posted
Has anybbody taken Indocid (indomethacin) for bad Lyme/Babs (or treatment-induced) headaches?
I get these monster killer headaches whenever I am using something that initially helps. They usually hit after 3 to 5 days and they are so bad that I HAVE to stop treatment. I want to be able to get through this "wall" and continue treating but I haven't been able to, I am trying to find something that will enable me to continue.
I get these headaches particularly severely when I use Tinidazole and artimisinin, but I used to also get them with other abx and with anti-babesia treatments. I got them the very worst with albendazole (an anti-parasite)
I want to avoid stero�ds and I was wondereing if people had had good results from bad headaches using Indocid
Thanks
Nelly
[ 28. August 2007, 10:28 AM: Message edited by: nellypointis ]
Posts: 416 | From france | Registered: Oct 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Nelly. I'm so sorry you are suffering from these monster headaches. I haven't tried Indocid. However, I have found Relpax to be almost the only thing that helps. Seconded by Imitrex. Ask your doc for a sample as they're very expensive.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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quote:Originally posted by Michelle M: Hi Nelly. I'm so sorry you are suffering from these monster headaches. I haven't tried Indocid. However, I have found Relpax to be almost the only thing that helps. Seconded by Imitrex. Ask your doc for a sample as they're very expensive.
Michelle,
Thanks,
Someone said that Indocid was good at lowering inflammation in and around the head/CNS, better than the other anti-inflammatories. I'm surprised, given the amount of inflammation we have to deal with when we have Lyme, that Indocid has not been used by people here
Nelly
Posts: 416 | From france | Registered: Oct 2001
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quote:Originally posted by Lymetoo: Also...Do you have babesia??
Yes, and anything that I use to treat the Babesia causes these mega headaches. Yet I have been treatinng Babesia for ...years, with everything you can think of.
Nelly
Posts: 416 | From france | Registered: Oct 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by nellypointis:
Someone said that Indocid was good at lowering inflammation in and around the head/CNS, better than the other anti-inflammatories. I'm surprised, given the amount of inflammation we have to deal with when we have Lyme, that Indocid has not been used by people here
Nelly
Anti-inflammatories are totally useless against the kind of headaches I get. So are pain meds. I suspect it is a blood flow issue (for me, at least). Relpax is a vasodilator; I can actually feel blood returning to my head as if it's been starved of blood. Pain eases dramatically, if you take one soon enough.
Diamox is a med that reduces brain inflammation. My LLMD relates that it helps about 50% of his patients. You might also want to see if it helps you.
Best,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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quote:Anti-inflammatories are totally useless against the kind of headaches I get. So are pain meds.
ditto
quote:I suspect it is a blood flow issue (for me, at least). Relpax is a vasodilator; I can actually feel blood returning to my head as if it's been starved of blood.
Hard to be sure, it feels like inflammation, pressure, lack of blood, being attacked by someone with an ice-pick, with a hammer, you name it...
quote:Pain eases dramatically, if you take one soon enough.
I will give it a try (I would try anything in fact), but I tried gingko (which is meant to be a vasodilator) and it GAVE me THE HEADACHE (albeit I took it in combo with abx)
quote:Diamox is a med that reduces brain inflammation..
yes, that's on my list of things to take as well
Thanks Michelle for your advice
Nelly
Posts: 416 | From france | Registered: Oct 2001
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Julz
Unregistered
posted
I have an far-infrared heating pad that helps with my wow wow headaches...especially if I use it as soon as the headache comes on. It does help once I already have one, but not as well as if I lay on it right away. The far infrared heat increases the blood circulation and it is one of the only things that helps me. If you want more info let me know. Julz
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I just wanted to let you know that I have used Indocin before. It wasn't for a headache though.
In fact, one of the side effects of Indocin is migraine. I am a suffer from migraines..I have my whole life.
The migraine I had after one dose of this med was unbearable. I ended up in the ER. They thought I had a brain bleed. Something showed up on my CAT scan but my MRA showed normal.
I know that med is commonly used for gout. I personally have not heard of it for headache treatment.
My neuro..who saw me after I had that headache said it is common to get a severe migraine from Indocin.
posted
Yes, I have used Indomethacin for years for these horrible headaches I have. I didn't know I had Lyme all the time this was happening--I just knew that when I started getting this illness that no one had any answers for, I also developed this AWFUL headaches. A doctor I went to for carpal tunnel told me to use it for my headaches--and it really helped. He said they had done a study on it at the Mayo Clinic.
Posts: 25 | From Kansas City | Registered: Sep 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I use nsaid for headaches a lot. But I don't believe my headaches are as severe as some others with TBDs. I prefer to use ibuprofen or something similiar and that always stops my headaches for some time. My headaches are not daily.
My headaches mainly seem to be from inflammation, but sometimes they are different feeling and I associate that due to being toxic. That's when I do more detox baths and things that help me detox.
A month ago I had an attack of something on both my elbows and doc scripted the indocid because the tramadol & non-script anti-inflammitories wouldn't touch the pain. I took it for about 4-5 days until my elbow pain subsided.
Could your headaches be due to overload of toxins and your body is not ridding itself of the toxic overload until you back off the abx?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Do you have pseudotumor cerebri? This is when the volume of cerebrospinal fluid gets too great and causes intracranial pressure.
Biodynamic craniosacral therapy from an experienced practitioner can help reduce the pressure.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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posted
i take indomethacin for hemicrania type headaches which is a daily one sided headache similar to cluster headaches, and it does help that kind of headaches but not other kind of headaches i get like the one u get with babs, i hope you get some relief soon, relpax is a great medicine but u cannot take it often, Radha
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