posted
Hi everyone, I was recently asked to get an MRI of my brain by LLMD. They found I had some white spots on my brain.
He is checking the size of the spots and will tell me at my next visit if it from Lyme or small strokes.
Has anyone else had an MRI with Brain spots?
Posts: 7 | From Kings Park, New York | Registered: Jun 2007
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Yes, I have, and it seems fairly common with Lyme and co-infections.
It's good that you are already seeing an LLMD, those spots on my MRIs led to a misdiagnosis of MS, for years. Not fun.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
Thank you Cactus, I guess that is what the Dr. was looking for. I feel better that I am not the only one in the whole world with white spots. I thought I was turning into a Dalmation from DOXY!
Posts: 7 | From Kings Park, New York | Registered: Jun 2007
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Yes, i have them too, lots of us do. If I didn't, I'd probably be dead because it is the only thing that clued anyone to lyme disease two years ago and even then it took alot of misdiagnoses to get on the right track.
The nuero doctor said he wasn't too worried about my brain lesions... I said of course not, they aren't on his brain!! His diagnosis...STRESS which wasn't entirely wrong, who wouldn't be stressed when the can't remember their kids names!
Sort of wacky to say Congratulations but at least you are not being treated for MS when you have lyme disease and/or a coinfection.
Doxy really helped me in the beginning. Cleared alot of really scary nuero symptoms. Rough on the stomach and stay clear of the sun.
Regards, Mike
Posts: 87 | From Yorktown VA USA | Registered: Jul 2005
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posted
Hi, Also look up fMRI. If you have access to they tell more of story. That is why many Lymies or FMers, who got it all showed white spots with more detailed info.
They are lot like MS. Which is now falling under umbrella, they know sister to FM, CDC is now admitting to FM as one of many symptoms & diseases of bigger pic.
Which gather will show as Lyme or 1 of many co-infections. Or even type whether equine or past down then bit & really takes off if immune system if low.
Hang in there... Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
They are not uncommon with lyme. I too have a number of frontal lobe lesions (11). With lyme treatment, they go away around 50% of the time. Typically we are misdiagnosed as having MS. These can also be diagnosed as vasculitis, but vasculitis can be brought on by lyme (and possibly babesia infection).
A duck will treat vasculitis with steroids. However, if your LLMD knows you have lyme you'll be treated with antibiotics. (Here is why is it so important to have an LLMD who knows more than your average duck.)
Re-doing your MRI after a year of treatment may bring you much comfort!
Best wishes,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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ByronSBell 2007
Unregistered
posted
These seem to be really common, especially in women. I know several people with white spots on an MRI but they are healthy.
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
There are "spots" called UBO's Unknown bright objects that are apparent in many MRI's of both sick AND HEALTHY people. These have to be interpreted with the symptoms as their cause is often totally uknown.
Some of the spots can be casued by blood flow problems (strokes for example), bacteria, viruses, auto immune diseases etc. In general if there are a number of spots that seem significant, they may ask you to do a second MRI a few weeks later to see it they moved. IN some cases the cause of the spot is apparent but I am sure you would lilely have heard about it by now from your Dr.
In general unless the spots have a locatiosn that have a strong co-relation to the symptoms they will just make a notation that that they appear to be of no significance.
Thats a bit of background... I wouldn't worry too much about it. Its just another test result that gets thrown into the pot that is used to come up with a set of possible causes for your symptoms.
I hope that helps explain things a bit.
Posts: 1184 | From north america | Registered: Feb 2003
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Hi, Also look up fMRI.![[group hug]](graemlins/grouphug.gif)
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