Will your son drink smoothies? If so, learn how to make your own kefir and add it to the smoothies. Kefirs carry at least 15 strains of beneficial bacteria.
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You can also go to your health food store and tell them what you need.
My daughter would buy Acidophilus and sprinkle it on applesauce when her boys took antibiotics. Buy the best quality possible.
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sometimesdilly
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thanks for the suggestions.
parisa- he'll drink smoothies sometimes- that's progress- but i kid you not, he can sniff out/taste a speck of anything different than what he expects to be in there, and that ain't much.
cbb- thanks for the suggestion of sprinkling. i'm thinking he'd taste it that way too.
i think in retrospect that he may have been extremely sensitive to how food tastes his whole life because Lyme gave him GERD from the very beginning.
The ONLY "food" that has tasted good to him for the past 6 months or so is anything at all that is stuffed with sugar in any of its forms.
he will literally rage if he can't get it.
starting off, anyway, i'm thinking the taste of probiotics or kefir will be very difficult to disguise in anything that he'd be willign to eat regularly. hopefully that will change as his load comes down.
dilly
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groovy2
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Hi Dilli
how about flavored yogurt -- The Dannon Lite has little sugar -
I eat alot of it - sometimes I mix a few doses of Probiotics in it and mix up and let sit for a few hours-
Also Plain yogurt with Vinella or maple syrup mixed in makes it tasty- Grade B maple syrup has Ton of minerals in it and is good for you--Jay--
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sometimesdilly
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jay-
thanks for the suggestion.
my dh is from VT and we actually have close to a gallon of pure maple syrup straight from a relative's vats. my son loves the taste.
question is, do the keets see it as sugar and thank us for feeding them?
dilly
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If you haven't eliminated the sugars completely yet maybe you could sweeten the smoothies for a while and then very, very slowly use less sugar/honey or maple syrup.
I have a son who is also a picky eater. I gradually switched from Bisquick to a homemade whole grain pancake on him. It took me a couple of months but I did it.
I also switched him from a high fructose corn syrup maple syrup to the real stuff by mixing the two together. I would pour it back into the container so I wouldn't rouse his suspicion.
[ 30. August 2007, 07:41 PM: Message edited by: Parisa ]
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sometimesdilly
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parisa-
you sound like a very wise (and talented) momma.
the start sweet and then wean away to nil makes sense to me, and probably is the most realistic approach.
going cold turkey from everything sweet AND beginning abx and probiotics and whatever else all in one fell swoop would be nuts.
thanks... dilly
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groovy2
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When I had candida real bad maple syrup was the only sweetener I could use- It did not cause me any problems if I did not go overboard -- Jay--
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breathwork
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Shaklee Optiflora is probiotics in a tiny pearl bead-like pill that releases in the gut rather than the stomach. I've used them for years, through IV, etc....The pills are round and very small. There is no taste.
Perhaps he could swallow that easily and not have to taste it. My kids used them when they were little, when swallowing other pills was out of the question.
I don't sell Shaklee to folks on lymenet, but will gladly forward you to someone else who does. Shaklee is NOT my business. I have used their products for twenty years, not made a business of it.
Carol Ann
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quote:Originally posted by sometimesdilly: my dh is from VT and we actually have close to a gallon of pure maple syrup straight from a relative's vats. my son loves the taste.
question is, do the keets see it as sugar and thank us for feeding them?
dilly
YES!!! And the yeastie beasties see it as sugar also!
If you get yogurt, buy the plain and add Stevia to sweeten. ... Or buy the low carb by Blue Bunny....but it does contain Splenda, which is a chemical.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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You're right about the cold turkey. Sometimes with kids that just doesn't work. Only people who don't have to live with the kids, recommend cold turkey!
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sometimesdilly
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hi tutu-
stevia is an option too. i've never used it, but as i recall, it comes from a natural source? i won't touch splenda or any other artificial sweetener.
truth is, he needs to do what i have to do too- again- which is to recondition his tastebuds and brain to accept eliminating all but fruit sources of sweet.
that's why i think slow withdrawal probably would work best. maple syrup is a taste he knows and will accept, so it may be the way to sweeten things for awhile (thanks again, Jay and Parisa). maybe stevia can be the step after that before the no- more-sweets axe comes all the way down.
i forgot my original question somewhere back there, but it sounds like wafers aren't anyone's first choice in any case.
dilly
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trueblue
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Dilly,
The only chewables wafers I've ever used were the AHP ones but they have sugar. The strawberry ones are just like sweettarts, yum. It might be better than nothing or good saved for a treat.
Does he eat yogurt at all? If so, you could add liquid acidophilus to it and up the ante. The same for smoothies.
One other, maybe better, thought... I add powdered probiotics to my food. I open a capsule (or buy the powder). The ones with FOS have almost no taste and are mildly sweet. (I put it on cereal and add to yogurt, etc... I don't taste it and mixed in you don't see it. Also eaters don't come much pickier than me.)
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Cobweb
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I have a "Probiotic Synergy Powder"-20 billion organisms per serving. by designs for health. only requires 1/2 teaspoon per day-easy to mix in whatever.
LLMD said it's what they usually use for kids.
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Since being diagnosed with lyme I have hated kefir. I force myself to drink it jsut because I know its good for me. Last week however, I found out that theres stevia flavored whey protein.
When it is added to the kefir is is sooo yummy and tastes liek a smoothie. It also comes in different flavors liek orange dreamsicle, strawberry, watermellon, and chocolate.
You can also ask your local pharmacy if they have Lactonex. It's a pretty old probiotics but works really good. It is chewable and has a kinda sweet taste.
I also get probiotics from bluebonnet that are chewable and have 1 billion organisms per tablet. Thay also taste sweet (even thoguh they are sugar free) so they mgiht work for your son.
Good luck, Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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AliG
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Hi Dilly-
I got some children's chewable probiotics that are sweetened with xylitol & sorbitol. They're microencapsulated to survive stomach acid and also shelf stable.
They're grape flavored and quite yummy. My DD even likes them.
The one's I have are my little local Health food store's brand so I googled the manufacturer for you: Institut Rosell - Montreal Canada
The google looked interesting. Maybe you can find a source near you.
An idea for switching yogurt to fruit sugar:
Buy plain yogurt & Polaner All-fruit (or something like it). Mix in some all fruit, more at first and gradually and gradually reduce.
I actually prefer yogurt this way. My personal favorite is just a touch of the seedless blackberry. YUM!
Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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sometimesdilly
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thanks ali, sultaness of sweet;
trust you to find this missing thread! and thanks for the probot suggestion.
as it turns out, disguising the Theralac has been no trick at all. unlike trying to make the taste of liquid Zith poof into anything else.
i'm typing this one hour into a full-fledged battle to have my DS take that zith this AM. He's screamed and punched me and thrown things and cried and sulked and tried hugging/kissing me so i would relent,and when that didn;t work, went back to screaming.
he is a foot away now, trying to outwait me, playing with a pile of ballons, because nothing else is going to happen until he finishes his 1/8th cup of chocolate milk with zith in it.
he told me awhile ago that he sure wished he didn't have Lyme, and that it was all my faulat for giving it to him. hmm. guilt where punches fail, i guess...
dilly
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AliG
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CVS & Shop-rite can flavor-change liquid meds, to help cover up the ick-factor!!
I think bubblegum worked with DD for augmentin. She tried others at later times & they weren't too good.
She actually set about recommending the bubblegum flavor for ABX to other mothers in the supermarket after she had tried it. (I think she was 2-4 at the time.)
Check with the local pharmacies to see if you can get it flavor-changed. This trick has helped me in the past!
DD has also found it easier to get down liquid ABX by diluting with a little water, holding her nose while taking and chasing with more water.
I hope this helps!
Sorry 'bout the battle. I remember those days all too well.
Remember- THIS TOO SHALL PASS!!! THIS TOO SHALL PASS!!!
As for the mommy-guilt thing. It's not your fault sweetie, it's the STUPID DOCTORS that didn't tell us we were sick and that we could pass this on to our beloved babies. He should know that no mommy would ever want to see their child suffer and any one of us would gladly take their pain for ourselves if we could.
Oh Dear, Dear Dilly - I'm SOoo sorry for you!
[ 10. September 2007, 04:16 PM: Message edited by: AliG ]
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Cobweb
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Perhaps if you involved him in the process by saying something like
This is the medicine the doctor needs you to take to get well-what do You think will help it to taste better?
that way it will become his decision and not something you are forcing on him.
Or to narrow down the field say: This is the medicine the doctor needs you to take to get well- do YOU think it will taste better in applesauce?, strawberry yogurt? or crystal light?( for example)
It is always good to involve the child in the process and solution.
Just my thoughts on the matter. Carol
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sometimesdilly
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hi Ali-
i'll check into the flavor-changing thing for sure. since the amt of fluid the dose of zith ends up being is so tiny, though, i'm thinking he's battling more for the principle of the thing and to vent anger. and, likely, he's herxing. though my DH doesn't buy that.
Lyme has made him incredibly oppositional at times- i think of Geneal's description of toe to toe stand-offs: throw in our faces going nose to nose and that fits perfectly.
i'm fine, really. the anxiety of having to begin his tx is over, and so far anyway, he is still the same kid, just plus some in places. i'm actually pretty proud of him...
BTW- i don't think you've said...when do you go for your IV??
thanks again- you are such a good friend! dilly
sorry, Carol- our posts crossed. I share that philosphy about kids. I did and do and always have explained things to and included my son. He undertands what is going on as much as it is possible for a 5 year old to understand.
In his better moments he has signed on completely to the notion that we are fighting Lyme as a team, and we have gotten silly together running around with pirate swords chasing the "Lyme Bully," how he describes what is inside him that takes parts of him away.
having kids yourself, i'm sure you know better than i even that sometimes there isn't anything that can be SAID that will make any difference-- those times you just have to get your kid to the other side of whatever as best as you can in any way you can... and have hugs waiting.
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AliG
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Hey Carol,
I like your ideas .
After I read your input I re-read mine & realized that, since my tone couldn't be heard, that could have sounded really awful.
I was actually speaking with calm, rational reasoning. I have on occasion had to try that tact with my DD, when all else failed and it became too much for my Lyme-mangled brain to handle without exploding. She would then choose to take the medicine, begrudgingly.
I deleted it because when I reread it and realize how it could be interpreted, if said in anger or with a harsh tone, it was just plain scary.
Dilly,
I hope you realized the tone I was using and that I didn't mean for you to try the tact of a raging psychopath.
I think I've returned to miscommunicating myself again.
Thanks for the "good friend" compliment. I may say things that come out all wrong, but I sure try real hard! I'm glad that you always seem to know that I mean well.
To that I say- "No, YOU'RE the good friend! "
(((big hugs))) Ali
PS- ID appt is 10/1, but I don't really know what it means. I'm hoping, from what I've gathered on the board that it's just an initial consult and they'll stick me at a later date.
My LLMD IS faxing him a letter and all my info ahead of time, which scares me. I'm afraid that it's entirely possible that (if the ID's been properly forewarned about me) he may just have a team waiting, hiding behind filing cabinets to ambush me ((eek!)) & hold me down to stick me. (lol)
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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sometimesdilly
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honestly, Ali, I'm baffled about what you say about what you said.
you've never been anything but 100% supportive, including what you've said here.
i'm afraid you remain the unchallanged and unrivalled Empress of Sweet, toots.
a PM coming your way tomorrow, when DS goes back to school-- almost no matter what.
dilly
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AliG
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Another thing.........
I think, if I remember age 5 correctly, that the battle may also be for feeling out of control of the situation. I seem to think DD wanted to control EVERYTHING around that age. (It may have actually STARTED around 3 )
Things would become battles just to see if she could win them. Boundary testing. It really stinks!! Not fun at all!
I hope the flavoring works. I think it was called "FLAVORx".
If he gets to pick the flavor, how can he say no??!! Tell him my DD highly recommends the bubblegum.
Although, it's also good to ask the pharmacist what flavors would likely taste the best with whatever the base flavor is and let him choose from there.
Cool! I also found "The Wheel of Yuck"! Which tells you what tastes best with what meds! (I need an end-zone dance here - Go Ali! Go Ali! )
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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sometimesdilly
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Ali- the Wheel of Yuck?!!
does it get any better than that, momma?
you're the best...
and sure enough- the zith is rated as one of "THE YUCKIEST."
dilly
(you'd have appreciated the look of utter consternation and fear too on the face of N's teacher when i explained (behavioral) herxing to her this AM and told her that N would most likely be doing just that all day..
dilly
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AliG
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Poor teacher Did she look like this?
I'll bet she was thinking "this job really doesn't pay me enough". I hope that, since she's teaching young children to begin with, she is a kind, caring and PATIENT person!
Still chucking.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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sometimesdilly
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Ali-
she's fabulous, for the most part.
her only failing, in my very minority opinion, is that she puts too much emphasis on having kids obey authority.
i was brought up by hippies in Berkeley, and taught the opposite- always question authority. For most of my life, I have done just that, and i don't WANT my kid programmed to blindly fall in line.
maybe one up side to his Lyme is that he now has a phenomominal reason/excuse for not always saluting back.
anyway, i digress.
the best thing about this teacher is that she is involved in many aspects of setting policies/writing curriculum etc. at a city-wide level. which means, educate her about Lyme- she knows nothing about it- and she is in the position to spread that knowledge very widely.
Lyme 101: Herxing. let the lesson begin...
dilly
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Geneal
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Dear Dilly,
Try as I might, I haven't been able to disguise the flavor of zithromax (liquid).
I have gotten just about every flavor added to it and my kids still say "Yuck!"
I just got a case of tough love and said "here it is. No medicine, no desert."
They balk, but I remain firm.
My son likes his squirted down his throat with a syringe.
I don't worry about aspiration as it is so thick.
My daughter likes hers from a cup.
I have explained to them why they must take their meds.
They both know they have Lyme disease.
They also have liquid diflucan that they can take if the yeast gets going.
As for probiotics, I have to admit that I give them one with sucrolose.
I know it's adding something, but I get the zith in, so I'm willing to admit defeat in this department.
With Halloween coming, the sugar will be out of control for a while.
What I am waiting for is flagyl. I heard you can't disguise that even with Hershey's chocolate syrup.
I guess after cajoling, bribing, trying to disguise, and losing my mind over it,
I just decided since they were going to be taking this med for a while,
They might as well just bite the bullet and get it down.
I know I sound mean, but the process to get to this place was exhausting with my two
Little manipulators!
Hugs,
Geneal
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