disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Anybody have the Frye test done yet? It's some new lab in Arizona who checks for co-infections. I guess they do staining. My LLMD thought it would be good to do. It's expensive!!!
But I had it done anyway. Won't get results for a few weeks. I really hope and pray it shows something. I need some answers!
If anyone has had it done, what did you think about it? Did you get any positives, etc.?
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Leaving these anonymous as some members have kindly offered them as examples. Others have posted that their tests have been negative. He seems really thorough!! It might be best to change title of post to "Dr. F's Lab." Hope your test is revealing!!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
I was told recently about this lab... seems like their onto something...
Are you on antibiotics currently?
I was told by them to wait for 3 months , being off anti's and then test....to get the most accurate results....is that true? do you know?anyone?
I seem to understand why, but having a brain fart..can someone please explain that to me ....isn't it all just by chance anyways...that it comes out postive ...??
I guess though certain factors inhance your chance of catching those buggers when their out and about...
interested in your results...please post when you know..
smiles, Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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frakktured1
Unregistered
posted
I don't know why anyone would want to get another test done if they were already positive with Bb thru a westernblot?
That is of course unless the doctor him/herself would like to see how this test result comes accross
I mean once you're positive you only run the risk of getting a negative result. Then whatever doctor may have second thoughts about treating you,
posted
Let us know disturbed - hope you get some results with your test. Keep us posted!
Frac - sounds like disturbed is looking for a 1st pos...we've all been there. It's a validation thing, remember? I remember all too well.
Posts: 176 | From Tenn | Registered: Jul 2004
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by frakktured1: I don't know why anyone would want to get another test done if they were already positive with Bb thru a westernblot?
I never got a positive on the WB though. So me and my LLMD thought this would be good to have done.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
I was negative for any co-infections through Igenex then my new llmd/integrative doc ran this test. I came back positive for babs and bartonella.
after 6 months of being treated for those, my stain is now clear. LLMD told me that Igenex is looking into adopting Dr F's testing.
Posts: 52 | From silver spring, MD | Registered: Jan 2005
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
My daughter's picture is up there. She was on abx when it was taken, but it clearly showed babesia where we had never seen it in regular blood tests. See the clumping of her blood? She had to start heparin to help that.
Our support group leader had hers and her son's blood tested through IGENEX, then two years later, had it done through the Lab mentioned here. They both came up positive for Erlichia and babesia, which showed neg at IGENEX.
My blood smear came up crystal clear. That can happen if the bacteria are hiding away from the blood stream.
There is a great saying I saw on this site:
"If you dip a cup into the ocean, but don't catch a fish, does that mean there are no fish in the ocean?"
I'll have to ask Dr. F about partnering with IGENEX, he hasn't mentioned that.
Posts: 2903 | From AZ | Registered: Feb 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by kelmo: My blood smear came up crystal clear. That can happen if the bacteria are hiding away from the blood stream.
There is a great saying I saw on this site:
"If you dip a cup into the ocean, but don't catch a fish, does that mean there are no fish in the ocean?"
That's true. But I'm really hoping and praying mine shows something because I still don't have the answers I need. It would be wonderful just to know for sure, you know? *praying*
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
It's good evidence, if something shows up. Most show something.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
I am thinking of sending this test in Moday, after about a week of antibiotics. I hope this won't be a problem. Won't the antibitics push some dead bacteria into the blood anyway? But I am doing this mainly to look for coinfections. I asked my LLMD and he said that the antibiotic should not affect coinfection testing. Do you have any thoughts on that?
Posts: 163 | From Cleveland, OH | Registered: Sep 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
quote: I don't know why anyone would want to get another test done if they were already positive with Bb thru a westernblot?
I think many people are testing to find out about co-infections rather than borrelia Co-infection testing is not very accurate since there are many strains of the various infections but only a few are actually tested currently.
Co-infection treatment is often based on a clinical diagnosis because the tests are not reliable. Co-infection treatment is not cheap. I have been paying $1,000+ per month out of pocket. It might be nice to know if I have babesia via a lab test before going several rounds with expensive treatments.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I think there is a big difference. Didn't someone say that IGENEX was near $800? Dr. F is around $250+
Posts: 2903 | From AZ | Registered: Feb 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by kelmo: I think there is a big difference. Didn't someone say that IGENEX was near $800? Dr. F is around $250+
I was at my LLMD yesterday and was told that Igenex co-infection test is $1200 while what I paid for Dr. F was around $490.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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