posted
Just wondering if anyone has had a problem with RLS after being infected with Lyme. I had a minor RLS problem prior to Lyme but since Lyme it has become unbearable. I have not taken any RLS meds (i.e. Requip) and have tried to deal with it using a small dose of oxycodon which most times does the trick. It's just that it's gotten much worse. Any suggestions. Is this related or just coincidence. Thanks all. Posts: 31 | From Bloomfield, New Jersey | Registered: Nov 2006
| IP: Logged |
posted
Just wondering what are the symptoms of your RLS? Way before I knew I had Lyme, I would always have the urge to move my feet/legs about. There was no obvious pain, just some kind of discomfort. Nowdays my legs tingle and burn.
-------------------- Why me? Well, why not me??? Posts: 411 | From San Francisco, CA | Registered: Mar 2007
| IP: Logged |
posted
I have had RLS for years, and it is really unbearable sometimes. It is definitely more than just bouncing your leg, or the occasional jerking muscle when you are going to sleep. It is an absolute go-out-of-your-mind need to move, kick, jump, pain pain pain.
I have been in lyme/babs treatment for 2 1/2 years. For me, I think the RLS is related to babs, and it is finally starting to get better. I took a dopamine agonist for RLS and it worked like a miracle. You might want to consider asking your doc about that (drug like Mirapex) rather than a heavy-hitter drug like oxycodone. It's much more targeted to the symptoms.
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I got RLS with LYme and it went away completely with IV Rocephin. I had to sleep on the couch and wedge my leg between the cushions and the couch innards to kept it from boinging all night long-
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Restless leg syndrome that comes from Lyme is most likely a Magnesium deficiency since Lyme depletes Mg. Espom salt is a cheap source of Mg.
D Bergy
Posts: 2924 | From Minnesota | Registered: Aug 2006
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I get RLS when I'm anemic. How are your iron levels? There are some studies linking the two.
Proper magnesium levels are important, too. Don't take iron and mag at the same time.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
Thanks all for your responses. I can tell there are many different reasons for the RLS and a lot of treatments. I think, though, that I will ask the doctor for the medication that treats the RLS directly as noted by docjen. I have tried diet, magnesium, etc. to no avail. It is so bad that sometimes I feel like just stopping this merry-go-round of life but I'll plug on and try another remedy. Gailsy Posts: 31 | From Bloomfield, New Jersey | Registered: Nov 2006
| IP: Logged |
posted
I have had 'RLS' like symptoms most of my life, ever since I got Lyme. They never really bothered me, mostly because the pain in my legs was much more intense than any other complaint I could ever have.
As I got older (as i have had lyme longer) the rls stuff started lightening up, although, like I said, i never concidered it a major problem.
How bad are your symptoms? What kind of rls sensations do you have? How much to they impact your daily life?
posted
Treating bart with rifampin has helped me with this. However the herxes made it temporarily worse.
Posts: 925 | From California | Registered: Sep 2004
| IP: Logged |
posted
Hang in there, Gailsy! I know it really really sucks. Talk with your doc about getting a prescription to help you through the hard part. As your treatment progresses, hopefully you will notice less and less need to treat the RLS, and then it will be gone! Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[bonk]](graemlins/bonk.gif)
Printer-friendly view of this topic