posted
I just saw Dr. B's video on using Levaquin 4-12 weeks for Bart like organsim so common now on the East Coast and I am curious how many of you treatment failures have tried this.
He said many treatment failures who had done years of all other abx (IV and oral) finally tried Levaquin only for BLO and many were CURED after 12 weeks.
I have always suspected Bart though tested negative always. But have all the neuro sx: anxiety, confusion, vertigo, occasional pain in arch of foot, palms etc...
I have only done Minocin and Zith with some success but feel there is something I am missing.
How many out there have done just Levaquin for a period of time and are much improved/cured?
Does anyone know if thes patients of Dr. B's eventually relapsed.
That lecture amazed me.
Thanks.
Chris
Posts: 770 | From USA | Registered: Jul 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I was a patient of Dr. B's and used levaquin for several months.
Personally, I did not notice a difference until I used septra to hit the bart.
I think there are so many strains of bart, it is hard to find what med is best for you.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
Hey Chris, I recently went into a major relapse 2 months ago before I started Levaquin for Bart I had complete loss of sensation in my right side, right sided weakness, dizzyness and severe vertigo to the point I wound up in the ER. After about 6 weeks of Levaquin the only thing I still have is a headache. I also took ARG Una de Gato and pulsed Arteminisin at the same time. I have had chronic Lyme for 10 years and done pretty much all the other tx from IV and HBOT down. These were the worst neuro symptoms I can remember, at least the vertigo part, and the Levaquin has been fabulous. Still tired, and as I said a headache, and my "normal" fibro and arthritis, but much better. Would go back on it again in a NY minute.
-------------------- Valerie *********************************** "A woman is like a tea bag- you never know how strong she is until she gets in hot water." Eleanor Roosevelt Posts: 63 | From Jim Thorpe, PA | Registered: Aug 2007
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I used Levaquin and herxed hard on it and felt lousy for the entire five months. I would try something else for it next time, as I don't think it's gone completely.
We're working on Babs right now though.
I didn't test positive for Bart either, but from my herxing there is no doubt in my mind I have it.
Amazingly I did test positive for Babs WA-1, which is strange since I got Lyme when I was a kid in OK and hadn't been to northern CA until my son's wedding in 2003.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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When you say "I used Levaquin and herxed hard on it" could you describe what that herx was like? Did you have any psych symptoms before or during treatment?
Posts: 443 | From The Wild West | Registered: Jan 2002
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posted
Yes, I know. I am wondering however if these side effects are a terrible herx. After all, joint pain, horrendous neuro sx, vertigo, anxiety, seizures have all been part of my herx complex on a number of meds. Sure enough when I withdraw them, it ends, sometimes months later (Zithromax). I have SOB at night when sleeping on zith and doxy and thought I was surely dying of a heart or lung problem, but it was a herx that went away slowly after I stopped.
Just look at the number of "side effect" cases on the Benicar Forum. Those people must all have underlying TH1 disease (heart, diabetes, etc...).
Posts: 770 | From USA | Registered: Jul 2006
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posted
I'm very interested and invested in keeping this post going. I have tried quite a few abx, including Rifampin, to get rid of Bart and have had no luck so far. I'm really anxious about taking Levaquin, which my LLMD has suggested I take several times, because of the horrendous potential side effects; both phychological and physical. On the other hand, could I be one of the folks that it actually helps? It's a tough call so the more information and experiences the better. Thanks!
Posts: 98 | From cambridge ma | Registered: Oct 2005
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posted
bump
Posts: 770 | From USA | Registered: Jul 2006
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Just to let you all know that I've been on nothing but Levaquin and Septra DS along with pulsed Tindamax for most of the year for Bart.
First round was 2 months everyday with just 2 days of Tindamax a month.
First week after this I relapsed.
Second round was 3 months everyday with just 2 days of Tindamax a month.
Within 2-3 weeks I've relapsed. Now my LLMD will not put me on anything.
He's pulling me off all meds slowly and said I've been on Levaquin to long even though I'm relapsing.
Have severe ear pain, redness, ringing, headaches and cognitive problems. Vision problems too.
Am looking for another alternative treatment for Bart.
Must say though, while on treatment all my symptoms improved greatly except had killer sole of feet pain and eventually a lot of joint pain in the 3rd month of treatment.
Let me know if anyone else out there is trying something different.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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