posted
Has anyone had chronic hair loss symptoms with Lyme? My son has been losing body and scalp hair for months.......otherwise symptom free for the past one and a half years. Any suggestions?
Posts: 3 | From CT/DC | Registered: Sep 2007
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frakktured1
Unregistered
posted
I have experienced some hair loss. Either from the disease itself or some of the medications I have been on.
I really don't have any recommendations for you but perhaps someone else will come along soon.
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I've had hair loss for a really long time. Not like balding hair loss, but just lots of strands falling out ALL day long. I don't know if it's normal, but I don't think it is. I lose a TON. But I really don't know if it has to do with my lyme or not (especially since I have no idea how long I've had it without my knowing).
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
"Sheddind" happening to me this last protocal...I believe it's from omincef... big time shedding.
I freaked. Today at LLMD, letting me stop omnicef, but did say he's heard it w/other lyme payients on different meds.
My prescriptions didn't say hair loss from any of them but I remember last time on omnicef I complained of "shedding".
Will see if stops.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
Same thing with me. Lots of hair shedding. Very upsetting. I started noticing it about 3 months after I got very sick... it hasn't stopped and I've been on treatment for about 2 months for babesia. I have noticed though since I have been on treatment that I have had lots of re-growth... little sprouts coming back.
Posts: 45 | From MA | Registered: Sep 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Yes this happens and you can Herx with it!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
This happened to me when I was on IV. I think it could be from the meds, or thyroid.
Posts: 1603 | From ny | Registered: Aug 2006
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tailz
Unregistered
posted
I'd been to a dermatologist several times over the years for intermittent periods of excessive hair loss - more of a thinning out, than actual balding - but it was severe enough, even intermittently, for me to have gone to a dermatologist.
I was usually given a fungal shampoo which did nothing at all for my hair loss, though it did dry my hair out beyond belief.
When my symptoms became so severe, however, that my diarrhea became the 'norm' and not just periodic, the thinning of my hair increased to such an extent that it IS now noticeable.
This hair loss continues in spite of antibiotics and improvement in GI symptoms, though I at least notice some regrowth finally. My hunch is that blood flow is restricted to the hair follicles, resulting in their death. I'm sure toxicity plays a role, too.
I suspect grey hair is also caused by infection and toxicity. I had more grey hairs near my left temple when my pain was primarily left-sided.
Once symptoms moved to the right side, grey hairs began appearing on that side, too. In fact, I think I have more grey hairs on the right side now and I've been plagued with swooshing, buzzing, and ringing in my right ear.
I didn't dare mention my greying hair to my doctors though after being told my glorious mane of hair falling out was 'normal' shedding.
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posted
Hair loss before starting meds & for a while on meds, then hair stopped coming out in handfulls in the shower.
New discovery: coconut oil on hair & scalp made my hair thicker & darker: not a huge amount but enough to notice a difference. Used it on face, and eyebrows are darker & thicker. Used it on arms and I have arm hair again (don't know if that is great, but I went from femininely hairy to almost hairless on arms, hands, legs).
ESG
Posts: 424 | From Connecticut, USA | Registered: Nov 2003
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posted
Coconut oil is a strong anti-fungal, I suspect it's killing stuff in your follicals and skin, good job !!
Posts: 121 | From Memphis, TN | Registered: Dec 2004
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posted
Yes! It freaks me out in the shower. I get handfulls.
Thankfully, I have not been able to notice a difference when I look in the mirror.
For me it always accompanies a bad herx (like now).
Posts: 390 | From Oakland, CA | Registered: May 2007
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
My LLMD had me start taking biotin (a relatively inexpensive supplement); it's really helped my hair loss.
Posts: 2549 | From never never land | Registered: May 2005
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
During 3 years of antibiotics treatment, hair loss on scalp, eyebrows, legs, hands, arms, underarms. All grew back, except the underarms. This worries me. Does that mean lyme bacteria are hiding in that armpit area?
Posts: 1226 | From USA | Registered: May 2007
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