Topic: anyone here on lymenet ever been treated by Steere, Datwyller, Shapiro, Dumler, et al
david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
I'm interested to see if ther is anyone here that has been seen by or has been treated by these fellows? Or maybe someone here was one of the original lyme children that launched Steere's carreer?
A friend of a friend does not count, only first person accounts please!
If so do they practice what they preach in the IDSA guidelines or were you one of the rare few that did not fit in the "most patients respond to xxxx" category.
Enquiring minds want to know.
PM me if you like.
Thank you.
Posts: 1184 | From north america | Registered: Feb 2003
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Michelle M
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Member # 7200
posted
Likely, all their "post lyme syndrome" patients are dead.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
My daughter was originally referred to Dr. L.S. in New Brunswick...who ignored her CDC positive WB from LabCorp and told her she had fibro and would be better if she took AMbien and did aerobics...Wel,, that was 5 months ago...she did follow his recommendations and runs ofn the treadmill regularly...BUT...she is seeing an LLMD because her experience with Dr. S was akin to spending an hour with a snake oil dealer.
Posts: 217 | From New Jersey | Registered: Apr 2007
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posted
I have seen Dr. Dattwyler (when he was at Stonybrook), Dr. Halperin (when he was at North Shore university hospital) and I had an appointment to see Dr. Wormser, but thank GOD I cancelled that one after looking him up online and reading he was just like all the others I had been to.
I am an unusual case of Lyme though, I have positive tests and known tick attachments and EM rashes, I have a lot of very severe symptoms, paralysis, seizures, every symptom on Burrascano's list..etc.., it would be pretty hard for any doctor to deny that I have it, so even the IDSA quacks didnt "deny" it, they just pretty much said I had been sick a long time, and it was "unlikely" lyme could cause symptoms for so long, but they didnt rule it out...I did hear "post lyme" or "auto immune syndrome caused from Lyme" a few times....but they were part right on that---my lyme did cause Guillian Barre Syndrome
Anyone else see these doctors?
Posts: 29 | From New York | Registered: Aug 2007
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posted
BTW...Dr. L.S. in Dr. Leonard Sigal...our PCP's office referred us to him, calling him a "Lyme Expert"...UH HUH!!
Posts: 217 | From New Jersey | Registered: Apr 2007
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
up
Posts: 1184 | From north america | Registered: Feb 2003
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RoadRunner
Frequent Contributor (1K+ posts)
Member # 380
quote:Originally posted by elle108: BUT...she is seeing an LLMD because her experience with Dr. S was akin to spending an hour with a snake oil dealer.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Went to Steere's nest at NEMC. TOTAL DISASTER! Was told I couldn't possibly have Lyme, and if I tested - on their proprietary test, I wouldn't be treated. Was ultimately told I had Fibro.
This caused great anguish & a year of chasing black holes and wasted time finding the proper diagnosis. With the help of a few kind non-LL PCPs, I found a LLMD and got treatment underway.
Here's some food for thought: My 4 "CDC + WB" came only after extensive treatment.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Will you all add to this thread with your opinions stated so I can forward it to my family who things i should go to a IDSA doctor. ??
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
"Topic: anyone here on lymenet ever been treated by Steere, Datwyller, Shapiro, Dumler, et al"
posted
Spring... Were you asking about Wormser in one of your posts??
I would not see that guy if I were dying and he was the only dr who could save me!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Lymetoo yes..
It is my family who choose him and I am trying to gather up some posts and threads and articles to show them that is NOT a good idea.
just like the controversy though.. Someone can get swayed into a direction that is obvious to us is not good but to them they think it is.
They are quoting the doctor that I am wasting money on abx that are more then the two week treatment and just making my body toxic blah blah and no wonder I am not getting better.
They want to help me. So I hope to sway them and then they can help me with a doctor that really can help me..
First I have to convince them. Not as easy as one might think.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Wormser and Steere are the perfect example of using "some" facts to obscure truth.
It's unfortunate, deceptive, and in all honesty a mystery to me that people like that can even exist. I'd be naive to think the world was puppies carebears and unicorns, but some of the things I've seen make my skin crawl, and Dr. Wormser is one of them.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
look for the post about 7-31-09 IDSA hearing in wash. dc w/ilads drs, 2 lyme patients, researchers & idsa drs. including those you named above who TESTIFIED....
there are links in several posts about what they said vs. OUR ILADS, chronic llmds!!
the truth speaks for itself; i believe alot of it is in text to read also.
there is your evidence for your family!
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It seems you already know the people who have denied treatment and sickened thousands.
Most in this community know that their poorly advised treatments are usually useless, and leaves Lyme patients chronically ill. This has been documented in many films, books, stories, articles, etc.
Please share more when you can, thanks...
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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It seems you already know the people who have denied treatment and sickened thousands.
Most in this community know that their poorly advised treatments are usually useless, and leaves Lyme patients chronically ill. This has been documented in many films, books, stories, articles, etc. [/QB]
This is what makes me angry with the WORM. He's evil for the above reasons.
To all .. this is an old post by David.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
What I don't underrstand is how these docs can even practice medicine. If they gave me the run around and then I found out I had Lyme and not Fibromalgia and Chronic Fatigue Syndrome- I would raise a ruckus. There should be hundreds of patients complaining and sending letters to their state medical boards about these docs.
If poor wonderful Dr. J can be charged with something and have to spend thousands on defending himself when he does get hundreds of kids better the tables should be turned and these docs that don't beleive in more than 2 weeks of antibiotics should be held accountable. If anyone has seen these docs and not had a pleasant expereience and found their diagnosis wrong- they HAVE TO SPEAK UP. That's the only way the tables will turn.
Posts: 238 | From Bethlehem, PA | Registered: Oct 2004
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posted
Hides, you are hopelessly logical -- too much for the Lymeworld!
Tincup, Lymetutu -- if this is a troller, there are many ways to keep this nonsense out. Pls have the admin contact me.
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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