posted
Last night I woke at 3am with the worst sweats, feelings of nausea, clammy, heart pounding. I feel awful after a night like that. It just seems to be getting worse. 1 month today to see my LLMD, it can't come quick enough. Anyone have suggestions on books to read, related to TBD? Reliable info, that is. I'm sure there are a lot of books to stay away from as well. thanks
Posts: 25 | From PA | Registered: Aug 2007
| IP: Logged |
ByronSBell 2007
Unregistered
posted
This is a "BIG RED FLAG" for babesia. Hopefully you can start treatment soon, make sure you persue babesia though, I think you will really improve but look out for the herxes that come with co infections, they can be scary
IP: Logged |
quote:Originally posted by ByronSBell 2007: This is a "BIG RED FLAG" for babesia. Hopefully you can start treatment soon, make sure you persue babesia though, I think you will really improve but look out for the herxes that come with co infections, they can be scary
I agree. Be sure to mention that to your llmd.
I don't really know of any books, but look online. There is a lot of info. Dr. B's guide is very informative.
posted
I'm sorry I can't rattle off a source for you, but there is probably good information on the "LymeNet" pages-- try some of the links at the left (for example, I see one called "books").
As for my own thoughts on what you report, it seems likely you may have babesiosis and possibly other co0infections! There is an herb called artimesia anua that is very effective against babesia. Your doc should know about this, as well as about the possibility of co-infections. It's best, of course, if you find a doc who will discuss all this stuff with you, instead of just prescribe drugs, but that's getting harder and harder to find. True "LLMD"'s are usually much better than average for this.
The standard pharma drug for babesia is atovaquone, which at this point is very expensive. Two forms of it I know of are 'mepron' (liquid), and 'malarone' (tablets). A possibly cheaper pharma alternative is quinine and clindamycin, which I did not try, as I heard there were some nasty side effects.
Did you have any testing? Testing for Lyme is very unreliable, but I think testing for co-infections may be a bit better. In any case, labs are not all equal, and a good doc will know the best ones to use.
I hope you find the optimal treatment! DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
| IP: Logged |
quote:Originally posted by HaplyCarlessdave: A possibly cheaper pharma alternative is quinine and clindamycin, which I did not try, as I heard there were some nasty side effects.
DaveS
Hi HaplyCarlessdave, Do know where someone could get the info on the quinine? I regularly drink tonic water, it's the only thing that helps in certain times with my intestines. Thanks
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
| IP: Logged |
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
| IP: Logged |
posted
Be sure to click on the Amazon.com ad on the left side of this page. Lymenet gets a kickback from purchases when we click on the ad and purchase.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Roll Eyes]](rolleyes.gif)
Thanks![[kiss]](graemlins/kissing.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic