Just to recap: I tested positive with lyme @ 15 as well as mono, got treated with 14 days of doxy and was told i was cured. I also knew very little of
the disease when i was younger and thought it only consisted of joint pains and night sweats. so i went through a very tumultuous adolescence
plagued with fatigue, depression, anger issues, attention, concentration and trouble prioritizing. IT WAS HARD and i didnt even know that it could be
this disease i contracted earlier, so i internalized all the things people said(Mom, grandparents, school) to point out what i was
already insecure about(saying things like: "Your lazy, pathetic, worthless").
fast forward to 2006. I had been dealing with some really weird things going on inside my mind and body. i noticed my
temperament changing. i became hostile, angry, crying for no reason, paranoid, depressed, COMPLETE LOSS OF SEX DRIVE (come on, Im 23!),
anxious about EVERYTHING, always feeling rushed, thinking about death a lot. weird stuff!
then around may 2006, i started getting panic attacks that would last for hours usually before bed, but also in the car, or at random times. my
whole body would shake uncontrollably and i would feel like my chest was very heavy with racing thoughts, i could never quite my mind during this time.
then things got dramatically worse because in June i found a bulls eye on my back but not thinking anything about Lyme i thought it was a spider bite.
from june to august, i had lost interest in anything i had once enjoyed, felt spacey and disconncted, panic attacks got worse and more
frequent, weird pain and achy feeling all over my body, heart palpitations, chest pain, vision blurry,and one of the most scary-pains in my skull
and electrical shocks up my neck in the back of my head. i felt like i was dying slowly or i was slowly going crazy. i had just turned 22 and lost my mothers insurance.
i was in college, with no insurance, suffering. Finally went to the emergency room after surfing the web for my symptoms and saw Lyme. i had awoke
in the middle of the night scared to death feeling like i was gonna black out, my heart pounding and pulse racing, i could stop shaking and my vision got severely blurry.
friend rushed me to the ER. I mentioned Lyme to the doc and he gave me IV rocephin and the shaking stopped immediately.
I had a positive test for LYME elisa =1.69 and had a irregular heart beat. western blot showed no infection (which i now know is code for chronic infection). I applied for WEST
VIRGINIA Medicaid-took 6 months. and got treated with a month of doxy 400mg and amoxi 6000mgs a day.
after the month was up, they refused anymore treatment for the Lyme because yet again, i was "CURED"!
so they began treating me like my problem was stress and i just need to smile and put on a happy
face and deal with my mental disorders and get on antidepressants, which is what is causing me to continually feel like Sh*T after they "CURED" me.
so without any money, or family, i had to take what WV Medicaid had to offer which is WVU med students, who all follow closely with the CDC
guidelines. The infectious disease doc there said i must be dealing with Post-Lyme Syndrome. Still no antibiotics.
so i began Bruhner's Core Protocol and hoped for the best. I still only take 1-2 tabs of each a day.(cats claw, andrographis, resveratrol, sarsparilla)
i noticed in june 2007 i started getting the blurry vision, paranoia, and uneasy thought patterns started back up..as well as knew muscle
aches and the head pains are back as well as frequent chest pain mostly on left side.
i go to my primary who is a osteopathic doctor, she monitors me says she doesnt know whats wrong. shes done everything and ekg only shows irregular
heart beat. My feet get numb and tingly and hurt, everything hurts. My thoughts are spacey and cant seem to focus on
ANYTHING. i forget what i was saying in the middle of sentences, i get lost driving sometimes in familiar places, its like my brain is in slow
motion sometimes. its awful, i also find it really hard to follow people in conversation, my attention span is so short now..this is so hard!
i was wondering..what is all this intensity in symptoms as well as new symptoms?? relapse? not treated effectively?? reinfection??
how can i get antibiotics or even tested for co infections??? my doc doesn't want to do either.
i cant get a LLMD right now unless anyone knows a doc IN WV that excepts state Medicaid..IF anyone does know a LLMD in WV that excepts Medicaid please let me know, ive been looking for almost a year??
i feel as though i might have coinfections and CPN cause i herx REAL BAD off N-A-C. esp. babesia
i have ARTemisinin but i have been scared to take it because i cannot handle becoming anymore depressed then i am..and im on Wellbutrin 300Xl
does anyone have any advice or insight for me as to where i should go from here??
other supplements that could rid my body of any coinfections??
im reachin for anything here. im getting scared and im very alone. and i need help.
thankyou.
-------------------- If Your Going Through Hell, Keep Going... Posts: 99 | From Shepherdstown, WV | Registered: Sep 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
You really need to get to an LLMD. You need to find another way to get there other than him having to be in WV and accept Medicaide. I know it will be hard, you might have to ask friends/family for handouts ... but you have to do it so you can get better.
You were not treated sufficiently, that's why you are getting worse. I'm sorry you're feeling so bad ... this is really a crummy disease.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tailz
Unregistered
posted
Your life sounds IDENTICAL to mine except I think antidepressants and a benzo covered many of my psych symptoms through my 30's until I cold-turkeyed them in the middle of an attack due to the fact that no doctor believed me that I had some sort of chronic infection.
I actually was painfully shy in adolescence, but I think I caught a coinfection in my 20's, so I was probably dealing with different bugs up until that point.
Last year around this time I could not drive for any amount of time whatsoever without becoming panic-stricken and feeling like I could not breathe and might even hurt myself.
I showed up in the ER numerous times and even showed up at the wrong doctor's office.
I suspect that I am toxic with iron and that electromagnetic fields from things like this computer, the car's engine, fluorescent lights, and even cell phone towers and wireless internet are causing these bugs to multiply and cross the blood-brain barrier.
You HAVE to read 'Cross Currents' by Robert Becker. Please check out the link in my signature.
But I would definitely avoid ALL high iron foods - wheat, soy, milk, eggs, red meat, etc...
THIS is the only thing that has helped deter any of my symptoms - DIET.
I eat ONLY veggies now. Grapeseed oil is the ONLY oil I can tolerate - even olive oil makes me sick. Even certain veggies make me sick - it seems to be those that are especially high in fiber - like celery and beans. Parasites love fiber and lignans.
I also cannot seem to tolerate any supplements - be they vitamin and mineral or herbs. I do okay with quinine powder, so if you have artemisinin, I would change your diet and then try taking it.
I have no doubt that you have more than just Lyme. Have you been tested for malaria? Mine came back equivocal, and I've never been outside of the US.
I would demand you get tested for malaria BEFORE you start the art. I took Larium briefly and I think it messed up my malaria retest. Hang in there.
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posted
Hey, I think you need to find a good LLMD right away. Did you post under seeking a doctor to try to find a doctor in your area. You story sounds very simliar to mine. I am 22 and had to drop out of college because I was experinecning the same symtpoms you are describing. If you ever want to chat feel free to IM me at BananaNutBread00.
Good luck, Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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