Haven't been around here in a long time. I've had an eventful few months as far as *change* in my life is concerned. I'll share some of the details on my blog later - if I'm ever in the mood.
Suffice it to say - right now - I think I am in a more simplified place, which is probably where I need to be because I feel my Lyme is getting worse and has possibly progressed into something more serious - and by that I mean - more deadly. (I have never taken Lyme "lightly" - just relieved it normally isn't fatal.)
My neuropathic pain has gotten ,MUCH worse over the last couple of months, and I now have this CONSTANT tingling in my finger tips.
I can't remember when it all started getting really worse -- you know how you get a new symptom and try to ignore it, hoping it will go away?
Well, the tingling in my fingers has only gotten worse, and some finger tips are starting to feel numb; I have horrible edema in my hands/feet; and my feet are increasingly numb on the outside, but it seems any pain I may inflict on myself onn the outside (to try to determine where/to what extent I can even FEEL) only hurts that much worse a few minutes later on the inside of my feet.
Last night I was moderately jabbing around on the bottom of my feet with some dull kiddy scissors to see if I could inflict any kind of pain - since I feel like I'mm sseriously losing the feeling...(and no I didn't draw blood - I'm just a wise@ss - not completely insane). The scissor test only depressed the hell outta me because I am losing so much feeling (despite me having worked very hard on clearing up my country girl callouses)...BUT about 10 minutes later - I had horrible nerve pain shoot from my feet in the same areas I had been jabbing at myself!! It hurt bad enough to elicit tears...which I used to laugh a lot...now I cry a lot. Crying sucks. I much prefer the laughter.
Anyhoo - so the question is...does this sound more like progression into MS, ALS or something else? OR is this still just run of the mill crazy @ss LYME?
My commputer is on the blitz again (I don't know what the hell I do to computers to mess them up...) so I'll check back later for any responses, when I can steal my teenage daughter's computer without feeling like I'm destroying her social life.
I appreciate any feedback you can give.
Hugs & Kisses,
-------------------- DR. Wiseass NOT a real doc - just a real wise Posts: 792 | From USA | Registered: Jan 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
If ya ask me... I think you are just plain old nuts.
But you already knew that.
May I suggest?
If your feet are swelling.. you ain't going to feel much... except for tingling and numbness... nit wit.
I'll be back. My emails are not going out... I just realized and the provider is calling me..
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Hi Wise@ss, noticed you were here a bit ago. It's nice to see you, but sorry you are not doing well.
Your symptoms sound very much like my moms who had a diagnosis of MS before she came back CDC positive for Lyme. I watched my LLMD poke her repeatedly with a "sharp"instrument with no feeling.
She also can have horrible pain even though she is numb. She has had burn marks on her hands, but doesn't know where she got it.
She was started on abx and had much sensation return in her feet. She was even able to dance. But, the herxing was more then she could bare and went back on the drug Avonex which is an immunosuppresant. She feels pretty good on that to, but she still continues to worsen. It is really tough when the treatment is worse then the disease, especailly when you are nearly 70.
I wish I had something that was a quick fix to offer, but I don't, I'm sorry. This disease just stinks.
Posts: 1251 | From california | Registered: Apr 2005
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posted
Dr Wise@@@@: I have missed you. Sorry to hear that you have been in a slump with your symptoms. I don't have any profound advice, but, just wanted to wish you my best. You are in my thoughts and prayers. Hang in there.
Posts: 719 | From Delaware | Registered: Jan 2006
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posted
So sorry to hear you're having a rough time. I remember your posts always made me laugh. Hope you'll soon feel more like laughing!
With lyme, I'd just guess that you are still suffering the new, confounding, turns and twists that lyme can provide, rather than transitioning into MS or ALS. No personal experience with numb feet, but know the worst symptoms can disappear and be replaced by something new.
What does your LLMD say?
Best wishes.
Ann
Posts: 287 | From Northern California, USA | Registered: Oct 2000
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome Paula! Nice to see you here!
My bet is the doctor will not be as nice in her response to you or your questions just cause she thinks she can get away with it. She didn't say so... but she simply wants an answer ... and wants to be fixed! And if she has to work for it when she isn't feeling too good... well, we know better... and we all duck! So watch your head!
HA!
Yo Wise.. and who named you by the way?
I'm trying to think. My thoughts are many. Not good mind you... just many.
Here are some...
1. Have you been re-infected? Keep in mind before you say no... one of the people who got Lyme rash after a mosquito bite was in your area. Or.. could you have gotten it again because of too much hootchy-koo?
2. The Reynaud's like presentation/symptoms .. which I am finding proceeds the ACA presentation... can cause some of the problems you are having.
3. Prior to the ACA presentation my hands and feet swelled... then would go down eventually.. then for an unknown reason they would swell again. This is typical for ACA. NOT saying you are developuing the ACA... just sharing that so you can ponder it.
4. I use dandelion tea to help reduce the swelling. Two to three cups a day at first... then taper off. Less side effects than drugs and it works cause it is a natural diretic (sp?).
5. Try a chiropractor if you haven't. Everyone should have one in their medicine chest. Could be swelling/inflammation in the neck and low back causing the pinching of nerves. Works GOOD for me and others. You really sound as if you are swelling and pinching off nerves to the area. Reduce swelling= reduce pinching of nerves.
6. You said your feet are going numb on the outsides. That IS typical of mashing or pinching off nerves to the area. If it were here and there ONLY... I'd think not. Inflammation, after-the-herxes, toxins, etc. can make this situation worse.
7. ALS/MS? I don't think so. I'd surely look at the swelling first... and if that doesn't reduce the symptoms... then consider other reasons.
WHAT? You want more?
I don't think so. There is a bed with my name on it and I need to find it.
I do hope you are feeling MUCH better soon... little baboon! Please tell littler baboon I said "hey".
lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
How about vitamin B-12? Are you getting enough? A deficiency can cause numbness and tingling in the extremities.
My sister has this problem and it takes quite awhile for supplementation to make the numbness/tingling go away.
On a side note, I just love your blog!!!
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Dr. W,
I'm so sorry you are having these problems. I presume you've been through all the coinfection treatment.
But I did want to say your nerve symptoms sound like part of my Bartonella symptoms (I don't have the edema, but do have nerve/myoclonus/tremor symptoms that are beyond horrible) and my Bart continues to get worse in many ways, even on treatment.
So perhaps this is Bart that has come back? As you know, it can be tough to eradicate.
Take care, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
ALS generally does not present with sensory symptoms. Numbness and tingling would not be typical of that disease. ALS usually shows itself with motor dysfunction and muscle atrophy.
MS on the other hand could certainly account for your symptoms. Have you ever had an MRI of the brain and/or cervical spine? Of course, neurologic Lyme could also account for the symptoms...
I'm new here, and I'm not familiar with your history. I'm not a doctor, but if I were you I'd stop jabbing myself with scissors...
Posts: 6 | From new york city | Registered: Aug 2007
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Cobweb
Unregistered
posted
I remember you! Shaking your wisea$$ at a whole busload of admirers in Westchester, NY.
If your new place of more peace is anything like mine and due to a separation from contention I can relate. I did not feel as if i could get well under circumstances.
The transition was a nightmare. After 4 months I did start to regain a new sense of self and everyone says I am looking much better.
After starting IV rocephin I did get the pins and needles in fingertips-but it was/is transitory. My feet burning is also transitorybut more constant.
I have had shooting stabbing pain in feet and eyes-like stick a needle in your eye pain that's made me flinch it's so sharp and unexpected.
The other day I could have sworn i had a splinter of glass in my big toe-but couldn't see anything and there wasn't any broken glass around. Again symptom passed.
Anyway- "change' can be stressful-which of course makes us more vulnerable.
I am so sorry you are going through this heightened sense of anxiety and uncertainty about the future of your health.
I can also relate to your sensitivity about disrupting your teenager's "social life". That made me chuckle.
Quite honestly I have been wondering lately if i'm going to make it out of this life alive-but i think that has something to do with the minocycline.
Take Care, I hope you are able to regain some sense of well being inspite of being sick.
Take Care, Carol
forgot to talk about swelling-yeah- I have even taken to wearing compression stockings to ease the pain of ankle/ feet swelling. either that or no socks-which can get clammy in summer. yuck
I have also resorted to lo carb/no sugar diet-did lots of peeing at first.
My hands don't seem to visibly swell-they just feel "tight" sometimes.
My fear at this time is that all of this is going to resolve into CFS.
Guess I wrote enough to sign off again, Take Care, Carol Hang in there one more day-tomorrow just might be the day you feel better. At least that's what I tell myself.
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
A lot of us have fluid retention. Mine is quite severe and has been for years. I don't have MS or ALS however I do have lyme, babesia and bartonella. Others on this forum have mentioned that babs treatment has helped them with fluid retention but I imagine it could be lyme or one of the other infections too.
I have lost the feeling in the roof of my mouth and thus I have to be very careful to not burn myself with food because I often can't feel it until I have a big blister. Same with hands/fingertips and feet. I also have numbness and tingling in my legs and arms all the time. No explanation from the ducks about why.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Nice to see you again. Sorry you're having such a tough time.
You and Cobby have both been around for quite some time so I trust you've both been tested/Txd for Babs & Bart.
Fluid retention could be kidneys needing flushing or cardiac involvement.
I've had a bit of problems with the "pins & needles", tingly, numbness. Doxycycline seems to keep mine under control. I switched to another ABX & they came back w/in two weeks & worse than before.
I've been battling with the stupid Babs & don't think I've kicked it yet. I think that's the reason I can't get Lyme to stop attacking my head.
I hope you're drinking plenty of water to keep your kidneys flushed. When I swell up I usually make sure I drink more water & maybe a cup or two of regular tea.
I'm trying to remember if the swelling went down with Babs Tx, but sorry, I got nuttin
I hope you feel better soon. Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
It was either Babs Tx or Doxy that got rid of my fluid retention.
ASPARAGUS!!! Great for getting rid of water!
If the taste is too strong, you can steam it, toss it with olive oil & balsamic vinegar, chop it up and mix it in a nice arugala(a peppery lettuce) salad.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
So sorry to hear you are having trouble, wise*ss. I do love seeing your witty posts though.
Hope you are feeling better soon!
Posts: 1366 | From Southeast | Registered: Sep 2005
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bettyg
Unregistered
posted
Donna, welcome back!
I thought you were busy writing up a storm for future PHA newsletters; they are always so funny and right on the money in whatever you write about. You know, I look for them in EACH issue .. so you are missed.
Been wondering where you are; sorry to read about what's happening with you as well.
my 1st thought was also: DIABETES 2 neuropathy.
If you have NOT had a A1C blood test done, do it soon; it's 3 month glucose sugar average.
my late dad had NO feeling in his feet at all; his feet/legs swelled up terribly .... congestive heart failure.
since lyme attacks our heart, have you had any testing done there to see how your baseline is and CRP infection blood marker is?
have about GOUT? dad had this bad; sweeling, and so PAINFUL even in his hands!
good input from everyone! hope you get to feeling like your old wise self soon!
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posted
Hi there -- just a crapshoot here with my remarks -- if this is anything like MS symptoms, I've been reading the [email protected] site for discussions about taking a low dose of naltrexone(synthetic opioid that boosts the immune system and helps with sleep) for MS symptoms, and also lots of other conditions too. MS patients are reporting amazing symptom reduction.
It's an interesting read in general -- lately, some discussion about taking it for fibromyalgia and CFDs symptoms, and we all know what that implies...
Posts: 13171 | From San Francisco | Registered: May 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I have a belief that the reason that some people get ALS or Ms is because there is a coinfection along with the lyme that presents differently depending on which coinfection you have along with Lyme.
Say lyme and mycoplasma = MS? Lyme and bart or a virus Als? Lyme and a parisite = CFS
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Hey Doc, Welcome back..Missed your fun posts.
Sorry that you are having some problems. Hope they all soon improve.
Make sure you are getting all of the needed supplements. B-6 is supposed to help reduce fluid but should not be taken without the other B's. Not sure why..Just remember reading it somewhere.
Also consider some cranberry juice in case it is something as simple as a bladder issue.
Lyme and the co's can be enough hell by themselves without you worrying about MS or ALS. Try to relax, you know toooooooo much and it is making you a bit panicky. I used to know a lymie that is way to paranoid over everything.
My daughter never had pancreas/diabetic issues pre-lyme..So I agree with others to check out the blood sugar issue.
And finally, remember that there is a tight rope walk thru a field of depression for most lymies so make sure you don't fall off of the rope.
hugs..lmt
ps. you were also on the grass in NY. Maybe you picked up an unwelcome blood sucker to take back to Texas. It might have had some new goodies to spread around in your body..
Posts: 2360 | From SE PA | Registered: Mar 2004
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Go to an LLMD, silly*)!*)!!!
And we have three guys locally who had Lyme years pre ALS diagnosis- and all 3 are alive despite ALS diagnosis- and others who had Lyme pre MS diagnosis and got better with abx then, too!!!!!!!!!!!!!!!!
So get thee to an LLMD*)!*)! Worst case scenario, you should still be ok as long as you stick with abx!!!!!!!!!!!!!!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Flagyl causes peripheral neuropathy. I took it, and I had it. It was scary. Enough to cause me to quit taking it after 3 months.
Don't know if you ever took it, or are on it now, but if so, you may want to look into that.
The edema is another story. But thought processes might cause one to conclude that if there is swelling/edema in extremities, then loss, or lack of sensation (feeling) may accompany that swelling.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
[Quote originally posted by Treepatrol]
"Say lyme and mycoplasma = MS? Lyme and bart or a virus Als? Lyme and a parisite = CFS " _____________________________________________________________________ Ditto. I agree.
I also drink dandilion tea reccomended by tincup & find it really good for edema.
Also I had a disc problem in my back & the outside of my feet would tingle & go numb. It went away with surgury. I would NOT reccomend this surgury to anyone but it did narrow the root of my problem.
If you have a disc problem higher up it can cause this in both your hands & feet. My doc told me you can have these symptoms & not necessarily have back or neck pain. Under lyme symptoms is disc problems. It can erode the disc in your spine and also do a number on your vertabra & connective tissues there as well.
Could you have an MRI of your spine done? I don't think everything can always be attributed to lyme & co-infectins. Alot but not everything.
Hang in there & I'll be praying for you & hoping you can find some answers soon
hugs Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Thank you all for your responses; and thank you for your warm welcome-back!
In answer to one question - it is highly possible that I am diabetic at this point - as I was told I was borderline hypoglycemic not too long ago. I had a fasting insulin test done a few weeks ago & see my doc tomorrow. (I would think if there was a problem - his office would have called me by now, BUT...I've been in this medical quagmire far too long to remain idealistic about receiving timely feedback from doc's office people - any doc's people!)
It sounds like there might be additional tests I need to have done, and I will take the names of such with me to doc's office tomorrow. If anyone has any other ideas (tests, meds to consider, etc.)- I'm still listening.
I would think a nerve conduction test might be in order at this point, but hear they can hurt like hell?
And yes, I have been battling a fairly deep depression over the past few months, as I have experienced a great deal of loss: the death of one of my support group members - a lovely lady whose Lyme DID progress into ALS; the death of my cousin to electrocution; and the death of family friend's daughter to a horrible car accident == car basically incinerating her young precious body.
In addition - I've lost friends and pseudo-friends via a variety of other means/reasons. I am no longer affiliated with my state organization, feeling it best for me to resign; blah blah blah.
I think because of the loss and pain, I've isolated myself more than I probably needed -- much like a dog limping off to a corner to lick its wounds. Yes, I'm not much more emotionally evolved than a dog...no big news there.
As far as everything else is concerned -- yes, I have the co-infections, altho I don't think I was ever confirmed as having erlichiosis...crap, I can't even remember. I've huddled in my little doggie corner licking myself for so long that I've done forgot all the diseases I have! How pathetic!
I also know that MOLD/mildew is probably a big variable in this picture as before vacation this summer - I pulled our suitcases out of the (guest bedroom) closet and there was so much growth on & even inside them, I thoought about calling the Health Dept.! (I still don't know how to handle our mold problem, which is another post thread so I won't say anymore here...other than bulldozing our house down has entered my mind.)
Well, I will check back in later; just had a moment to stop & say "thanks" and to verbally vomit some of my initial thoughts/emotions regarding your responses.
Thanks for all the much needed advice & prayers. Some of you have sent private messages & emails & I have read them and take them to heart. It means a lot to know that I'm not totally "disposable" - which is how I have felt as if late. Yes, boo hoo for me. (This is where I would normally insert a weeping little gremlim from some outside source, but I've done forgot how to do that too!)
BTW, I'm very interested in that low dose naltraxone idea and wonder if many lymies have tried it and whether it worked well on symptoms? My pain seems to stay out of control, which doesn't help the emotional component of the disease, which contributes to my mental status and my paranoid attitude that I've adopted....first thinking that the edema meant I had COPD and my continuous weight gain indicated I have some garantuan tumor growing in my @ss or elsewhere! But come to think of it - I've never heard of an @ss tumor - have you? (Speaking of @sses, does anyone know what happened to the little shaking @ss I had in my sig line? I do so miss it! Have they disabled it? A gal should really only have to deal with ONE disabled @ss at a time you know!)
To Tinny: Honey you give me far too much credit! I haven't the slightest idea what ACA means in your post. Does that means American Crone's Association -- and are you the president? (FYI - While 'crone' sounds like 'crohn' - it's not related to 'crohn's disease, but means an old wrinkled up woman...) HA!
Thanks again.
I'll be back...
Hugs & Kisses,
-------------------- DR. Wiseass NOT a real doc - just a real wise Posts: 792 | From USA | Registered: Jan 2005
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posted
Hi -- just read your response. You've been through a lot -- best to be back here connected with everyone, methinks -- we're all going through our conundrums together...
Re the ldn aka low dose naltrexone, a synthetic opioid that boosts the immune system and improves sleep -- I spoke with a top doctor and pharmacist early on -- they said it helps some people with Lyme and not others. People try it and see what happens.
The lowest dose is 1.5mg for usually a month and then people go to 3 mg. Generally in capsules, from a compounding pharmacy. Skip of Skip's Pharmacy in Florida is great to talk with.
Note: there are a number of pain meds that people taking ldn should not be taking at the same time, I think in the opioid class. Make sure you're clear about which meds you can take at the same time before trying ldn.
There are other ldn chat groups there too, like ldn4cancer, Autism_ldn, etc. [email protected]
BTW, mold exposure could be a significant issue in terms of exacerbating symptoms...
PS: ACA stands for Admittedly Crazy Ailment(s).
[ 14. August 2007, 06:02 PM: Message edited by: Robin123 ]
Posts: 13171 | From San Francisco | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I'm glad that you are going to see a primary care doctor so that they can rule out obvious problems (eg diabetes).
One thing that I was recently diagnosed with (at Stanford Medical Center by an ID doctor) was chronic viral infections, specifically HHV-6 and EBV. These can have the same symptoms as lyme.
For info go to www.hhv-6foundation.org Click on "testing". Also, click on "patients" and "my viral test results" for my story.
You might want to ask your doctor to test you for some of the same tests that I had done...using Focus labs in CA (see their website). If you use the same lab as Dr. Montoya does at Stanford, you will know what is an abnormal result and what isn't.
I do feel that I had (and possibly still have) lyme. I think the lyme affected my immune system negatively, allowing the viruses to grow.
I hope you get some answers soon.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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Shosty
Unregistered
posted
HgA1C (pronounced hemoglobin A1C) would be the best test for diabetes. Nerve conduction/EMG good idea too.
You mentioned mold/allergy problems. Just wanted to mention that our fluid retention/edema problems AND our burning, tingling sensations AND our Raynaud's were all amazingly improved by dealing with food allergies.
MD explained the oft-cited "rain barrel theory" that after our bodies' "rain barrel" of toxins/allergens etc.is full, we start reacting to every tiny drop. Going off offending foods and avoiding allergens (mold, perfunes, whatever) lets the water level in the barrel go down, and the sensitivity level improves.
Start by eliminating just about everything, and, at first, your sensitivity goes up. After a couple of weeks (varies) you slowly reintroduce and establish what you can and can't eat.
Yeast from abx can contriubte to this, too, by making your gut "leaky" and food molecules migrate in bloodstream, causing weird reactions like swelling and numbness and neuro stuff.
Allergies cause inflammation in all kinds of weird ways, and also fluid "leaks" from blood vessels into tissue, we have been told.
Just a thought. Might be worth a try. I didn't believe it, watched my daughter get so much better, tried it myself.
This is how, after 6 years on abx, I finally got off. Not 100% but able to function, and improving. My "lupus", including sun sickness, also better from food allergy treatment.
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yo ho, ho!
Sorry I didn't get back at you soon enough.
Thanks to tutu for sharing that information for you.
Sorry to hear of all your bad news. Hugs to you and squeezes too. You've had too much piled on top of your pretty little head. So sorry!!!
It is about 4:30 in the morning and I need to sleep but before I do...
Check out chromium picolinate. A doctor told me to take it because of blood sugar problems. It is an over the counter supplement.. fairly cheap and tiny pill to swallow.
It helped greatly and I needed no further interventions... and I was NOT stable in that department at the time... not at all.
Eventually when treated for Lyme again my blood sugar levels got better and I stopped it with no further problems.
It helps regulate your blood sugar levels.
Do NOT take it if you have been put on any medications for blood sugar without checking with a GOOD doctor about it first.
Some folks on insulin have used it (this was years ago when I studied it and took it) and they were able to reduce their insulin because of it.. some were able to stop all together.
Here is a web site.. just pulled up quickly and have NOT read it as I am exhausted.. but check it out if you care to.
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Hey there Dr. Wise-one,
We have been amissin ya!!
I was goin to respond intelligently,,,
Butt ebebody no's, I dunt no nuttin'!!
Dunt be such a stranger,,,stop back fer yer daily dose of crappola!!
Butt ebebody dose want yer healthy!!!
I tink your surroundings of water 24/7 HAS to influence yer compromised health!! I didnt know yer were a 15 gallon hat wearer!! I always taught yer were right coasted!!
stick round,,,we NEED ya!!mostly--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
I totally agree with the multiple pathogens theory --- mycoplasmas in particular are an area of interest for me right now. I think genetic predisposition plays a role, too.
Most of us seem to have a bacterio-viral-soup going on.... and the testing is so wonky that it is hard to know what is what...
Hope you are better sooner rather than later!
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
See if you can get some sublingual Vitamin B and take more complex b too and the magnesium.Maybe some vit D?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
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