watersports, work on cars,ect. and now I am down to just trying to get through the day... Welcome to the forum, place where we can all support eachother (sometimes)
Me before my deathtrap for 2 years now.
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posted
Welcome to Lymenet. You will find so much support and understanding here. My daughter is just your age and has had Lyme since she was about 7.
She has experienced soooo much of what you describe. People who are not familiar with Lyme and its effects can be so unsupportive, but you will most certainly not find that here...
Everyone here has been throuigh their own personal journey trying to get properly diagnosed and treated. If you have not gotten a Lyme Literate medical doctor (LLMD) that should be your first step. Our family wasted many precious years with doctors who did not know how to treat my daughter, including her pediatrician who is, otherwise an excellent physician.
Welcome and post as often as you want and need!
Elle
Elle
Posts: 217 | From New Jersey | Registered: Apr 2007
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Welcome....I'm a 21 year old female and have been fighting this for 2 years...I just got diagnosed in June...
I was in college in California, and had to drop out and return home to Hawaii...
I UNDERSTAND!I FELL YOU!!!!
There is a lot of frustration...
Friends, family, strangers just don't always understand...if at all....it's hard...it's frustrating....it's lonly...it's painful...
but it's LIFE transforming...it has opened my eyes and heart to so many expierences, feelings, thoughts, ideas, people, situations in life that I would not have even been aware of or necessarily open to...
It's inspired me to help, to make a difference, and to touch peoples lives.....
Please feel free to contact me, I can PM you my phone number if you'd like to talk....
Much Love- Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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posted
Hey, I can relate with you. I am 22 years old and am in so much pain that I am homebound. I also had to drop out of college even though I only need one class to graduate. I've been sick a long time and jsut got diagnosed. If you ever want to chat, you can IM me at banananutbread00. Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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