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quote:

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Originally posted by cjnelson:

It all "fits"...from the bulls eye rash to the symptoms down the line.

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You said you're going to an LLMD. I do believe that you have nothing to fear.

I will say that what you're feeling right now is a perfectly normal response to "8 years is a long time as many of you know being told it is all in your head and psychosomatic".

That's a phenomenon that LLMDs often see the psychological damage of. I packed up all my half bottles of supplements, my books on Alternative Medicine, Nutritional Healing, Vitamins & Herbal Remedies. They filled a good sized suitcase.

I actually brought all that with me because he was my last hope and if he were to tell me I "don't look sick enough" (like the IDiot just did), this time I would be prepared with an explanation.

I guess it was fortunate that he insisted I go at 8am. After leaving at 6:45am (I don't do mornings!)& getting horribly lost on the way there, I believe I "looked" pretty sick.

The IDiot's ignorance, in making that remark, REALLY ticked me off after I had deliberatly made my appt for 2 pm, knowing that I needed to leave myself about 5 hrs to allow for breaks in trying to make myself presentable.

LLMDs see desperate, misDxd & misTxd (more ways than with medicine) quite often. It's actually very common and patients like this are the ones who usually seek them out.


You will feel SO much better after you actually go!!



Ali

PS- I actually told my DH in the am (when he asked about the suitcase) that if this Dr told me I was fine, I was going straight to check myself into a psychiatric hospital because I couldn't take this anymore.

I can laugh now, but that thought wasn't really that far back in my mind. I'm sure you know exactly how I was feeling.

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Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | 

posted                      

I posted this elsewhere but thought it a good idea to add to this thread! Thanks for all the

support!

quote:

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It went ok. I wasnt jumping for joy. He was willing to say he agreed with LYME as high

probability as well but really wanted to investigate other areas which is fine but I have

already been down these roads. So I did indulge him.

He wanted to start me out on supplements then see where I was. I pretty much had to insist my

way through getting rx. I understood where he was coming from to a degree so we met in the middle.

He wasnt refusing to treat me with abx, he stated he wanted to boost my immune system first

then go into it next month. I simply stated that I wanted a cure for this and as long as my body was fighting this my immune system would

continue to be supressed. He agreed that but was hoping to boost it up as much as he could over the next month in order to prep.

I was simply concerned that even after that he would say, especially if I had improvement from

the boosting of immune system, lets stick with this and see where it takes us. NOT going down

that path! Treat me now! If you really think it is Lyme too then lets get moving!

He wanted to start oral. I disagreed but decided to meet him in the middle. He stated we may have

to increase or move to IV but he thinks I might respond well to oral. He also wants to see if co-infections come back in, which I also agree with.

So he started me on a diet, no wheat, etc and supplements of probiotics: Florastor & GI

Protocol 1- Multi Probiotic, Adrenogen for adrenal function, and UltraInflamX for inflamation.

I will do this regimen for 2 weeks to get yeast in balance then start abx stair stepped for increase:

Ceftin 500 mg 1 per day 1 week then increase to 2 per day 2nd week.

2nd week add Biaxin XL 500mg 1 per day 1 week, then increase to 2 per day 2nd week.

He started with 2 month supply of each.

We will do a phone consult in 2 weeks and schedule follow up in a month.

Blood tests:
Complete Lyme Panel IG
CoInfectoin IG
CBC
Lipids
Bun
Nutritional Levels

What do you think based on LLMD experiences?

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Posts: 830 | From TN | Registered: Aug 2007  |  IP: Logged |