LymeNet Flash: Guess it's Malarone now

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Guess it's Malarone now

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Author

Topic: Guess it's Malarone now

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

Dr. C says that a doctor in LA has had great succes with malarone, and has had patients going into total remission after malarone.

Have to call and order it tomorrow. Insurance company only pays for one dose a day, and Dr. C recommends 4 a day with Biaxin.

I want to whine about the cost, but won't. lol.

Any new thoughts on Malarone? I've read through some of the old threads, but not seeing a lot about it lately.

Hubby is supposed to do a malarone/biaxin combo? Anyone else done this? What dose did you take? Were you able to take the 4 malarone a day?

Sorry for so many questions. It's just so hard to know what is the best thing to do.

Hubby has been on a break from ABX for about 3 weeks, and still doing HBOT. Just not doing very well right now.

Best wishes to all. Thanks for any input.

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

Cobweb
Unregistered

posted

Sorry Boomer- I don't have any first hand experience with that combination.

But I sure could identify with the comment about not making a comment about the cost. I have a bill in front of me for the home infusion services.

Well, you can't get turnips from a block of cement.

I haven't had to pay anything-until the fiscal year turned over-so now I have the deductables to anti up all over again.

I may offer them ten bucks a month, and then stand on the corner with a piece of cardboard that says-

"A tick sucked the life out of me. Need $$ to kick its lymie little butt"

Take Care,
Carol

IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

I've been on the malarone treatment at four a day for over two months now.

The LLMD your doctor is referring to, is mine.

This is my second go-around with this therapy.

I started slow at one a day for a couple of days, then two for a couple of days, and so on.

Never had any problem with malarone. Just be sure to take it with fatty foods or milk.

Tell your husband to get ready for a babesia herx.

They aren't any fun. [Frown]

You can PM me if you need any more info.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by Cobweb:
"A tick sucked the life out of me. Need $$ to kick its lymie little butt"

That is REALLY good!! May work....let me know!! [Big Grin]

Malarone didn't do much for me. I don't remember how many I took per day though.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

steven
LymeNet Contributor
Member # 13101

posted

also startet malarone/biaxin four days ago. four pills a day. I cant say that my state has changed much since then - so at least no major sideeffects, no growing pain.

my insurance also dosnt cover it. im thinking about getting pills from somewhere where its a cheaper and where you can buy it without prescription e.g. spain. One month of malarone costs exactly I earn in one month...

Posts: 226 | From earth | Registered: Sep 2007 | IP: Logged |

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

Thanks guys.

Steven, our insurance only pays for one pill a day. LLMD wants hubby on four a day. So we'll have to pay for the higher dose.

Thanks all.

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

LaurenTurner
LymeNet Contributor
Member # 12320

posted

I'm taking Malarone too. I have the same dr. as Geneal. [Big Grin]

Right now I'm taking a short break from antibiotics because of some heart issues. But I was taking it with zith and flagyl.

I don't know if the malarone is working... but I have no problems with it. Well 'cept for the price! [Eek!]

Good luck!! [Smile]

Posts: 248 | From Tejas | Registered: Jun 2007 | IP: Logged |

Visual Afterimage Man
LymeNet Contributor
Member # 10435

posted

I'm on the start of month number three of 6 pills of Malarone per day with 1000 mg of Biaxin.

When I first started out, I thought I was in remission. I felt like myself again for about 3 or 4 days. Oh how I yearn for that to return.

Since then I have had serious herxing. Still herxing which is going on almost three straight months.

A part of me wonders how much of this is side effect from taking this high of a dose. I am counting down the days where I don't have to do this regimen any longer. I'm hoping that once off the Malarone, life will improve.

The herxing seems to be a fair amount of anxiety and fatigue. Depression is in there too because I don't want to do much these days. I'm sooo tired and frustrated with being sick for this long.

I also hate going to Costco and forking out $250 per month to get my 180 tablets of Malarone. It's such a conflict in interest in paying that much money for a drug that makes me feel aweful.

From what my LLMD tells me is that it will be worth it. After the completion of this third month we will restart Lyme treatment and see where I go from there. We might have to a Mepron and zithromax combo later on down the road.

Not that my telling you this will make it any easier.. but expect the babs treatment to be difficult to deal with. It's been harder than Lyme treatment by far.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006 | IP: Logged |

tic chick
LymeNet Contributor
Member # 9156

posted

Is Malarone the same as Mepron? Iam taking the later with Zith and had to stop yesterday ....power herx was killing me.

[Frown]

Tic

--------------------
Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton

Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome!

Posts: 309 | From S.E. Mass | Registered: Apr 2006 | IP: Logged |

LaurenTurner
LymeNet Contributor
Member # 12320

posted

quote:
Originally posted by LaurenTurner:
I'm taking Malarone too. I have the same dr. as Geneal.

Right now I'm taking a short break from antibiotics because of some heart issues. But I was taking it with zith and flagyl.

I don't know if the malarone is working... but I have no problems with it. Well 'cept for the price!

Good luck!!

I take that back, the price really is that bad. I got a refill today and for some reason it was cheaper. Last time it was $46.. this time it was $35. On the package is shows how much my insurance saved me and it said $650! [Eek!]

I'm sure the insurance co. hates me. [Razz]

Posts: 248 | From Tejas | Registered: Jun 2007 | IP: Logged |

nancyf723
Member
Member # 7505

posted

I've been on 3 malarone daily since February, my LLMD wrote the script for 4 per day, but I just couldn't take four per day.

I remember reading something here about weight affecting the dose. I weight 110 and just couldn't take the higher dose. Last month he added flagyl, Dr. B recommends it to ramp up the effects of the malarone.

After 6 months last year on zith & mepron and 7 months this year on biaxin & malarone, adding the flagyl has definetly helped.

I guess I'm one of the lucky ones when it comees to the cost, my insurance co pay is 10 bucks per rx.

Posts: 69 | Registered: Jun 2005 | IP: Logged |

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