LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Ups and downs

 - UBBFriend: Email this page to someone!    
Author Topic: Ups and downs
spinsterwitch
Junior Member
Member # 12969

Icon 8 posted      Profile for spinsterwitch     Send New Private Message       Edit/Delete Post   Reply With Quote 
I stopped by recently when I was just diagnosed. I have been on the abx treatment for a bit now which seems to have treated the fatigue and fevers, but now I seem to have developed pain and aches in both arms - pretty much from the elbows down through my hands.

Does anyone have things that have worked for them with soothing this kind of pain. I took some ibuprofen and it helped a little, but I'm not a fan of long-term use of NSAIDs.

Unfortunately, the LLMD in my area is both too expensive for me and booked out until November. So I have an appointment with a rheumatologist in October. What are people's experiences with rheumatologists?

Posts: 4 | From Oakland, CA | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
yourtroubl
LymeNet Contributor
Member # 11087

Icon 1 posted      Profile for yourtroubl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got no help really with a Rheumy. She gave me Lodine and some muscle relaxers and that helps some. I saw no real relief until iv antibiotics.

Good Luck

Posts: 347 | From WV | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by spinsterwitch:
So I have an appointment with a rheumatologist in October. What are people's experiences with rheumatologists?

Not good at all! Read my story below!

He/she will tell you chronic lyme does not exist and you must have RA. Then they'll tell you that you need steroids and/or methotrexate. My ex-rheumie also gave me Lodine...which is no different from Celebrex or Vioxx, for the most part.

You need TREATMENT of the CAUSE of your problem....which is Lyme.

Save your money on the rheumie.

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

 -

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780

Icon 1 posted      Profile for Vermont_Lymie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you considered acupuncture? In my experience, it is effective for muscle and nerve pain.
Posts: 2557 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
cmty
Member
Member # 12877

Icon 1 posted      Profile for cmty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Rhumatologist did not really help me either, what helps with my arm,elbow,wrist pain is Vicodin, low impact exercise, a hot tub, and lots of rest. It seems to come at the strangest times, during work, driving, whatever. Just be careful. PM me any time.
Posts: 25 | From PA | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I LOVE LOVE LOVE your name*)*!)!

I am in Santa CRuz County-

Rheumies suck. Ones I have dealt with anyway.

Doc S is worth it!!!! GO TO East Bay SUpport Group in person and I bet you can find a chepaer local doc though- only the big ones are known here in the Seeking Doctros section-

We have ONE local Rheumie who treats with abx-
woman doc- others Rheumies are IDSA idiots-

Like MOnty said, acupuncture CAN help Lymies-
adjunctive to abx therapy of course (abx protocols are the only thing I have seen put chornics into full remission, period) but acupuncture is great!!! DOES help people!!!

WELCOME TO THE BOARD!*&)*!)!* )!
!*)!*)!*)!* )!*)!* )!*)!* )!

I ohpe you know that in 2003 the San Jose Enotmology Dept found 17.8% infection rates- Lyme disease- in Santa CRuz County- in ADULT ticks!!! they are rethinking the whole %s of Lyme in CA-

Welcome welcome welcome*)*!)!
Sincerely,
Sarah O.*)!*!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.